Hey there,I was also diagnosed with Crohn's at a young age (15) and nothing sucks more than being told you have an incurable illness, just because you're going to have it for life doesn't mean you're going to be sick all your life. It may take a while for your doctors and you to figure out what meds are needed to get you better but try not to give up hope. It took my doctors a year to get me into remission after first being diagnosed during which time I was in a lot of pain and was very ill but they got me there eventually and I have had periods of remission lasting years during which time I was able to do absolutely everything all my friends and peers could do.There is every chance that could be you too! And there are so many more options available now compared to when I was diagnosed so you have that on your side too. Remember the majority of people who post on the internet are those that are ill, those that are in remission don't tend to post as much as they are off living their lives so try not to get too freaked out by some peoples situations here.It is important that you come to terms with it though, devastating as it may be as emotional stress will only make symptoms worse, I've had counselling in the past when I was sick to help me deal with it and to reduce the stress on my mind and body which I really believe helped, even when I'm doing really good if I get upset over anything I get a stomach ache.I hope you feel better soon and you found the best place to come to here, these people are fab and have helped me out so many times! Take care
I have had Crohn's for several years now, and even those with severe disease have good times as well as bad times. Getting proper treatment is key, and since you (finally) have a diagnosis, there are many effective treatments, and research is being conducted all the time. If you can, it would be good to go to a gastroenterologist who specializes in Crohn's. That person can answer questions about your particular case, so you can get individual attention. We "crohnies" also know alot and can share our coping skills and feelings. The most important thing I want to say is that you are not alone in this at all--there are medical experts and tons of friends ,here on the forum and in "live" support groups, that can walk with you.
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Congratulations on hunting down this site!
Pentasa is indeed pretty weak. Entocort is pretty good, but only if you have Crohn's only in one area -- the terminal ileum. The following links take you to more information about the different traditional treatment options open to you:
If you want to try the nontraditional route, you could try the SCD diet. Info about it can be found on www.breakingtheviciouscycle.info and in the book, "Breaking the Vicious Cycle." Also, you could look into LDN.