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ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/1/2009 6:45 PM (GMT -7)   
Did anyone else see this week's rerun of All Saints where they diagnosed a girl (who later died) with Crohn's?

I wasn't sure what to think of it, so wouldn't mind having someone to share thoughts with.

Ivy.
Co-Moderator Crohn's Forum.


andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 5/2/2009 3:06 AM (GMT -7)   

Hi Ivy,

I did'nt see All Saints but a friend of mine did and he said she did'nt die from crohns she died from blood clots to her legs that travelled to her heart. Wish I had caught that episode would have been interesting. How have you been anyway Ivy? I'm still feeling pretty good and so happy to have had this surgery but for some reason I still have a cry every so often, especially when I'm changing this bag. Then I had a friend call me the other day he had an ileostomy the same week I did we actually met in hospital and have stayed in touch, he is getting a reversal done soon and he was thrilled but he said he was sad for me since its not possible for me and a part of me envy's him as well but at the same time I am extremely happy for him as well. Anyway let me know how your going and if you find out anymore about that All Saints episode. Take care :-)


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/2/2009 4:37 PM (GMT -7)   
Hi Andorable,

You're right; this patient died of blood clots, but not before:
* a very doom-and-gloom description of Crohn's from Charlotte, and
* a subplot that seemed to suggest that the girl's constant drinking of coffee was more than partially responsible for her illness. I wonder about the AS scriptwriters, as the last time I saw a Crohn's patient on the show, he was on the verge of a colostomy and was constantly being told by the doctors that the illness was his fault, as he was a lawyer and the stress had (they said) made him sick. For some reason, we always seem to be held responsible for our illness - not sure if they would do that for cancer or other serious diseases.

There were some good things, though. Even if the doom and gloom was a bit excessive, I thought it was a nice change to see this illness being taken seriously, and that it might be helpful if our unsympathetic friends & relatives saw that episode. They also had a very graphic scene where the girl was doubled over with pain and needing a nurse's help to get to the toilet in time, as the pain was too debilitating for her to move by herself - again, I thought it might provide outsiders with a good insight into our lives.

btw, I want Charlotte for a doctor!
"This patient needs a colonoscopy."
"But what about the bowel prep?"
"When she's just had three weeks of d? I don't think her bowel needs any more aggravation, do you? We'll do the scope without the prep".

Ha.

Hang in there with your bag. I don't blame you for getting weepy while changing it... but I have heard that it gets easier with time. You're being amazingly courageous - go, Andorable!

Ivy.
Co-Moderator Crohn's Forum.

Post Edited (ivy6) : 5/2/2009 6:01:09 PM (GMT-6)


andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 5/2/2009 8:59 PM (GMT -7)   
Hey Ivy,
Thanks for your wonderful support, and kind words. I agree they always seem to blame the crohns sufferer on tv shows, it just demonstrates the lack of education about this disease that is out there and when they decide to do a show like that they need to research it much better and walk a mile in our shoes. Shame I missed the episode. Hope u are doing well, take care

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/2/2009 9:01 PM (GMT -7)   
I wouldn't worry too much, Andorable, I'm sure it'll be repeated one day (or maybe you could find it in a video shop?)
Co-Moderator Crohn's Forum.


eva124
Regular Member


Date Joined Sep 2007
Total Posts : 246
   Posted 5/4/2009 1:32 AM (GMT -7)   
think there was a bit on sapranos bout crohns/ibs adriana was sick it was very vague adn said it was the stress was making it bad that was bout it had her running to the toilet a few times too but i got xcited bout it thou lol wonder if i all saints is on in nz sumtime
dx 17 aug 2007
21 yrs old
13 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed 
150mg azamun
3000mg pentasa


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/4/2009 1:35 AM (GMT -7)   
Eva, this one was an old repeat... from earlier this decade, I think. One of our tv stations replays an old episode most afternoons, and I watch it during my rest time. It's worth keeping an eye on AS - they do have a Crohn's case from time to time, and their treatment can be upsetting and / or thought-provoking.
Co-Moderator Crohn's Forum.


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 5/4/2009 8:01 PM (GMT -7)   

Oh I wish I’d seen it! Though sometimes the doom and gloom does get to me; I somehow have existed in this delusional state for the last 3 years, believing my crohn’s is ‘no that bad’ and that I ‘wont end up like everybody else’ – only to discover that I am JUST as sick as everyone else, only younger – with this stupid abscess it was a real wake up call – this is not going to go away on its own. DENIAL is a bad thing….

 

I know I have not had access to the best medical attention though, and that is about to change with my new doctors, so I am optimistic-  I don’t want this thing ruining my life or tainting it any more than it already has!

 

Here I am rambling!! Wish I’d seen the all saints – though something about that show kind of embarrasses me, in the same way that home and away does…. He he

 

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