Thank-You all for your informative responses. It seems that there is a consensus, (sp.), that severity is dictated by symptoms, and that a genetic predisposition will give the best indication of the course of the disease.
So, if for example, you have developed a perforation and subsequent fistula, does this mean that the liklihood of this becoming a pattern is high, or could it be a result of imflammation that wasn't controlled?
I guess what I'm asking is just what I'm forever worried about, which is, is it possible or likely that my daughter can have this disease under control, or is it likely that the course of the disease for her will be a constant nightmare of out of control complications? I know that no one can predict the course of this disease. But there must be some percentages or odds of whats likely. I really wish I could get some peace of mind with all this.
I really appreciate these responses.
britt: That was really informative Thanks for the link.
catpower: It's always good to hear about others that are having success. I'm hoping for the same.
Hi Tanya, Thanks, I'll try to "enjoy the progress".
From the beginning of this whole ordeal, I've been trying to get a realistic grasp of how things are, and what to expect. I fully realize that no one can predict the course. I would just like to hear about what I could hope for. As for the current dilemma, I'm choosing to believe that this complication is a result of not treating the disease with enough maintenance. I really don't think that Pentasa was doing anything, so that it was sort of like being on no medication at all. I'm not sure if the Imuran is actually working, or will show long term success, but if she had of been on that for that last two years, perhaps none of these complications would have presented themselves, and would therefore not be viewed as such a severe case. Does this sound reasonable?
There does seem to be alot of conflicting views about 5asa treatment for Crohn's. If it does work for some with milder symptoms then that's hard to argue with. We had several GI's attending to my daughter when she was hospitalized. A couple of them suggested that Pentasa was like using a "salt shaker" on the imflammation.
There seems to be a better consensus on 6pm or Imuran. I've done about as much as I can to educate myself about this medication. If it does indeed work for her, then the question of how long will become the next concern. I've read many testements of long term success with Imuran. Some ever 10-12 yrs.
P.S. I can't help wondering about your signature. Was your liver problem Crohn's related? Hopefully a full recovery from that.
Post Edited (Illini) : 4/29/2009 6:45:08 PM (GMT-6)