thanks again for your replies -I'm trying to step back a little from this but it's all still confusing and overwhelming, especially for a control freak like me so I'm allowing myself to be upset without feeling bad about it.
I get your messages loud and clear about remission meds and I'm certainly not dismissing the possibility. I just need more info about why this particular drug (Imuran) for me, and I have been scared about not even having the possibility of refusal without a black mark against my record (which would screw any insurances i have).
Nanners (and others) - I don't want to sound stupid but can someone please tell me how I would know if I was in remission or having a 'flare'? Any problems I've had over the years with diarrhea or pain or even hospital admissions I've put down to 'plumbing' after original resection. I want to be able to say that right now 'I'm in remission' and know exactly what that means to me - as a baseline for future symptoms or for side effects of drugs.
If anyone in the UK is having problems being treated ask your GP to refer you to St Marks Hospital in Harrow which is NHS recognise and FREE. They are Europe's best hospital and specialist centre for Bowel Disorders. They guarantee appointments for anyone with IBD too. They know all about all the drugs and the treat is first class and world renouned.
If anyone wants to go the Homeopathic route then ask your GP to refer you to the Royal London Homeopathic Hospital which is NHS recognised and FREE.
We are very lucky in the UK to have both these hospitals and the medication for FREE.
Diagnosis Oct 07: Mild Crohn's Colitis. Also suffer from bleeding Peptic Ulcers. By the grace of God currently in remission. Current Medication: 1000mg Pentasa Tablets x 2 a day. VSL#3. Asacol Suppository at night.