AM I MISS DIAGNOSED

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Cronicpain90
New Member


Date Joined Mar 2009
Total Posts : 11
   Posted 4/29/2009 12:05 PM (GMT -7)   
I have been to three differend doc and 3 different answers how cool!! i have all symptoms of crohns i have had this for along time i thought i had foods disease in and out of hospital real bad cramps pain diahrea you know the story!! i have had biopsis report crohns now a new doc says i dont have it its some kind a bacteria he does not sound smart i have had a clean scope has anyone had a scope that looked like a normal intestine i dont feel right still loosing weight who is your doc please help please

Cronicpain90
New Member


Date Joined Mar 2009
Total Posts : 11
   Posted 4/29/2009 12:12 PM (GMT -7)   
someone anything

Cronicpain90
New Member


Date Joined Mar 2009
Total Posts : 11
   Posted 4/29/2009 12:52 PM (GMT -7)   
wow okay no one knows what has happend to them before amazing

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 4/29/2009 1:08 PM (GMT -7)   
Cronicpain - I'm sorry that no one answered you as quickly as you had hoped. Our members are located worldwide and are in many different time zones. Therefore, they visit these forums at various times.

If one of your physicians diagnosed you with Crohn's based on biopsies, why did you leave him/her? Did that doctor begin treating you for Crohn's?

It took over 25 years to get a diagnosis. In the beginning I was told I had spastic colon, nervous bowels, or that I was just stressed. I was in a medical care system where I never saw the same doctor which added to the lack of continuity. Others here have also struggled getting a diagnosis.

Have you tried locating a gastroenterologist in your community that specializes in inflammatory bowel diseases [IBD]? If you are in the US, the CCFA has a physician member directory. These members are mostly specialists in IBD. Their inclusion in the directory does not warrant that they will have great bedside manners or anything, but it is a place to start.


Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


Curly9878
Regular Member


Date Joined Apr 2007
Total Posts : 165
   Posted 4/29/2009 6:17 PM (GMT -7)   
Chronic... I get mad when people do not respond to my posts either... grrrr...

Eventually they will respond... We are a good group of Crohnies... Hang in there
28 Yrs
Michigan
Newly diagnosed with Crohns


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 4/29/2009 6:30 PM (GMT -7)   
I would say that whatever the biopsy results say are the correct diagnosis. This does not mean that you don't have other conditions. You could have small bacterial overgrowth or something on top of Crohn's. Personally, once I got the right tests, I had basically a textbook case, so it was very easy to identify that I had Crohn's, but most people have a lot more trouble than I did with a diagnosis - I just got lucky. The problem with Crohn's is that even if you have a clean scope like you did, it doesn't mean that you don't have Crohn's, it just means that there is no ACTIVE inflammation. You can also have Crohn's in your small intestine somewhere where the scope would not see. Have you had a pill cam or done an upper GI series? They may help. I would consider looking for a doctor who specializes in IBD though, a lot of doctors are confusing because they don't understand the disease. Good luck!

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 4/29/2009 6:32 PM (GMT -7)   
A colonoscopy isn't enough to check for CD, you'd need a small bowel follow through to check the small intestines for CD.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/30/2009 4:46 AM (GMT -7)   
Or a pill camera.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 02, 2016 11:58 PM (GMT -7)
There are a total of 2,731,977 posts in 300,977 threads.
View Active Threads


Who's Online
This forum has 151141 registered members. Please welcome our newest member, LydiaLoftis.
199 Guest(s), 4 Registered Member(s) are currently online.  Details
Girlie, gitane44, Randy Eichner, celebrate life


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer