my experience with the camera pill

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CrazyHarry
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Date Joined Mar 2006
Total Posts : 1034
   Posted 4/29/2009 10:57 PM (GMT -6)   
i had the camera pill exam today for my small intestines. no big deal really. it was a big pill, the camera that is, but i've swallowed bigger ones.

the prep was half the colonoscopy prep. i always forget how bad the golytely stuff is. i have never finished it for the colonoscopy so of course i didnt take the recommended dose for this exam, which as i said was half. but considering i was on a 26 hour fast before i got the camera pill, i'd like to think i was fairly cleaned out. it was nice to eat food again after a 35 hour water fast.

so they hook you up to a data recorder that looks like a bomb. it is strapped to you with a belt and suspenders and you have 7 cables running to electrodes (think EKG here) that are attached to different parts on your body. this is so the camera can send its pictures to the data recorder. in all i had to wear the thing for the 8 hours. it was kinda odd wearing it at work. i felt like i had a bomb strapped to my chest (that was the running joke). so of course people asked what was up so i explained of course. no biggie. i was bummed that i was fasting cos i thought to myself how funny it would be to go somewhere and buy something and when i get the bill to open my coat and show them the device, which of course they'd have no idea what it was, and say something to the extent of "i do think there will be a charge for this". yes, i have a twisted sense of humor. of course i wouldnt do it - people would over react and flip out. but nevertheless i do think it would be funny.

so my doc should get back to me next week with the results of the procedure. i am hoping (and expecting) them to show no signs of disease or bleeding, especially since the upper GI exam a few weeks ago showed those results. so this means i can scratch crohn's disease off the list of potential reasons for why my iron levels are so low. i think it is an absorption issue, not a bleeding issue.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/30/2009 1:46 AM (GMT -6)   
The gadget sounds crazy.
45 years Male Attorney
Diagnosed UC October 1989
 
Had two stage J Pouch Surgery Nov 2005; Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
 
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle: Albert Einstein
 
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


melissam24
Regular Member


Date Joined Apr 2009
Total Posts : 27
   Posted 4/30/2009 2:07 AM (GMT -6)   
I am glad you didn't have problems. I did all the prep and then couldn't swallow the pill. The nurse was a biotch about it and kept hurrying me along. I told her I had already talked to her about it being too big for me to swallow without some sort of food, i.e. jello and she just didn't care. Now they want to put it down through an EGD with sedation and I don't even want to do it. I am scared it will get stuck in my ileum where I have narrowing and have heard a lot of stories too.

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1883
   Posted 5/1/2009 9:32 AM (GMT -6)   
Thanks for the update, Harry. The pill camera is great for patients wiithout narrowing. Especially since you are med-free, am interested in finding out whether the pill cam shows any inflammation.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 5/1/2009 1:25 PM (GMT -6)   
Hi Harry looking forward to hearing your results and glad things went good for you.. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail
"Blessed are those that can give without remembering and recieve without forgetting ~Aurthor Unknown~


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 5/3/2009 12:17 PM (GMT -6)   
hopefully i get the results this week. i'll let you all know when i know.

the whole exam was rather uneventful which was nice. it did take a couple of days though for my bowels to reset but now they are good.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


omigrandma
Regular Member


Date Joined Dec 2008
Total Posts : 57
   Posted 5/3/2009 3:55 PM (GMT -6)   
Hi Harry, I'm having a colonoscopy, an endoscopy and the camera pill all done this Friday. My GI figured it was the easiest way to go since it meant only one prep. However, I thought that once you had taken the pill, you were able to eat after it. Are you saying that you can't eat all the entire time that you have the wires on? That's an awfully long time to go without anything to eat. Help!! Darilyn

CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 5/3/2009 7:08 PM (GMT -6)   
they told me i could have a light lunch a few hours after i swallowed the pill. imho, after a solid day of fasting, a light lunch is a tease and a torture. i'd rather suck it up and continue the fast until dinner as my body is already getting used to operating on water alone. from my experience, once i begin to break a fast, i become super hungry. i'd rather not have to exert that kind of will power between lunch and dinner. i'd rather go all out come dinner. but that is just me. talk to your doc. he'll tell you what to do.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/3/2009 7:23 PM (GMT -6)   
Harry, what do you do with the pill when you've finished with it? Are you supposed to flush it away, or do you need to rescue it so it can (yuck) be used on someone else, or what?
Co-Moderator Crohn's Forum.


