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Bergie
Regular Member


Date Joined Apr 2005
Total Posts : 25
   Posted 5/1/2009 6:32 AM (GMT -7)   
It's been a few years since I've been on here, because, knock on wood, things have been going half-way decent. Apparently there is a reason for the decency in my health.

Long story short: I was diagnosed about five years ago after a colonoscopy and small bowel follow through. Nothing too exciting for the past five years after being on Asacol, Azathioprine and an occasional bought of prednisone.

I went to the doctor yesterday for a small-bowel follow-through (had a colonoscopy a couple of weeks ago). The good news is my doctor is thinking I don't have any additional areas of active Crohn's. The bad news is the spot in my small intestine that was the concern five years ago looks the same, now just being scar tissue, and it is so constricted that stuff is having a hard time passing through. They would like to take that out or I can opt out of surgery and go on a low-residue, low fiber diet.

I'm scared for surgery. It's not crucial that I have the surgery immediately, but it looks like surgery is the most viable option at this time.

My question is, I've heard that when the diseased area is cut out, there is a chance that the Crohn's could attack again, and maybe even worse. What are the chances that this will happen?

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/1/2009 6:55 AM (GMT -7)   
I have had two resections and luckily for me it made life much better. The first one was an emergency surgery after a long remission that was med free. I had to have the second one about 3 years later because of a stricture at the reconnection site. But no more active disease was found on that one and hasn't been found since.

Most go on to do well and go into remission. The Crohns can come back, but the if you get back on the Imuran afterwards your chances are greatly reduced. Hope that helps.

Hugs
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Bergie
Regular Member


Date Joined Apr 2005
Total Posts : 25
   Posted 5/1/2009 7:01 AM (GMT -7)   
What was the surgery like? Was it a long recovery period. I have a 8 year old and a 2-1/2 year old and when I heard the news yesterday, the first thing that popped into my head was not being able to lift my baby! I understand it's probably for the best in the long run, but I figure if I can prepare myself as much as possible, that always helps.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/1/2009 7:07 AM (GMT -7)   
Well I had to have the full open surgery both times, and got an infection in my incision, so my recoveries were much longer than the norm. Most folks these days are able to have it done via laproscope and there recoveries are much quicker. But I think the normal recovery time is about six weeks. You won't be able to lift your baby for that time, but someone can pick them up and set them on your lap, and you can snuggle that way:) And you could end up going right back into remission and enjoying many more healthy years with your kids. Good luck!
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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