crohns and medicare??

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

presley
New Member


Date Joined Apr 2009
Total Posts : 3
   Posted 4/22/2009 5:56 PM (GMT -7)   
  evening ......I'm new to the site (love it) and was wondering if someone could help with my question. I have a couple of years before I can get medicare..but someone told me that I might be able to get medicare disablity. With insurance so high for us with crohns I was wondering if anyone has tryed this. Any help wold be greatly appreciated....thanks    presley

fimk
Regular Member


Date Joined Apr 2009
Total Posts : 51
   Posted 4/22/2009 8:04 PM (GMT -7)   
If I understand your question correctly, you cannot get medicare until you are approved for social security disability or unless your old enough to qualify for social security and then medicare.   
Over 30 years experience! Dx 1976, surgery every seven years, the only effective long term drug has been very low doses of prednisone. Refuse to take anymore immune suppressants.


presley
New Member


Date Joined Apr 2009
Total Posts : 3
   Posted 4/23/2009 11:40 AM (GMT -7)   

what I wanted to know was, if anyone is on medicare disability and if so, was it hard to get it. my husband can retire now and collect medicare, but I'm only 64 and have another year to go.(So if he retires I would have no coverage and I'm on remicade, which has been working very good for me for  4 years). an insurance agent told me to call medicare and see if I could get medicare disability because of my crohns!  hope this answers your question and you could help answer mine.

                        thanks   presley


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 4/23/2009 2:52 PM (GMT -7)   
I currently have Medicare, and am only 27. If memory serves, this is the way it went...

I applied for my state's MedicAID program originally. I was approved, and able to start my Remicade within 3-4 months of beginning the application process. The treatment I received BEFORE the Medicaid approval was retroactively paid for by Medicaid, so the gap in time waiting for approval wasn't really a big deal.

This is where it gets sketchy though, because I was so sick at that time. I really don't remember if I initiated the application for Social Security Disability on my own, or if my Medicaid Social Worker initiated it for me? All I know is that I started receiving Social Security Disability Insurance checks approximately 4 months after being approved for the MedicAID. And, once I was officially "Disabled" in the eyes of Social Security, it took 2 years before they offered me Medicare.

The people that answer the phones at Medicare are kind of a joke, in my experience. They have a tough job, though - I would imagine. Anyway, I would highly recommend looking over the Social Services webpages for your state to obtain info on your state's program. I don't know if it is required that you be officially "disabled" for two years before you're approved for Medicare or not, but I'm sure that could also be found on their website. The social security administration has a fairly thorough webpage... maybe with enough digging you could find more answers?

I wish I had better details or specifics, but it's such a long journey of paperwork! I have never been interviewed, or had to appear at a hearing, or anything of that sort. All of my approvals came from handwritten answers on questionaires and the support of my doctors. The paperwork will all ask questions regarding your "current" situation. Make sure that you take a LONG time explaining in the extra space provided what your life is like when you DON'T get your Remicade. Just because the forms aren't tailored to your situation doesn't mean that you can't explain fully and clearly the consequences (physical, emotional and monetary) if you were to go without your needed medicines. You sound like you're doing well on the Remicade and want to stay well on the Remicade, so you just have to make it clear that it's better (and CHEAPER!) for everyone concerned if they approve you and allow you to continue your current regimine without being interrupted by a loss of insurance.

I hope there's a nugget in there somewhere that helps!
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade '05 through '08, with no other maintenance meds
Noticing a real difference with a Gluten-Free diet.
Currently on:
Cimzia (started 2-12-09)
Probiotics, Digestive Enzymes, Forvia vitamins, and calcium chewies
Prednisone free, again! WHOOPIE!


goldy3
Regular Member


Date Joined Feb 2009
Total Posts : 139
   Posted 4/23/2009 3:09 PM (GMT -7)   
Hi, I'm a medical social worker and help my diaysis patients apply for medicare all the time...In order to receive medicare before 65 you have to be on disability and yes, the waiting period is 2 years for eligibility....the only exception is dialysis patients (who are eligible within 3 months of dx), ALS and a couple of others....Crohn's however will not get you fast tract, sorry to say...

42 year old woman diagnosed with UC 1991, Jpouch surgery 1992, Crohn's diagnosis 2009
Current meds: 800mg xifaxin, 3mg entocort, Humira (started 3/23/09), synthroid, aciphex
 


fimk
Regular Member


Date Joined Apr 2009
Total Posts : 51
   Posted 4/23/2009 6:28 PM (GMT -7)   
I am on disability and got medicare at the same time.  However they made my disability retroactive to cover the two years.  My disability is for fatigue.  Even though the fatigue is caused by the crohns.  

Over 30 years experience! Dx 1976, surgery every seven years, the only effective long term drug has been very low doses of prednisone. Refuse to take anymore immune suppressants.


presley
New Member


Date Joined Apr 2009
Total Posts : 3
   Posted 4/26/2009 8:25 AM (GMT -7)   
thanks everyone for your comments....I'm going to give medicare a call on monday, who knows , it won't hurt to give it a try. all they can do is say yes or no.....hoping it's yes.  everyone have a great day.

Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 4/26/2009 3:49 PM (GMT -7)   
In the meantime, check out.

http://www.medicare.gov/


:-)
CD dx @ 13 (1987)
Prednisone 10mg every other day
Phenergen PRN
Celexa 20mg day
Zantac 300 - Twice Day
Pain Meds
Vitamins

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 04, 2016 11:40 AM (GMT -7)
There are a total of 2,732,618 posts in 301,038 threads.
View Active Threads


Who's Online
This forum has 151196 registered members. Please welcome our newest member, RAmiddleage55.
281 Guest(s), 8 Registered Member(s) are currently online.  Details
summer16, reminder, RanMan, jdcd57, BKelly, dbwilco, sharron19, Mister Mike


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer