Remi reaction today :(

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crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 5/11/2009 7:41 AM (GMT -7)   
Hi All,well had my 2nd infusion today and had a reaction totally gutted, after 25 mins started feeling really hot and felt like i had something stuck in my throat was put on oxygen scary! they are now going to change my biological therapy and give me the remi through injections i really hope it will work. after my 1st infusion one of the fistula's coming through my old scar has already healed only had one more to conqure!!! trying to stay positive though. Bev x

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/11/2009 5:04 PM (GMT -7)   
Oh no! How upsetting and scary that must be. I'm really sorry, Bev.

I was interested to hear you say that you'll be getting your Rem by injections. Is that Humira / Cimzia, or actual Rem that they'll be injecting?

All the best, keep smiling,

Ivy.
Co-Moderator Crohn's Forum.

New meds thread


orngie
Regular Member


Date Joined Feb 2009
Total Posts : 161
   Posted 5/11/2009 6:41 PM (GMT -7)   
Sorry to hear that. How closely are you monitored while getting the infusions? Is it a good idea to have a friend or relative with you to keep an eye on you?

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 5/12/2009 3:08 AM (GMT -7)   

Hi Ivy,im noy quite sure the GI nurse said it wasn't the end of the world and that people with crohns have two options where as people with colitis have only one she has brought my appointment nearer to see crohns doc so i will find out and let you know i am only on the remi to try and clear up this fistula but when i read up on humira it doesn't say anything about closing up fistula's i don't really want to go on humira just to keep the crohns at bay i would rather try be on something else. thanks for replying i will keep you posted xx

 

 

H orngi, i was moinitored quite closely the nurses was doing my obs every 15 mins it was while she was doing my blood pressure that it came on, the specialist nurse is there at all times incase of things like this happen they were really swift in getting me sorted and within the hour i was back to normal had to stay for another two hours just to be on the safe side but all is ok now thank goodness thanks for replying speak soon xx


not creative
Regular Member


Date Joined Mar 2007
Total Posts : 466
   Posted 5/12/2009 12:18 PM (GMT -7)   
That sounds similar to my reaction during my third infusion. I couldn't breathe and got all hot and flush and light-headed. It really sucks because it was working but now I cannot take it and Humira didn't work.
Laurenne, 24 Graduate from University of California, Davis. BA-Anthropology
Dx'd w/ IBS and CD in 2002
On: 6MP, 20mg Prednisone, Zoloft, Lialda and Imodium
Tried: LDN- Did nothing good, Remicade- allergic, Humira- no reaction


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 5/12/2009 2:25 PM (GMT -7)   
My reactions came very fast. I had been pre-medicated with solumedrol and benadryl. When I reacted, the nusres slammed another 25 mg of benadryl in the IV and the reaction stopped within a minute. Make sure they have benadryl handy! My docs say a few people can have one reaction and never have another, which is why they often try again Unfortunately, most that have a reaction really are allegic and will have another -- no more Remi. I'm allergic to Humira too.
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 5/19/2009 7:09 PM (GMT -7)   
After several years of Remi I too had the same reaction. Humira isn't looking too promising either.
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