Any women using Mirena IUD?

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pb4
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Date Joined Feb 2004
Total Posts : 20576
   Posted 5/5/2009 5:10 PM (GMT -7)   
If you are could you please share all your experiance with it please...I'm looking to have this inserted in the hopes of completely stopping my periods cuz my CD gets so exacerbated during my periods and I'll be 42 in june so still a ways away from menopause and I just can't take how stupid my CD acts druing my monthly cycle.
 
Thanks :)
My bum is broken....there's a big crack down the middle of it! LOL :)


chroniemomx2
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Date Joined Apr 2005
Total Posts : 2346
   Posted 5/5/2009 6:08 PM (GMT -7)   
Are you on the pill now? I stopped taking it and my periods got soooooo much BETTER! I know...not the norm, but nothing is with me!

pb4
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   Posted 5/5/2009 6:57 PM (GMT -7)   
Hey chroniemom, no I' haven't been on the pill for over 16 yrs cuz after I had my son I had the clips put on my tubes (since I knew we wouldn't be planning to have anymore kids) but the clips don't interfere with periods so I still get them every month. I don't want to use BCP cuz they also exacerbated my CD daily not just during my periods. My CD symptoms didn't start getting worse with my periods until about 6 yrs ago so I don't know if it might be because of my IBS that I also have (6 yrs ago is around the time my GI suspected I had also developed IBS), but either way, be it my CD or my IBS my bowels are just worse behaving during my periods so I want to stop them.

:)


My bum is broken....there's a big crack down the middle of it! LOL :)


SallyC
Regular Member


Date Joined Nov 2004
Total Posts : 158
   Posted 5/6/2009 3:09 AM (GMT -7)   
I had the Mirena inserted in September 08 and just had it removed in Feb. I flared really bad shortly after insertion and again after removal. But in between it was awesome! No problems with crohns at all and periods were almost non existent.
I suffer an increase of symptoms of crohns with my period too. I did not have it removed because of anything wrong.

Keep me posted how it works for you.
Sally
Sally
 
Diagnosed with UC in July of 2003 then diagnosed with Crohns in August of 2006.


karendee
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Date Joined Mar 2007
Total Posts : 1642
   Posted 5/6/2009 8:14 AM (GMT -7)   

I am considering it because my copper IUD expires in Jan 2010. I am very close to needing to make a decision. My OBGYN said that mirena would be a good idea since I would get to skip periods. They said that would happen with the injection I got years ago (I forget the name) and I got my period anyway. mad

I did have some problems with the hormones on BC pills making me moody etc (like PMS all the time) so I wonder if Mirena IUD does this as well? or are the hormones in it different?

I sure would like to skip my period, all it does is cause trouble for my CD and other things. Also, I am not planning on any more kids. I have been happy with the copper one for the last 10 years but I need to do something for the PMS and CD!

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica

 

 


pb4
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Date Joined Feb 2004
Total Posts : 20576
   Posted 5/6/2009 10:22 AM (GMT -7)   
Thanks Sally and karendee for your replies...

karendee from reading the pamphlet my doc gave me the Mirena does have low dose hormones in it and weight gain as well as pms and other symtpoms can also happen with the Minera I'm just hoping for me they won't be an issue and it stops my periods all together in the hopes that I won't have to deal with my CD over-reacting even more when it's period time.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


karendee
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Date Joined Mar 2007
Total Posts : 1642
   Posted 5/6/2009 10:53 AM (GMT -7)   

thanks pb4. I had looked into it before and had thought I might go with another copper one since Mirena has hormones. However, the promise of no periods is very tempting since my CD worsens with them.

 

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica

 

 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 5/6/2009 12:43 PM (GMT -7)   
Ya, mine too which is why I think I'm gonna try the Mirena, I take a good probiotic so there should hopefully not be any issues as a result from the hormones in the Merena, I guess if I don't like it overall and it's not doing what I want it to do then I'll just have it removed and wait impatiently for menopause LOL.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Kayspain
Regular Member


Date Joined Jan 2009
Total Posts : 39
   Posted 5/6/2009 1:20 PM (GMT -7)   
Hi,
I had a mirena fitted in December 08 not for contraceptive reason as I have my tubes clipped but for excessive bleeding. I have been bleeding most of the time since saw gynae a few weeks ago and he wants to give it more time but if bleeding hasnt stopped by the end of may he will remove it and next option will ablation. Apart from weight gain (16lbs) which I could do without I havent found any other complications. Just to let you know I had one fitted a few yrs ago and bled continously aswell.
36, Female
Proctitis in 2000
Diagnosed in November 08 with colitis (By surgeon)
Awaiting Appointment with GI
Medication
Dipentum Olsaline Sodium (3X500mg daily)
20mg Prednesol (First time)
Nexium 20mg Daily
Iron Supplements
Probiotic -Super8


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 5/6/2009 3:52 PM (GMT -7)   
Yikes Kayspain, sounds like you're quite a bleeder...luckily I'm about a medium flow so I'm keeping fingers crossed that this Mirena will stop mine all together and I won't have any exacerbated symptoms of my CD or IBS each month.

I'm not concerned about it for birth control at all, I had clips put on my tubes about 16 yrs ago to take care of that (after having my second child) and that has worked out excellent for me to not have to use BC which is why I don't want to go on the pill cuz those can exacerbate (and did for me) IBD symptoms and not just at period time but every day (my experiance). I just hope I don't get any side effects with the Mirena and that it will completely stop my periods for me.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


mnchkn
New Member


Date Joined Jun 2007
Total Posts : 15
   Posted 5/6/2009 4:32 PM (GMT -7)   

Hi pb4!

