Surgery to fix a Fistula

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MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 5/4/2009 11:19 AM (GMT -7)   
Blah blah blah, Ive told this story a million times haha, but I have this fistula above my bellybutton result of a resection, and then 3 abscess's.  I tried Remi but had an alergic reaction, so I cant take that anymore.  I made an appointment with my GI surgeon for the 14th to ask about surgery to fix it.  Just wondering if anyone else has had surgery to fix a fistula?  Or if it can even be done.  I dont see how this will heal on its own, and Ive been told by my surgeon when I first got it that the chances of it healing on its own are very very small.  At this point in my life, I am trying to get married and have children; this is a huge set back for either of those things to happen.  I cant see being pregnant with a fistula coming through my stomach, that just sounds dangerous, and probably is.  Or getting married and being scared that it will leak through my dress, UGH. But anyways, any stories about other surgeries to repair a fistula? Is it as complex as a resection surgery, with time to heal and hospital stay and all that?
Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Imuran 50mg, Vitamin B12 (injection), D, and C tablets. Fish Oil Tablets, Cats Claw, Slippery Elm, and Reishi.
 

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 5/4/2009 1:50 PM (GMT -7)   

Hi Mag, i had an operation in jan for two strictures and a fistula that decided to raise its ugly head through my old scar in my stomach from a resection 15 yrs ago my surgeon who is the absolute cream (Top Doc) done the best he could as its quite a tricky op (his words) a stump was left but still leaks a little and its not food  just a yellowy liquid less than a teaspoon and only needs a small dressing which is nothing now compared to what it was before it use to fill up a stoma bag daily!!!! iam now on Remicade to help close it off which i see you can't take but im sure ther must be something else you could try im really glad that i got it operated on its so much easier to managemy surgeon has said if remi doesn't work he has something else to try hope this helps you a little wishing you all the best keep us posted Bev x smilewinkgrin


craizy_daizy
Regular Member


Date Joined Feb 2009
Total Posts : 50
   Posted 5/10/2009 8:19 PM (GMT -7)   
I also have a fistula right now, below my belly button, on my resection scar (that appeared the January, only a couple months after my resection)....I've been taking antibiotics and seen no change...they recommend Remicade or Humira (sometimes one works when you're allergic to the other, I've heard)...but I'm very hesitant about either of those....My town doesn't have GI specialists and For the last year and half my primary physician has been the only surgeon in town, and he said that he wouldn't choose the surgery if there's any way to avoid it (since most likely I'll just keep fistulizing again and don't want to keep cutting bowels away) but it can be done. I've read that if the part of the bowel is inflamed, it would basically have to be a bowel resection (to removed inflamed areas around it), but if not, they may be able to somehow avoid removing bowel and just fix the fistula. I'm actually leaning towards the surgery at this point, just because I've had it for over 4 months now and the drugs (that I'm trying to avoid) are only 40-60% effective anyways, not to mention thousands of dollars per dose....anyways, I think surgery CAN fix a fistula...but haven't gone that route just yet...
craizy_daizy

-22 y/o alaskan
-resection oct '08
-diagnosed nov '08
-currently on levaquin, clarithromycin, & rifampin


ExJohnson
Regular Member


Date Joined Feb 2009
Total Posts : 128
   Posted 5/10/2009 8:38 PM (GMT -7)   
My fistula reaches from my rectum to my anus, so I can't really give a proper answer, since all the research I've done have been teh enterocolonic (I think that's how you spell it) fistula.

What's teh statistic? 50% of all crohn's patients end up having surgery? I think I'll be part of that number pretty soon...

Good luck Mag, I know it's not easy.
I am a pre-30yr. old who has been diagnosed with Crohn's for 14 years.  Symptoms change from cramping and weight loss to severe anemia with fatigue and diarrhea. 
I'm DONE (D-O-N-E, DONE!!!) with immuno-suppressants.  Tremble, yee Pharmacuetical companies, for you will not withstand the aggressive onslaught of our healing!
new prescription from natural doc,
3.5 grams Chlorella daily.
4.5 mg Low Dose Naltrexone nightly. 


crohn's pt mom
Regular Member


Date Joined Nov 2008
Total Posts : 86
   Posted 5/11/2009 8:04 AM (GMT -7)   
If you are allergic to Remicade can you try Cimzia?   I don't know about surgery - that would make my daughter go over the edge.  Unfortunately, hers oozes alot and she can't do anything fun any more.  Just ending a relationship - probably due to her Crohns, but she too will be looking to marry and have kids someday.  Just keep in mind new medicine and procedures are discovered everyday. 

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 5/11/2009 8:10 AM (GMT -7)   
ExJohnson said...
My fistula reaches from my rectum to my anus, so I can't really give a proper answer, since all the research I've done have been teh enterocolonic (I think that's how you spell it) fistula.

What's teh statistic? 50% of all crohn's patients end up having surgery? I think I'll be part of that number pretty soon...

Good luck Mag, I know it's not easy.

I think it's closer to 75%.
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. 12.5mg prednisone. Udo's Choice Probiotics (30 billion). Can't tolerate any iron supplements or infusions.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!

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