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isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 4/26/2009 4:04 PM (GMT -7)   
Should people on Remicade or Humira be worried ?

I am a little bit scared though I do live on an island with only 300.000 people.
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Entocort, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 4/26/2009 4:24 PM (GMT -7)   
Hi Isergodur! Have any cases been identified in Iceland? I hope you can keep it out! I think all of us should be extra careful, especially those of us that are on immune suppressing drugs. The warning for 6MP, Remi, Humira, etc., always identify an increased chance of infection. Just be extra careful and stay safe!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/26/2009 4:39 PM (GMT -7)   
THey are saying that the young & healthy are the most vulnerable to this illness. Take heart, Isergodur; you may be young, but you're not healthy...

That said, people with chronic illnesses are lower on the official list of people who'll be getting urgent help / vaccinations / medicines, should those resources be limited.

Ivy.
Co-Moderator Crohn's Forum.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/26/2009 4:42 PM (GMT -7)   
ps. We discussed the pandemic triage list in this thread.
Co-Moderator Crohn's Forum.


CatMan
Regular Member


Date Joined Jun 2006
Total Posts : 289
   Posted 4/26/2009 4:48 PM (GMT -7)   
Ivy,

I assume that you meant that we would be higher on the list for vaccines if needed?


I've been following the news reports on this subject with a great deal of interest as I too take Remi. I also work in Queens where the NY cases have shown up thus far. I'm concerned about this situation. I think we all need to be careful and keep ourselves informed about how this progresses. I'd suggest we talk with our doctors about this also. I'll be checking in with my doc this week that's for sure.
Current Medications:

Pentssa, 1000 mg od
Vitamin D
Red Yeast Rice
Calcium/Magnesium Supplement
Nature's Way Primadophilus Bifidus Probiotic
Remicade infusion; every 8 weeks
Ambien, PRN
Seasilver Whole Food Liquid Nutrition


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 4/26/2009 4:50 PM (GMT -7)   
I was wondering the same thing since I am on humira...
Kind of disheartening to know we're not as 'important.'
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/26/2009 5:22 PM (GMT -7)   
No, Catman, I meant that we may be lower on the list. Just how low has been debated on the forum - see the thread I referenced.
Co-Moderator Crohn's Forum.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/26/2009 5:59 PM (GMT -7)   
_______________________
sorry I activated the link ivy...

Post Edited By Moderator (MMMNAVY) : 4/28/2009 3:24:23 PM (GMT-6)


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 4/26/2009 6:08 PM (GMT -7)   
link didn't work for me...
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. 15mg prednisone. Udo's Choice Probiotics (30 billion). Can't tolerate any iron supplements or infusions.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/26/2009 6:17 PM (GMT -7)   
That's odd, Rider, it does for me. Try Googling "Caution! - anti rheumatic drug (Sulfasalazine) reduce immunisation" on site: flutrackers.com and see if you can find it that way.

It also mentions research that people with lupus just don't respond as well too the immunisation. I'm hoping sciency people (like you :-)) can read it and tell us if it's legitimate research, and if I've understood it properly.
Co-Moderator Crohn's Forum.


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 4/26/2009 6:18 PM (GMT -7)   
No it is not in Iceland yet, thank god.

I was thinking about wearing a medical mask :)
Don't want to dye from some swine thing..
I love pigs though..
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Entocort, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 4/26/2009 8:32 PM (GMT -7)   
I'm really worried, myself. I have been sick for the past 5 days or so, my sister gave it to me and she works at Walmart so it's possible that she could have came in contact with someone who just came back from Mexico or something. I doubt it's what I have, seems like I'm getting better for the most part except my cough is getting worse and my voice is totally gone.. But nonetheless, will probably be calling my doctor if I'm not getting better by the end of the week.

From what I've seen though, most cases are mild. All the serious ones have been in Mexico, so hopefully the fatalities don't start happening everywhere, although it seems inevitable.

onthecan
Regular Member


Date Joined Mar 2009
Total Posts : 318
   Posted 4/26/2009 8:54 PM (GMT -7)   
isergodur said...
Should people on Remicade or Humira be worried ?

I am a little bit scared though I do live on an island with only 300.000 people.

Hi isergodur did you have your flu shot in the fall or this year yet? When i go to the ER for myself i always wear a mask just in case i catch any thing cause that is the place were germs live people coughing spitting with flu's throwing up and the (D) we don't need that even if i have to visit someone in the hospital i wear a mask,alot of people will stare at you thinking that you have something they can catch when your protecting yourself from them.When i go to the grocery store i use the hand cleaner the stuff you don't need water for and wipe the handle with wet wipes and i have my mask on before going into the store as for shopping that to is hard everyone is touching everything its full of germs so now i only go when i absolutely have to but never take of my mask and use hand cleaner and wash every thing when i get home just in case were are immune system is suppressed and we are prone to infections its not safe so now i do alot of on-line shopping and Sears shopping and send family to the rest for me is ther is a cold or flu going around i'll get it i guess i'm lucky that way.Swine flu i nver heard of here yet but we did here of the one that was suppose to have come from Mexico and ther was 40 deaths already not here we have to patients in PEI right now that they won't come public and say if it is this new flu or not i hope not. Good Luck to be safe ask your doctor about the masks for yourself its better to be safe than sorry right. Your friend Jenn smilewinkgrin
Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 4/26/2009 8:57 PM (GMT -7)   
Hmmm. I don't understand why, but it seems that Imuran and ASA decrease the effectiveness of the flu vaccine. I wonder if it would be specific to the just flu vaccine or other vaccines.

