Wolfie, one of the reasons I agreed to surgery was in the hope of not having to go on these drugs, at least not for maintenance. If I do not have any more symptoms than I do now, I am hoping for something like Asacol. I know I have a lot to learn about this disease but the possible side effects of the drugs seem worse than anything I have experienced so far.
I have had no side effects from the methotrexate and would agree to that for awhile longer but then I would want to reassess how things are. I see you are on Asacol. How is that for you and does your doctor not consider that a manitenance drug?
And how are you feeling? I watch for your posts because our situation is somwhat similar and I am getting very close to my surgery date.
Wolfie, my surgery is May 11th, get to to the colyte prep on Mother's Day.
I have read that Asacol might not be that effective but right now my only stricture and inflammation is in the colon so maybe it would work for me? Plus my crohn's has been called 'nontypical', 'the mildest case of Crohn's I've seen', etc. I still don't like to say it's mild if I am going to undergo surgery but I feel like it has been around for along time without my knowing it before it manifested into a stricture.
Previously my GI suggested Imuran if I did not opt for surgery. Then when I was leaning toward surgery he wanted to try Methotrexate by injection (because I think it work's quicker and in my case that's want we wanted to see). At the time I know I had researched the drugs and was happier he suggested that than Imuran. (Would research again if faced with that decision). But now that methotrexate does not give me any side effects I will be willing to keep on that for awhile. I took 25mg/week for four months then it was reduced to 15mg/week.
I didn't know until last year that my cousin who is a doctor has Crohn's also. He had a resection years ago and now takes MTX but mainly for his arthritis. There is something new that it is just injected under the skin, not into the muscle? He also said that he would be very leery about taking Remicade himself. Another cousin's husband has Crohn's and the wife blames Remicade for her husband developing cancer and had to have his ear removed. She will admit that there was a sore there before and thinks the Remicade had something to do with the advancement.
LDN does sound interesting but haven't researched it much, don't know if it is available in USA and Canada? Keep in touch and let us know how it goes.