Stricture Won't Respond to Medication

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mimik81
Regular Member


Date Joined Jan 2008
Total Posts : 88
   Posted 5/7/2009 8:14 AM (GMT -7)   
I've had a stricture where my large/small colon meet for 8 years, and I've exhausted a lot of the medications for it. I'm flaring, saw the GI doc Tuesday, and it's so inflamed that he could feel it by just touching my abdomen.

I'm going for a CT scan on Monday. I'm concerned as to what other options I have, as far as surgery goes. Can they do a resection there? Just wanting advice from you guys so I know what options are out there. Sorry, but I do trust the docs, but I know you guys sometimes have better ideas.
Diagnosed with Crohn's for 13 Years
Currently on 75 mg Imuran

Tried prednisone, flagyl, pentasa, and Humira (developed drug-induced lupus and had to stop).

Accountant and Mom of a 3-year old


Curly9878
Regular Member


Date Joined Apr 2007
Total Posts : 165
   Posted 5/7/2009 8:25 AM (GMT -7)   

I am in the same boat...   Decided to have my guts cut out....    Meet with the surgeon this week....

 

Keep us posted!


28 Yrs
Michigan
Newly diagnosed with Crohns


mimik81
Regular Member


Date Joined Jan 2008
Total Posts : 88
   Posted 5/7/2009 8:26 AM (GMT -7)   
All of your guts?? Like, need a bag all of your guts?

Yikes!
Diagnosed with Crohn's for 13 Years
Currently on 75 mg Imuran

Tried prednisone, flagyl, pentasa, and Humira (developed drug-induced lupus and had to stop).

Accountant and Mom of a 3-year old


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/7/2009 9:28 AM (GMT -7)   
No they are having a resection. I had a resection at the same spot your stricture is located. My first one they removed 12 inches and the second one only 5 inches. If medication is not working, and symptoms are so bad you have no quality of life, then surgery is your only recourse. Good luck!
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 5/7/2009 9:59 AM (GMT -7)   
Like Nanners, I have had multiple resections. I went 10 years from when I first suspected I had CD until I was actually diagnosed. I feel that a lot of underlying disease formed scar tissue and did some real damage. I ended up having 3 resections in a pretty quick time frame, but after my last one, I have been on maintenance medication and have been pretty well under control since. I have been almost 12 years since my last surgery and still doing pretty well. So If your quality of life is reduced, then surgery may be your best option, just make sure you are on some form of maintenance medication afterward. I really worry about the ones who are keeping the disease "in check" with diet. Because it takes years for the long term damage to show up and by then its too late.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 5/7/2009 11:41 AM (GMT -7)   
I am looking at strictureplasty as a possible option.

They used to not do stricutreplasty on the large intestines, small intestines only, but they have been doing it much more lately on both areas.

My stricture is so close to my rectum it really has me worried when it comes to surgery, but with strictureplasty they somehow cut the stricture in a way which makes it more open inside. It has been explained to me many times, but I just don't see how they do it.

You also don't lose any intestines, you don't really lose the stricture since they don't cut it out.
CD dx @ 13 (1987)
Prednisone 10mg every other day
Phenergen PRN
Celexa 20mg day
Zantac 300 - Twice Day
Pain Meds
Vitamins

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