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 5/3/2009 7:24 PM (GMT -6)   
it is disposable. once you swallow it, forget about it, unless the unthinkable happens and it gets stuck. that would be a bummer.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/3/2009 7:28 PM (GMT -6)   
Yes, I think of that as a nightmare scenario. I've never had the opportunity to use one... but I think I'd be reluctant, given that I have strictures...

How big is the pill? I think I've seen one on display and can't imgine swallowing it.

I.
Co-Moderator Crohn's Forum.


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 5/3/2009 7:36 PM (GMT -6)   
my GI had me have the upper GI w/ small bowel follow through first before the camera pill to make sure i didnt have any strictures. i had the ileum removed back in 2005, so that was really to me the only questionable area. luckily for me it was fine and there were no strictures anywhere.

the pill was about the size of a colazal pill, or a large multivitamin. i've swallowed bigger pills before, but it was on the large side. i've found that with the larger the pill, the more water i need. for me, being on pills for over a decade, any pill is easy to swallow with enough water. shoot, i can do several at one time without water, although i do not recommend it to anyone due to the possibility of chocking.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/3/2009 7:41 PM (GMT -6)   
Aaah. Maybe the one I saw was a larger version, just made for display. It was probably 2.5 thumb widths across, and 5 or 6 cm long :-O. Please tell me you didn't swallow that!
Co-Moderator Crohn's Forum.


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 5/3/2009 7:54 PM (GMT -6)   
no way was it anywhere near that big. it was smaller than my thumb. it was intimidating at first as there was a very large attachment the nurse handed it to me by. i believe that was just for handling the camera so no one but me would be actually handling the pill i would be swallowing. i had to detach that part before i swallowed it. that was WAY bigger than the actual pill. perhaps you saw the pill with that attachment? it freaked me out at first too - "just how the heck am i supposed to swallow THAT!"
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/3/2009 8:14 PM (GMT -6)   
:-O Let's hope so... :-)
Co-Moderator Crohn's Forum.


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 5/5/2009 10:22 PM (GMT -6)   
i got the results of my capsule endoscopy from last week. this was the camera pill thing to look at my small intestines. i talked to the nurse practitioner today. she said the results showed little ulcers indicative of crohn's all over the place. she couldnt comment on the severity of them however - i'd need the doctor for that. the ulceration is most likely causing malabsorption of nutrients, including iron. so my iron deficiency may infact be an absorption issue and not a bleeding thing. but i cannot believe that ulceration, no matter how invasive, can be solely causing my anemia. it may be contributing, but not the cause. for example, how can i only not be absorbing iron? - what about the other vitamins and minerals and nutrients? you would think i'd be exhibiting or experiencing deficiency symptoms of those too, but i am not.

i dont want to use meds cos i've never had good success with them. so my plan is to get a copy of this report, complete with color photos, and go to my naturopath. unfortunately the only way to tell if what he puts me on is working is to repeat the procedure. it is new so it is expensive. who knows if my insurance would cover it say 3 or 6 months down the line, especially from treating my symptoms by naturopathic methods. but i'll deal with that later. right now i need to get this better. so i'll be ratcheting my diet back to phase 1 makers for a while. once i get the report from my GI doctor i can sit down with my naturopath and make a plan. i'll still be doing my liver detox though.

