Poor Medical care?

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bigarms5
New Member


Date Joined May 2009
Total Posts : 2
   Posted 5/9/2009 3:55 PM (GMT -7)   
In 2005 I went to a Gastro Doc with complaints of stomach pain and
diarrhea . I was told that nothing was wrong and to eat better. My symptoms were still bad and after a few more doctor visits I was sent for a colonoscopy and It showed I had inflamation and recommended clinical correlation. I was told by the same Gastro Doc that nothing was wrong and again try to eat better. One year later he gave me another colonoscopy and the results were the same but this time he stated I had Crohn's disease. He prescribed Pentassa(8 pills per day) and told me that would help. Pentassa didn't seem to help and I still was in terrible pain and discomfort. He then put me on a steroid Endocort (sp) and told me that should help. I stayed on the steroid for about 6 weeks and I still never felt any improvement. The Doctor insisted that I had mild Crohns and if I wasn't happy with him I should go to Mount Sinai in NYC as they have a great Crohns program there. I reside in Long Island and was fearful of traveling into NYC as people with this illness try to avoid traveling farther than they have to. Well to contradict my last statement I decided I would take my wife and daughter to Cape May NJ for a short Vacation. Once there I became very ill and could not leave my hotel room for 3 days. I ate nothing and couldn't wait to get home. On the drive home we stopped at Wildwood NJ because it had a boardwalk and rides and I sat across from the bathroom while my wife took my daughter on the rides. While sitting on the bench I saw my Gastro DR and told him how sick i was and he looked at me and stated "Im on vacation and you're on vacation see you" He just walked away. I could not believe the coincidence of seeing him there and I was amazed at his answer that he gave me when he asked how I was feeling. At that point I decided to leave him and when I came home I saw a new Gastro Dr and he ordered a cat scan immediately and he said after seeing the results that my Crohns was severe not mild. He then put me on Prednesone,6MP and Humira but nothing helped and then I went to the ER and tey found I had a stricture and had to do major surgery taking out part of my Colon,Ceecum and small intestine. They could not do the surgery Laposcopic and I spent an entire month in the Hospital. My new Gastro has put me on 6 MP as a prevention from this from happening again. The Colon Surgeon had told me that she couldn't believe how bad my first gastro Doc was and that my intestine looked like a tissue that went through a washing machine left in a pants pocket. Totally rotted through. Thank God I am recovering now after suffering many years when I believe I didn't have to. I learned that finding the right MD is so crucial in fighting this horrific disease.
  Just posting  to get anyone eles thoughts or similar nightmare stories. As bad as the surgery was it turned out to be the best thing that happened to me as living in pain was torture. I also believe that if my 1st MD was on top of things then maybe I wouldn't need surgery or would of had a less invasive one at the very least.

orngie
Regular Member


Date Joined Feb 2009
Total Posts : 161
   Posted 5/9/2009 5:20 PM (GMT -7)   
I'm sorry you had such a negligent doctor initially. Kind of makes you wonder why he's in the GI field at all.

Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 5/9/2009 5:27 PM (GMT -7)   
That really sucks, from what I hear a lot of people around here have had similar experiences. I don't understand how you can be a doctor and not care about your patients.. I always considered medicine a field that you really need to be passionate about to go into. I was very lucky, my GI called in a personal favor from what she considers the best GI in the city to get me as her patient, and she is such a sweetheart. She's always listened to me, and even gets me in on the same day if I'm not feeling well! She's been seeing me at 2-week intervals while I've been flaring to keep up, and always tells me about the "next step" if things don't improve. I feel very lucky!

bigarms5
New Member


Date Joined May 2009
Total Posts : 2
   Posted 5/9/2009 5:35 PM (GMT -7)   

I couldn't agree more. It is amazing though. It's such a hard disease to live with and yet the difference between my two doctors was like comparing Einstein to an Ameba. I picked the first DR because of location and met him after I had my Gallbladder removed. He was the head Gastro guy at the hospital and I never could of imagined how incompetent he was. Pentassa did nothing to calm my crohn's down. How do Doctors know how to classify Crohn's. What makes one case mild and another severe? Is it by inflamation? or by the patients symptoms? It's funny how he had me as mild for 2 yrs and my new Gastro DR classified my Crohn's as severe. Another issue is he never gave me any other tests except for the two colonoscopies. My new Doctor gave me a cat scan right away. Does anyone know which is the best test used to diagnos Crohn's and tell how severe it is. With Cat scans,Mri's and Colonoscopies there must be a consensus on which one works the best in letting the DR see the disease and know how severe it is.

 

 
 
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