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MerJ2009
Regular Member


Date Joined Apr 2009
Total Posts : 22
   Posted 5/4/2009 3:06 PM (GMT -7)   
I have been looking into and hearing about a ton of different diets on here. Ive heard of the SCD, Gluten and Milk free diet, Low fiber diet...They are seem to contradict eachother. One says no fiber(fruits and vegs) and others say stock up on fruits and vegs and stay away from carbs. Anyone have any words of advice to lend me about a diet?  I want to get in contact with a Nutritionist and work with my Doc on this also, but I want all the info I can get first.
23yr F. Diagnosed Dec. of 2008 after 2.5 years of symptoms.
Trying to get into remission. Currently only on Pentaza 2pills 4X daily.  Also a daily vitamin.


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 5/4/2009 7:43 PM (GMT -7)   
Your diet needs to fit with your symptoms. Those of us with significant strictures have a hard time following the SCD or makers diet because it has too much fibre, especially unsolulable fibre (veggies and fruits etc) Some of us have gluten intolerances, some have fat mal-absorption issues. Your best course of action is to keep a food journal and really get to know how you react to different foods. If you keep a journal it is much easier to see patterns that will help you determine what foods to avoid.

In general, you should try to eat as healthy and balanced a diet as you can tolerate. If you can manage whole grains and fresh fruit and vegetables then eat them. If your symptoms increase when you eat fresh oranges, avoid them. Etc.
Belleenstein:

30+ years living with Crohn's.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 5/4/2009 10:05 PM (GMT -7)   
I agree with belleenstein. Keep a food journal. You may discover a pattern, like that your disease flares 2 days after eating food x. If possible, an elimination diet is quite helpful. Start with a handful of basic foods you know you tolerate, then add one new food every few days. It's a good way to pin down exactly what does/doesn't agree with you.

In regards to SCD, you don't have to eat fiber if you don't tolerate it. Same goes for fat or anything else that disagrees with you. What works for one person on SCD may not work for another. If you take a look at the BTVC yahoo group, you'll find that some people's diets vary wildly with one another. It's recommended that you start out with cooked, peeled, and deseeded fruits and veggies. Applesauce, pear sauce, pureed squash, well-cooked zuchinni are all good for starters. If you absolutely can't tolerate any fruits or veggies, stick to the other legal foods on the diet (meat, homemade yogurt, eggs, etc.). With some time, you more than likely will start to tolerate things that once bothered you.

Good luck with whichever diet approach you decide to go with! Hope you find something that works for you :)
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 5/4/2009 10:22 PM (GMT -7)   
most diets are hard at first as you have to eat totally different than you do now to get any results. but once you get used to it, it becomes a habit and then it is easy. the problem with most diets is that most have gimmicks and sell you lousy products to eat or drink that just dont work and are full of artificial synthetic ingredients that are junk.

if you cant hang with the makers or scd (which i believe are the best for crohns), then here is what i'd do, bare minimum:
1) stop drinking soda and drink a ton more water. use fruit juice at a minimum. coffee, tea, milk, alcohol are not water.
2) cut out processed foods and sugars. if you want a cookie, make it yourself from scratch using better ingredients. you gotta stop eating the junk food.
3) go organic. it is worth the price.
4) keep a food journal to figure out what foods bother you.
5) educate yourself on nutrition and diet. by doing this you can tailor a diet that is right for you and your food intolerance(s).
6) cut out gluten and dairy for a month or two and see what happens. (keep a journal when doing this).
7) eat more fruits and veggies. if you are worried about insoluble fiber, cook your veggies (soups are great) and peel your fruit.
8) stop eating out (or do so very seldom) and make your own meals. you must learn to cook. it is fun. truly.
9) take digestive enzymes with every meal. take a fish/krill/cod liver oil daily. use a green drink supplement. get a good b-12 and vitamin D supplement.
10) get some will power and do a detox. in doing this reseed your gut with a good probiotic. this is where i'd actually start, but it is rough thus the will power.
11) bar foods and protein powders are not necessarily healthy. most are a waste of money. skip them.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 5/4/2009 10:30 PM (GMT -7)   
If you have to have fruit juice, dilute it by at least half with water. Right now I'm drinking a glass of 1/2 100% grape juice 1/2 water. It's so sweet and good, I don't think I could go back to full strength. I probably could do 3/4 water and still have a nice sweet glass of juice.

I would love to go all organic and eat pastured meats (pastured cows have 500% more CLA in their milk than grain fed). Unfortuately, my pocketbook doesn't agree with me :(.

CrazyHarry, what do you think of green tea? Yea or Nay?
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 5/5/2009 9:29 AM (GMT -7)   
teas are a tough call cos of the quality. so much of it is junk. a cup or so every day or every other day wont kill you, but dont count it in your daily water consumption. a good quality green tea has good stuff in it (ie antioxidants). loose leaf tea is best, but again, so much of it is junk it is hard to know if you are getting a good quality one or not. teas are also diuretics so be careful there. black tea isnt supposed to be so good cos it naturally contains fluoride, which isnt good. ginger and peppermint teas are great digestive aids. very handy when i have a tummy ache.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 5/5/2009 9:44 AM (GMT -7)   
It can be very confusing. In fact there is a difference between low residue and low fiber. But keeping a food journal is really your best bet and if you are flaring be very gentle with your digestive system. Keep to very soft foods only until things calm down and then introduce foods slowly so that you know what you can and can't handle. I personally follow a low residue diet. I can tolerate very little to no fiber. But I have had 3 resections. Diet like most things having to do with CD is very individual and we all have to learn for ourselves what works and what doesn't. Some days I can handle a small slice of tomato on a sandwich, others it will send me into the bathroom within an hour. Who knows why. But you will slowly figure out what works and what doesn't, and on the days when you feel like you can chance things, you can indulge.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/5/2009 10:16 AM (GMT -7)   
I agree with Zanne in that diet is very individual. Like her, one day I can eat one thing and then the next it kills me. I live on a low residue diet, and it works well for me. I too can only tolerate very little fiber, although I can eat beans no problem and it gives others grief. I also, eat NO red meat, and only eat fish, turkey or chicken. Keep a food diary and find what works for YOU. Good luck!!
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

MerJ2009
Regular Member


Date Joined Apr 2009
Total Posts : 22
   Posted 5/5/2009 5:47 PM (GMT -7)   
Thanks everyone! I have been keeping a food journal (but not as dilligently as I should be). I think I need to just start giving things up that I love (I still eat whatever I want but with lots of pain and regret after) I feel that gluten and milk are big issues right now. I was actually on a fiber suplement when I was DX because the Dr thought it was IBS. I have been told since being DXed that I probablly have both. So fiber doesnt seem to give me major issues. Thanks again for the advice!
23yr old Female. Diagnosed December of 2008 after 2.5 years of CD symptoms.
Trying to get into remission. Currently only on Pentaza 2pills 4X daily.  Also a Multi-vitamin. Was on Entocourt 9mg but was taken off.
Multiple back problems that are worse when flairs...Deteriorating disks, Scoliosis, and Arthritis.
Looking forward to my wedding in July. I have a wondeful supportive family and fiance!

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