but overall i still feel fantastic. no symptoms or abdominal pain. even my energy levels are good. this is a serious bummer. but at least i feel good, right? i guess i should feel glad it was caught now while i'm not symptomatic instead of feeling miserable. but i'm still bummed from these results, especially since the upper GI barium exam at the end of march had such favorable results and my colonoscopy from june 2008 was good too. i am hoping it is mild ulceration cos with the blood work i had done a month ago, the doc said my cells didnt not show signs of inflammation. and previous blood work in the past always had a sed rate that did not indicate inflammation. perhaps once i talk to my GI doc he can alleviate some of my fear and anxiety.

i'll keep you posted.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1434
   Posted 5/5/2009 10:29 PM (GMT -6)   
You can be become anemic w/o obvious bleeding. A slow bleed will not show up in stool as it takes about 100ml of blood to turn stool black. Plus, depending where the ulcerations are it could also be an absorption thing. However, iron is absorbed in the jujenum, so if there is no problem there that's less likely.

I think that is the simplest explanation for what is going on here.
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. 12.5mg prednisone. Udo's Choice Probiotics (30 billion). Can't tolerate any iron supplements or infusions.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


tmlindsey
Regular Member


Date Joined Sep 2005
Total Posts : 78
   Posted 5/6/2009 10:18 AM (GMT -6)   
Crazy Harry -
 
  I to am experiencing anemia.  However, my hemocult (stool sample) came back positive for blood.  Now anyone please feel free to correct me if I'm wrong because I'm no MD.  It is my understanding from past procedures that the colonoscopy usually just shows the colon and not the small intestine.  So a normal colonoscopy says the colon is normal not the small intestine.  A small bowel follow through just shows narrowing or strictures not the actual ulcerations.  So without the actual camera pill, the dr can't see the actual inside of the small intestine to check for ulcerations since usually the colonoscopy doesn't go up far enough.  Therefore, you can have a normal colonoscopy and upper lower GI and ulcerations still not be seen.  Also, anemia doesn't cause ulcerations.  Ulcerations can cause anemia.  Anemia is the loss of iron, which can be a result of an absorption problem or an ulceration leaking blood through your stool.  Usually with anemia, the dr will order stool specimans times 3.  Mine just came back positive for blood in stool.  I am on an iron pill twice a day.  He is ordering the camera pill.  If the iron pill doesn't raise my iron, then he wants to give iron injection.  Waiting on the test to see what it shows.  Then we will go from there.  I hope I'm accurate on my explaination and I hope it helps.

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1434
   Posted 5/6/2009 11:44 AM (GMT -6)   
Pretty much. A SBFT can show inflammation as well as narrowing.


32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. 12.5mg prednisone. Udo's Choice Probiotics (30 billion). Can't tolerate any iron supplements or infusions.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


tmlindsey
Regular Member


Date Joined Sep 2005
Total Posts : 78
   Posted 5/6/2009 12:24 PM (GMT -6)   
Ok Rider Fan where the heck is the jujenum exactly lcoated in the digestive tract?

Dave D
Regular Member


Date Joined Aug 2005
Total Posts : 404
   Posted 5/6/2009 1:14 PM (GMT -6)   

Hey Crazy,

Here is what one looks like after you carry it around for 15 months. The pill is on my right. The things on my left are surgical clips. I'd send you a picture of what my gut looked like after the emergency surgery to get it out but I'm afraid that would make everybody sick.

If you have had any history of strictures or obstructions, think again before taking the big pill.

http://tinypic.com/view.php?pic=opxls6&s=5

Dave D

Oh, what the hell. Enjoy!

http://tinypic.com/view.php?pic=skue03&s=5



Grandpa Dave is 70.
IBD since 1977
Perforation and resection 1993
Diagnosed as Ulcerative Colitis 1994
Received J-Pouch 1997
Diagnosed as Chron's 2004
Redo, resection, and remove camera capsule 2005
Unsucessfully tried LDN 2007
Contracted Scleritis of the Eye 2008
Four Grandkids
Older than dirt