I wonder if the flu vaccine even make a difference since this swine flu is brand new?
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. 15mg prednisone. Udo's Choice Probiotics (30 billion). Can't tolerate any iron supplements or infusions.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


SherryAnn
Regular Member


Date Joined Mar 2009
Total Posts : 21
   Posted 4/26/2009 10:53 PM (GMT -7)   
I read an article that said that pomegranate juice seems to help protect the system from the flu virus. Did anyone else hear that?

bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 4/27/2009 4:18 AM (GMT -7)   
I've heard that pomegranate can help the immune system.
 
I live about 20 mins away from one case of Swine flu, so I'm freaking out a bit!

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10392
   Posted 4/27/2009 5:12 AM (GMT -7)   
I don't know about the 5-ASA's, but Imuran (azathioprine) is an immunosuppressant. The immune system acts to form protective antibodies when you get an immunization; that's how they work. If your immune system is suppressed, it would make less or no antibodies to most any vaccine.

Biologicals (Remi, Humira, etc.) only suppress one type of cell in the immune system, so I'm not sure how they would affect immunizations.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 
.


duplessis3
New Member


Date Joined Apr 2009
Total Posts : 17
   Posted 4/27/2009 9:58 AM (GMT -7)   
this virus is not affected by the flu vaccine - its new, so its not covered. And you can't get it from eating pork.
Finally diagnosised with crohns. Psoriasis, rosecea, sebborhea, contact dermatitis, food allergies.

One husband, two sons, one parakeet, four cats, eight hens.

Proud owner of urban flock of hens!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/28/2009 1:24 AM (GMT -7)   
Just found this online brochure on things that people with chronic illnesses should consider while preparing for a possible pandemic. In short, it is possible that we will not be able to fill our prescriptions during a severe pandemic, and it's important to have contingency plans in place:

http://www.getpandemicready.org/

Click on "chronic medical conditions".
Co-Moderator Crohn's Forum.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/28/2009 6:55 AM (GMT -7)   
I really think you all need not to panic. If you look at the number of cases and then look at the population in general you will see that it really isn't that bad. Everyone needs to just take natural precautions and wash their hands frequently, cover their mouths when they sneeze or cough, and most importantly if you are sick, STAY HOME!!!.

The reasons there are deaths in Mexico, in my opinion, is their poor healthcare. In Mexico if you don't have insurance or money to pay, you will not be treated. And most of the lower income folks in Mexico have what they call Seguro Poplar, and it is horrible. My husband is Mexican and we have family members who have this insurance and it is truly a sad situation for the poor. JMHO
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Eddie K.
Regular Member


Date Joined May 2008
Total Posts : 27
   Posted 4/28/2009 7:33 AM (GMT -7)   
I agree that there's only cause for concern - not alarm - thus far but it will be interesting to see what happens next (WHO raised its pandemic warning level to 4 which is unprecendented in modern times).
 
Being on immunosupressant drugs could be a double sword - on the one hand we may not be able to mount a sufficiently strong initial response but on the other hand having two strong an immune response to flu is exactly what put people at risk on prior pandemics..

catpower
Regular Member


Date Joined Nov 2008
Total Posts : 192
   Posted 4/28/2009 7:39 AM (GMT -7)   
I am concerned, since I can't even handle the common cold, but I agree there is no reason to be alarmed yet. The cases found outside of Mexico City have been minor so far.
Dx with Crohn's Colitis; Meds: Pred and Imuran; female in late 20s.


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 4/28/2009 11:52 AM (GMT -7)   
My own 2cents...the media hype has done something productive...people are at least "aware" of their sneezing, coughing, nose blowing, and other body habits. Many are not even aware of what they do, but when the SARS hype was around, I would have 1/2 or more of my students correct anyone who were not sanitary...you would not believe how big a germ factory high school kids are...it's kinda gross smilewinkgrin

I have been watchful of typhoid Harry, Mary and Larry in public places since all my meds...someone sneezes or coughs, I turn and walk the other way. But lately, I have seen people cover their sneezes, coughs, and take other precautions. Yeah!!!
"The earth laughs in flowers"


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/28/2009 2:39 PM (GMT -7)   
More dangerous to drive your own car within 25 miles of your own home
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 4/28/2009 2:50 PM (GMT -7)   
I would say not to be concerned but for those of us who absolutely have to be out and dealing with people in close quarters every day. And for the fact that so many think they can still go out even if they are sick because they will NEVER catch the flu right? So I guess they're not endangering anyone...
Note the heavy sarcasm.

Really though, seven more cases were found in New York and you know why? Because sick children were sent to school to be around OTHER CHILDREN helping the disease spread. When are people going to learn?..
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

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