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Veteran Member

Date Joined Jan 2009
Total Posts : 829
   Posted 4/25/2009 9:00 PM (GMT -6)   
I am :)

I just came from my doc yesterday and I was complaining about being always sleepy. If I do something that requires energy I sometimes have to sleep the whole day after.
I don’t have any vitamin defeasances but I have been having a little more D than usual.

I have recently started volunteering for my local basketball club and it is so fun. But it sucks all my energy. I am on the score board and that is not that hard work but I just sleep and sleep the whole day after. I would really like to keep on doing stuff like this, does it get better or do I need to clear my calendar every time I do something that requires just a little effort.

What do you do about being sleepy, do you just sleep or something else?
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Entocort, Cipralex and Cerazette.
My wonderful dogs :) ~ ~

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 4/25/2009 9:16 PM (GMT -6)   
I just got back from a seven and a half hour shift...I am tired!!!!
I just sit down and relax and/or sleep :)
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

Veteran Member

Date Joined Dec 2008
Total Posts : 947
   Posted 4/26/2009 6:59 AM (GMT -6)   
I just fight it off, I'm not letting this disease take control. I also exercise daily to build my energy up. Seems to work as I'm not nearly as tired as I used to be.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

Regular Member

Date Joined Jun 2006
Total Posts : 289
   Posted 4/26/2009 7:08 AM (GMT -6)   
I feel tired all the time. Compounding that, for some strange reason, I have trouble sleeping. Although I took an Ambien last night, I'm up early having only slept very lightly during the night. I'm starting the day exhausted.
Current Medications:

Pentssa, 1000 mg od
Vitamin D
Red Yeast Rice
Calcium/Magnesium Supplement
Nature's Way Primadophilus Bifidus Probiotic
Remicade infusion; every 8 weeks
Ambien, PRN
Seasilver Whole Food Liquid Nutrition

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 4/26/2009 8:06 AM (GMT -6)   
I think we are all always tired. I work a full time job and hubby and I have a joke saying about my fatigue because "I always come home and take a nap before I go to bed". I am borderline anemic, so thats pretty much everyday for me. (((BIG HUGS))) I feel your pain, although I am in remission and I know you have been struggling lately with your CD.

Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Aug 2008
Total Posts : 305
   Posted 4/26/2009 8:49 AM (GMT -6)   
I also struggle with anemia. Have you have your Hemoglobin counts checked? I am now taking iron 3x a day and forcing myself to get out and do stuff. Like you, I could lay around all day if I let myself and sometimes I do but that just makes me feel depressed so I make myself get up and get out.
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 8 months ago. Now on Remicade, B-12 injections and iron. Feeling much better!
God Bless. Tony

Veteran Member

Date Joined Jan 2009
Total Posts : 829
   Posted 4/26/2009 9:23 AM (GMT -6)   
I have to be more active and hopefully this sleepy period will pass. I am always trying to be active and then I get sick. And have to start all over again.

Not that I don't enjoy sleeping :) I have the most amazing bed hehe..
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Entocort, Cipralex and Cerazette.
My wonderful dogs :) ~ ~

Regular Member

Date Joined Sep 2008
Total Posts : 211
   Posted 4/26/2009 10:16 AM (GMT -6)   
I too am always legs feel like jello most of the time. I would love to take walks, however I worry I won't make it back home. I have been trying to just walk slower to see if that helps.

My iron count goes up and down. The lowest it has been is 9 (if I remember right). I remember my GI didn't really felt I was remembering the wrong count, so he called my family doc and had him fax over the test results.....his comment to me was...."aren't you just tired"....I said well duh...really I did :) I said it as not to offend him, but ya know, lol

35/f   proud single mom of 2

Diagnosed with GERD/Acid Reflex 2002

Diagnosed with IBS 2007

Diagnosed with UC, then Crohn’s 2008

Current medications: Endcort 3mg 2X daily, Pentasa 2 500mg caps 2X daily, Prilosec 20 mg 2X daily (if needed), Probiotics, Calcuim/Mag/Vit.D. Flinstones multi with Iron and Vit. C 500mg daily

Rider Fan
Veteran Member

Date Joined May 2008
Total Posts : 1445
   Posted 4/26/2009 11:18 AM (GMT -6)   
Yes I'm always tired. My hemoglobin goes between 8 and 10, and my iron is 3 (should be at 50 to 200 I think). Still work (more than) full time.
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. 15mg prednisone. Udo's Choice Probiotics (30 billion). Can't tolerate any iron supplements or infusions.

Tried SCD, didn't work, now avoiding gluten and dairy.

Go Saskatchewan Roughriders!

Regular Member

Date Joined Oct 2006
Total Posts : 148
   Posted 4/26/2009 11:24 AM (GMT -6)   
I feel your pain.
I used to be little miss go go go... I never stopped. I worked full time, had a full load at college, made sure my house was spotless, cooked dinner, and I also had time for friends and family.
. Now I'm lucky I'd I muster up the energy to pick up the space around me. Its pathetic.
26 y/o
Diagnosed with UC in 06 then it was changed to CD in 07
Currently on: 36 mg steroids, Colazal, Remicade.
I've been on: Pentasa, asacol, methotrexate, immuran (I had a bad reaction to it), Enemas.. on and on and on..
I've had flare ups in my stomach but most of my symptoms resemble UC.. so my doc is unsure of what I have or if it's both.. I'm irritated by this fact.

Regular Member

Date Joined Apr 2009
Total Posts : 85
   Posted 4/26/2009 11:36 AM (GMT -6)   
CatMan said...
I feel tired all the time. Compounding that, for some strange reason, I have trouble sleeping. Although I took an Ambien last night, I'm up early having only slept very lightly during the night. I'm starting the day exhausted.

I have the same problem!  I have trouble sleeping nearly every single night, which makes it all the more difficult the next day when I'm supposed to be awake!  I have seasonal allergies and Benadryl makes me sleepy, so sometimes I will take one to help me out, but that doesn't always do the trick.  It sucks, especially if I'm having a lot of diarrhea a particular day... that just absolutely drains me.
Currently taking: Humira 40mg/every other week, Zoloft 50 mg/day, vitamins and supplements
Have taken: Cyclosporine, Pentasa/Asacol, Aciphex, Imuran, Sulfasalizine, Cipro & Flagyl, Prednisone, various pain med's, Xanax
Surgeries: Appendectomy 2001, Ileocecotomy 2007

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