I had a Mirena IUD inserted in September 2005.  I wouldn't trade it for anything in the world.  My periods are non-existent.  Woo Hooo.  I plan to have another one inserted in September 2010.  I did not have an issue with the weight gain.  My 15 lb weight gain happened when I started Humira in September of 2008.  Not having a period has made my Crohn's much better.  I did spot off and on for a few months after insertion, but after that, nothing.  I'll be 40 in June.  Good Luck.


SallyC
Regular Member


Date Joined Nov 2004
Total Posts : 158
   Posted 5/6/2009 5:35 PM (GMT -7)   
I had spotting on and off for about 2 months. I started gaining weight around 4 months. about a pound a week until I gained almost 10 pounds and because I am 5 foot 2 and my husband had a vasectomy recently, I said get that sucker out! Sorry to say I was being vain!

So that said, it really did help with the crohns! I was more level as far as mood swings go (almost too level for me) but I felt bloated ALL the time.

Although we are all different, I think for what you are taking it for you will like it. And as some have said, if you don't you can always have it removed.

Sally
Sally
 
Diagnosed with UC in July of 2003 then diagnosed with Crohns in August of 2006.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 5/6/2009 6:21 PM (GMT -7)   
Awesome mnchkn and Sally, thanks for sharing your experiances...I know when I was a teen and went on BCP I never gained an ounce so I'm hoping I won't from this IUD either, of course I was a teen moons ago now but I'm keeping fingers crossed that I won't get the weight-gain or any other annoying symptom from it.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


FitzyK23
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Date Joined May 2005
Total Posts : 4219
   Posted 5/6/2009 7:51 PM (GMT -7)   
PB4 - I maybe mistaken but isn't the reason bcp's can make IBD flare is b/c of the hormones? And doesn't the IUD you are looking at have similar hormones? Since you don't need the bc aspect maybe there is a lower dose hormone pill you can take instead of dealing w/ the insertion. If you take bc continuously your period stops too. Also, what about the shot or the patch? My main question is if bc made you flare wouldn't the hormones in an IUD do the same?
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 5/6/2009 8:15 PM (GMT -7)   
Yes, I've thought about that too but was explicit with my doc about how my periods affect my IBD/IBS and he assured me the level was low and constant so my body should adjust, he also ensured there was no guarantee it would stop my periods so if I wasn't happy with it I could have it taken out, he also knows I take probiotics and he figures that should help as well where the Minera is concerned...guess we'll see when I finally build up enough nerve to try it.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 5/6/2009 11:27 PM (GMT -7)   
ah, sorry PB4, I don't think I was entirely clear with my question. I am afraid of the IUD because I am afraid of the pain of insertion, complication, etc. What I was trying to ask was if your doctor cleared you for the hormones, instead of going with what I consider a scary procedure, could you try the patch or pill instead?
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 5/7/2009 11:31 AM (GMT -7)   
Hey fitzyk, he basically said for what I'm looking for (stopping my periods) my only options were ablation (which I thought was kinda invasive and he quoted 80% success or some women may end up bleeding more), the Minera IUD spcifically (cuz a copper kind woulnd't stop my periods all together) or the Depo shot. I don't want the pill, been there done that cuz the pill really messes with my CD. Thankfully I likely only really have to worry about this for only another 10ish yrs, by then menopause will be sure to be on it's way LOL.

I'm not looking forward to having it "installed" LOL but none of the other options sound that great either, ablation, depo shot...hopefully he'll be quick about getting it in there and I won't feel any cramping or pain once it's in.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/7/2009 4:31 PM (GMT -7)   
I have used the depo shot for years, because I had to stop the bleeding from my periods. I would pass out from the blood loss. I am so much happier on depo. But it took about six months to a year to reach a theraputic level. I do not use mine for bc right now, so I only use it when I need to stop bleeding and that is usually every 4-6 months. I had one incident for two months that I had weird bleeding during the 14 years I have been on it. The weird thing this depo shot is suppost to be bad for your bones, but I am actually gaining ground on my dexa scan. Seems my bone problems were more from damage to that area of the intestine.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

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pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 5/7/2009 7:45 PM (GMT -7)   
Definitely an interesting thing to keep in mind, thanks for sharing MMM.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


rlc06
Regular Member


Date Joined Aug 2006
Total Posts : 184
   Posted 5/8/2009 1:47 PM (GMT -7)   
Hello I have been using the Mirena IUD Since March 2008 and I love it. My Crohns is in remission the doctors think that the IUD is playing a role in the remission. I dont have any weight gain or side effects! LOVE IT, LOVE IT!!!!!!!

Mommy
 
 
Diag with Crohns of the colon May 1998 after birth of child in 2001 disease moved North and Left the colon. I now have Crohns of the Mouth all the way thru to the Colon. Currently on Remicade but not working so well that now meds are every 4 weeks at 1200mg. Chronic D 30-50 times daily with on and Off Joint pain and swelling of stomach when dose of meds wears off 2 weeks after infusion. 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 5/8/2009 3:11 PM (GMT -7)   
That's awesome rlc06, I hope I have the same experiance with it as you have, thanks for sharing.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)

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