Post Edited (Dave D) : 5/6/2009 12:26:56 PM (GMT-6)


omigrandma
Regular Member


Date Joined Dec 2008
Total Posts : 57
   Posted 5/9/2009 5:47 AM (GMT -6)   
Ho Harry, yesterday I had a colonoscopy, an endoscopy and the to top it all off I ran over , not literally of course, and had the cam pill test. The test wasn't too bad after everything else but my question to you is do you recall how long before you expelled the camera? I know that we are all different and of course it depends on what we eat etc., but I am not sure because all the nurse said was if you get any different kind of pain go to the emergency room and tell them that you had the cam pill test. Also I have had Crohn's and Colitis for 30 years so my colon is shot as well as my large intestines so that might play a role in the time frame. I am just a bit nervous about this. Any ideas? Thanks for the help.
Darilyn

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 5/9/2009 6:46 AM (GMT -6)   

I do NOT understand these doctors being so d*mn IRRESPONSIBLE with the use of the camera pill in those there is strong reason to suspect a stricture or narrowing and for those who have had a previous resection!!!!

There is a dissolvable pill the size of the camera pill that can be administered a few days to a week before the camera pill. You have to fast but don't have to do a colonoscopy prep for this dissolvable pill. You swallow it one day and have an abdominal xray 26 hours later. If it hasn't passed out of the small intestine by then it will show on the xray and you are not a candidate for the camera pill. If it does get stuck it dissolves w/in 3 days and no harm done.

I was aware of the camera pill before my gastro. I wanted to do one badly but having had a resection I figured I wasn't the ideal candidate for one. Eventually my gastro came on board w/the idea but I refused due to my previous resection. My gastro was aware of the dissolvable pill before I was. But at the time there was only place in our state doing the PCE (pill camera endoscopy). Eventually our local hospital started doing the PCE and my gastro wanted me to have one but no one yet had used the dissolvable pill in our area and I told her as soon as she got the dissolvable pill for me - and I passed it - I'd do the PCE. It took some time but eventually she got the dissolvable pill for me. I was really excited. And then horribly disappointed as the darn dissolvable pill didn't pass. It was still there 26 hours later when we did the xray. I was so disappointed I almost cried. We've talked about the double balloon endoscopy but that's gone no where yet either. Only one place doing them in our state. And I don't know that I would trust anyone else except my gastro to do even a regular colonoscopy so ....


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 5/9/2009 9:34 AM (GMT -6)   
update: my GI was nice enough to call me and go over the results with me over the phone. that was cool. he wasnt overly concerned with what he saw as i was feeling well, the pretest with the barium came back negative, and the colonoscopy i had last june was good too. he didnt want to put me on any meds for those reasons and also that i didnt respond to any in the past. the only ones left for me are the new powerful biologics (humira, cimzia, etc) and i'd rather save those for a last resort as they have gnarly side effects. my doc agreed with me on that and was on the same page of thinking, so that too was cool. so it was comforting to know he wasnt jumping up and down concerned that we need to fix this right away and treat it. but i still plan on getting the report and seeing my naturopath to see what he can do with herbs and supplements cos i'd rather treat my crohn's that way. i'd like to nip this in the bud where it is before it blows up on me.



omigrandma -

i dont know when i expelled the camera pill. i hope i have by now.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


omigrandma
Regular Member


Date Joined Dec 2008
Total Posts : 57
   Posted 5/9/2009 12:36 PM (GMT -6)   
Thanks Guys, I guess I will be all right as long as I don't develop any new or different pain. I was thinking that it would pass within 24 hours but maybe that isn't the case. I have such yucky intestines so maybe it will take its sweet time to work its way through. I feel the same with no different pains, so I will know relax and enjoy Mother's Day with my children and grandson and my "rock" of a husband. This website is such a blessing for me and has helped me so much so HAPPY MOTHER'S DAY to one and all and I hope that a year from now on our next Mother's Day we shall all be feeling better.

Thanks everyone,
Darilyn
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