Swollen Lump on Butt with Crohn's

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TookieWilliams
Regular Member


Date Joined May 2009
Total Posts : 37
   Posted 5/3/2009 6:52 PM (GMT -7)   
Hi, I am 21 years old and I was diagosed with Crohn's in 2006.  I have a lump about the size of a clenched fist on my right buttock, it is accompanied by a vicoius set of hemmoroids.  Doctors cant control my crohns or the swollen lump,  I have been on everything from asacol, to Humira nothing works.  Does anybody know what is happening to me please help I am in so much pain.

chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 5/3/2009 7:02 PM (GMT -7)   
Hi and welcome to HW. So sorry to hear that the crohns is so bad.

My guess is it's an abscess. You need to see a colorectal surgern immediately! Do not delay. If you let an abscess burst inside of you, you could get septic. Are you sure they are roids and not skin tags?

CrohnnieMan
Regular Member


Date Joined Aug 2008
Total Posts : 190
   Posted 5/3/2009 7:09 PM (GMT -7)   
Yea, what chroniemom said. I might add trying to locate a new doctor as well.

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 5/3/2009 7:11 PM (GMT -7)   
Hi Tookie,

What have your doctors done to investigate the lump? It certainly could be a nasty abscess, and ChronieMomx2 is absolutely right about getting it taken care of ASAP! What type of doctors have you seen??
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


TookieWilliams
Regular Member


Date Joined May 2009
Total Posts : 37
   Posted 5/3/2009 7:20 PM (GMT -7)   
One doctor took an ultrasound of the lump, and said he did not know what to do.  I have seen my family doctor, a GI doctor in my home town, and a GI doctor from another town, none of them have a clue what to do


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 5/3/2009 7:35 PM (GMT -7)   
Wow, I am so sorry that you have so many doctors who don't seem to know much about IBD in your area! Have you ever considered trying to go to a Mayo Clinic or something like that? It would be expensive, but it sounds like whatever it is could be extremely dangerous to your health, and you really shouldn't risk it!

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 5/3/2009 9:51 PM (GMT -7)   
I had a small painful lump on my butt once. It ended up turning into a fistula. Blech!

What part of the country are you in? Someone here might know a good GI in your area. If there isn't one, I'm with Valerie about the Mayo Clinic. I've known a couple very sick people that went through a ton of doctors with no answers, but once they went to the Mayo Clinic, were able to finally find help.
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 5/3/2009 10:27 PM (GMT -7)   
Hey Tookie, does it look like either of the conditions in this link....
 
 
The first set of pics being hemheroides and the set of pics below being perianal crohn's skin tags (aka; elephant ears).
 
:)
My bum is broken....there's a big crack down the middle of it! LOL :)


TookieWilliams
Regular Member


Date Joined May 2009
Total Posts : 37
   Posted 5/4/2009 1:18 AM (GMT -7)   
I think they are hemroids and I think I have internal ones as well. The most concerning thing for me is this lump it is like the bottom of my life buttock has swollen up like a water balloon and it hangs down. Doctors are speechless when they see it. I also dont know what the next step is, I have tried Humira and all the drugs in between, has anyone heard of mycrobaterium, or paratuberculosis?

chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 5/4/2009 10:14 AM (GMT -7)   
The next step is to see a colorectal surgeon! Do not delay! Has your gi ordered a ct scan?

snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 5/4/2009 2:06 PM (GMT -7)   
yeah Tookie, Mycobacterium avium Paratuberculosis aka MAP is the bug that is front runner in the suspect list for causing Crohn's Disease. If you want to know more, go to YouTube and type the name into the search button. Personally I feel sure it is the culprit.
nono But all that is irrelevant to you right now, because there is no known, let alone proven, therapy against MAP that would provide an instant miracle cure for your problems. All you can reasonably hope for meantime is symptomatic relief.
What you need to be doing right now is what the other folks here have said; devote all your attention and efforts to finding a doctor with experience of this sort of problem. A colorectal surgeon specialising in Crohn's may well be your best bet, as many GIs would not see a rare occurrence like this often, but if it ends in surgery (as seems likely, especially if it is a fistula) then the CR surgeons will be the ones who deal with all such cases like this.
Don't take no for an answer, get all the different scans you can, and get referred to someone else every time a doctor says "I don't know". You can't blame them for not knowing, thank God (and them) for their honesty when they don't pretend they do know - but somewhere there will be a GI who has seen this, and you need to hurry things along as it could take long enough to find him/her !

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 5/4/2009 2:13 PM (GMT -7)   
Amen to everthing that Snohare said!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.

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