colostomy stories/ advise

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Regular Member

Date Joined Jun 2008
Total Posts : 221
   Posted 5/6/2009 5:27 PM (GMT -6)   
My doctors have decided that the best option for me at this time is to get a colostomy.  I am in agreement with them, I have had 4 surgeries in the past 5 weeks and nothing I am on at the momoment is working.  I am on full doses of remicade and imuran and they just arent doing anything.  I was just wondering if people would tell me there stories, what its like with a bag, the surgery, and if they found haveing a colostomy the right choice.  I am really looking for some advice, its a big decision and i dont want to regret the decision that I make.

Veteran Member

Date Joined Oct 2005
Total Posts : 1245
   Posted 5/6/2009 5:54 PM (GMT -6)   
Dreamer06, I'm sure people will soon come offering advice. However, here at Healing Well there is a separate forum just for Ostomy discussion. Maybe that will help. Good luck to you! Blessings, Julie
Diagnosed with Crohn's March 2006, Fibromyalgia Nov. 2008, Anxiety Disorder since childhood
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 10 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg three times a day, 1mg at bedtime (for anxiety attacks)

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