Crohn's and your sex life

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Regular Member

Date Joined Apr 2009
Total Posts : 85
   Posted 4/28/2009 8:17 AM (GMT -6)   
I realize this is a sensitive subject, but I know I can't be the only one that has had issues with Crohn's affecting their sex life.  I mean, sometimes this disease strikes at the most inopportune times, if you know what I mean.  And during times of a flare, I find my marriage suffering a little bit because I feel so crappy that I am snapping at my family which ultimately creates a problem in the bedroom.  Has anyone had the threat of an accident while intimate with someone?  Geez, this disease is relentless!! mad
Currently taking: Humira 40mg/every other week, Zoloft 50 mg/day, vitamins and supplements
Have taken: Cyclosporine, Pentasa/Asacol, Aciphex, Imuran, Sulfasalizine, Cipro & Flagyl, Prednisone, various pain med's, Xanax
Surgeries: Appendectomy 2001, Ileocecotomy 2007

Regular Member

Date Joined Apr 2009
Total Posts : 174
   Posted 4/28/2009 10:14 AM (GMT -6)   
Thank God I haven't had an accident while intimate and don't really remember any close calls... When I'm not feeling well my stomach and lower abdomen are in discomfort and hurt when touched; so I found myself just turning it down... Although that just leads to other problems because then she gets upset because 'I don't want her' no matter how many times I tell her I don't feel good.

Regular Member

Date Joined Mar 2009
Total Posts : 318
   Posted 4/28/2009 10:39 AM (GMT -6)   
Hi there glad someone brought this up i was to embarrassed to but there are times when i would just rather say no to my husband when i am sick but i don't which ends up causing more problems in and out of the bedroom if you know what i mean?I have never had an accident yet but there is a first time for everything that's for sure but my husband can be understanding some times when it comes to SEX but he knows that I'm not enjoying it so its no fun for him either. Jenn
Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.

Becoming undone
Veteran Member

Date Joined Jul 2007
Total Posts : 927
   Posted 4/28/2009 1:21 PM (GMT -6)   
It can interfere in other ways too...there are times when I want to so bad...but, bless my DH, he is so frightened that he will hurt me...did I mention how much I hate the DD?
"The earth laughs in flowers"

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 4/28/2009 1:33 PM (GMT -6)   
I have never had an accident during, but who feels frisky when they feel like crap??? Luckily, I have a very understanding husband and I try to make it up to him on my good days.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Feb 2009
Total Posts : 529
   Posted 4/28/2009 4:22 PM (GMT -6)   
Worst thing for me is when you decide to actually try and then you really feel like you have to pass gas but you have to sit there and try to hold it in. That can really ruin my mood. LOL. Anyone else have this problem?

Veteran Member

Date Joined Aug 2007
Total Posts : 1202
   Posted 4/28/2009 5:41 PM (GMT -6)   
I am single, and this totally affects my interest in dating. It's terrifying to think about trying to do something like this with someone new at this stage. I keep thinking after I get under control (LOL) I will try to date. But no way right now. In the past, before I got this bad again (years ago) in my last relationship, I would just avoid it at certain times. Sometimes it hurt but mostly not. And the worst even was passing gas... after the fact, thankfully! We just laughed at that. "gotta love Crohn's" I said.

I hope one day to be able to return to dating and have a healthy (emotionally at least) relationship! I miss sharing with someone and the all around intimacy. It gets lonely but on the flip side, it allows me to focus on my daughter. That's special too!
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine  --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08 => STOPPED 10/3/08 not enough response
--currently taking budesonide suppositories, 3mg at night.  Started Cimzia first dose 2/10/09.  Dx Osteoporosis 10/08 started Forteo 1/27/09
--single mom to 11-yr-old girl

Regular Member

Date Joined Feb 2005
Total Posts : 455
   Posted 4/28/2009 8:17 PM (GMT -6)   
just say no!
SCD since 01, remission since 01, occasional random junk food breaks :)
No meds ever.

Regular Member

Date Joined Apr 2009
Total Posts : 174
   Posted 4/28/2009 11:16 PM (GMT -6)   
Wow... Glad to see I'm the only guy to talk about it ; ) Beginning dating is probably the the worst, having the gas build up and not wanting to let it loose... whoo... We know how it smells, and the first time alone with someone the last thing you want is to pass gas...

Veteran Member

Date Joined Jul 2008
Total Posts : 674
   Posted 4/29/2009 12:59 AM (GMT -6)   
Ive totally been there, right in the middle of it and I could feel a bubble building up in my tummy.  Totally ruins the mood, and all I can concentrate on is not letting one loose. Ughs!  I try to make it a point to go to the bathroom right before I know something is about to happen, OR if its starting to get a little hot and heavy, I'll just be like,  "I gotta pee brb!" and my boyfriend is usually all worked up and ready by the time I get back.
Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Imuran 50mg, Vitamin B12 (injection), D, and C tablets. Fish Oil Tablets, Cats Claw, Slippery Elm, and Reishi.

Elite Member

Date Joined Feb 2004
Total Posts : 20558
   Posted 4/29/2009 1:15 AM (GMT -6)   
Valerie3 said...
Worst thing for me is when you decide to actually try and then you really feel like you have to pass gas but you have to sit there and try to hold it in. That can really ruin my mood. LOL. Anyone else have this problem?
Definitely been there, luckily hubby is totally understanding and when I tell him to stop he knows that means a fart is lurking, so we're kinda just frozen until it passes (and I don't mean out my butt) then we continue and I usually let out a little burp and he always say's "thank god it came back out the other end (my mouth) and you can fguess the rest LOL.
There was only one time that we had to actually stop all together cuz I knew it wasn't just a fart lurking, now that really kills the mood.
My bum is broken....there's a big crack down the middle of it! LOL :)

Veteran Member

Date Joined Feb 2009
Total Posts : 529
   Posted 4/29/2009 10:16 AM (GMT -6)   
We could all alternately make our significant others wear gas masks in the bedroom. Then they would never know!! lol. Even worse is during oral sex when their face is right there. I've always mananged to hold it in, but I can just imagine what a mood killer it would be if I didn't.

Regular Member

Date Joined Oct 2007
Total Posts : 39
   Posted 4/29/2009 11:43 AM (GMT -6)   
When I was first diagnosed 4 years ago I was with a gal that was with me before I fell ill. This relationship was good and she understood me and the disease well. After we split, not due to the illness, but Im sure that it didnt help, I have dated but found it very hard for anybody else to understand. I have now came to the point where I figure it is easier not to let anybody in because it just seems exhausting to try to explain the disease and also the sexual issues. I figure if i ever get better ( haha) , then I will try and salvage a life, including a sex life. I just dont have the energy or the desire to put into anybody else right now.

Regular Member

Date Joined Apr 2006
Total Posts : 164
   Posted 4/29/2009 4:08 PM (GMT -6)   
I just got out of a 6 yr relationship. Im terrified of dating! I had a short fling with a guy from work AND....I had an accident. I was sooo embarassed but Reealy, reeealy, reeeeealy glad he had dark sheets and no idea! It wasn't a huge accident but I still wanted to DIE! llol  Never again. I give up.  nono Men
I am 34rs. old mother or 2 wonderful kids. I have crohn's colitis. I am on Imuran, pred., and am starting remicade. My 18 yr. old son has just been diagnosed with crohn's too.

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