New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Chronicallyill
Regular Member


Date Joined Apr 2008
Total Posts : 195
   Posted 5/11/2009 11:42 AM (GMT -7)   
Hey everyone. I just started Humira on April 3rd. My doctors opinion was that I would do well on it. So far all it has done is made my tummy worse and the fissure that I had near my tail bone was healed and has now started to open up again. As well as I am so itchy on one part or another of my body. I have noticed that i have dry patchy scaley parts on my body, particularly my chest and arms. I have read that this drug can take up to 3 months to work. If its not working now will it ever start working? Im so frustrated because I was doing better with no meds than being on humira. Another thing is that I have herpes. I havent had an outbreak since like probably 10 months ago. My theory is that my over active immune system kept it at bay and now that I am on humira this is the biggest and most irritating break out yet. :( My energy is so low and I am so irritable. In my opinion I think I would probably would be better with out it. I dont have an appointment with my doctor until middle of June and I dont know If I can handle this anymore:(.
Age:22/6"1'/146lb - Diagnosed: 2001 @ age 15 now 22
First time mom as of March 8th 2008
Past drugs: Pentasa, Flagyl, Budesonide, Prednisone, tons of Antibiotics, Didrocal, 6mp
Past herbal remedies and vitamins:Probiotics, Omega 3&6, Prenatal vitamins, B12, Calcium, iron, vit C, vit D, vit E, Selenium, mineral drops
Current drugs: Valtrex, Methotrexate as of October 2008
Problems:Fissure and Tags on rectum, blood clots, Chronic UTI's, Osteopenia, Ulcers in my decending Colon
No surgeries....yet. Gone through 5 G.I.'s found a 6th G.I. crossing my fingers
Procedures: 4 colonoscopies, 1 upper endoscopy, 2 barium swallows, 1 biopsy of the fissure and tag (chron's affected)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/11/2009 12:18 PM (GMT -7)   
I think maybe you better put a call into your doctor. You should be feeling better, not worse.

Big Hugs,
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

goldy3
Regular Member


Date Joined Feb 2009
Total Posts : 139
   Posted 5/11/2009 1:40 PM (GMT -7)   
I've been on humira since march 23rd...initially I thought it was helping as I was able to get off cipro and decrease my entocort...it's been a rough 7 weeks as my body adjusts to this med...the first few weeks I had severe joint/muscle pain all over to point of having problems walking...tested for lupus/arthritis negative...rheumy thought it was a reaction to the med...all that pain went away after 3 weeks...now I get the flu like symptoms a couple days after the shot and this past week I was debilitated as my pouchitis came back in full force so I'm back on cipro...hell, I even think my stricture is getting worse as I've had some constipation which is rare with a jpouch so back up on entocort I go...its been 7 weeks, I'm assuming my GI will want me to stay on it 5 more weeks...I sure hope it kicks in...if not its off to remicade I go....this disease is causing me much anxiety...I work 2 jobs and want to maintain them...thought getting a jpouch would cure my UC...guess it did, just didn't expect crohn's to rare its ugly head...I pray this doesn't force me into disability....If I were you Chronicallyill I would call your doc like nanners suggested, he needs to be aware of what is happening to you...I hope you feel better soon!
42 year old woman diagnosed with UC 1991, Jpouch surgery 1992, Crohn's diagnosis 2009
Current meds: 1200mg xifaxin, 6mg entocort, Humira (started 3/23/09), synthroid, aciphex and 1000mg of cipro
Past meds: bactrum (side effect: rash), pentasa (tried twice in a 4 week period, severe nausea, vomiting and D), levquin (ineffective), flagyl (works, hate the side effects), enemas and suppositories (ineffective), imuran- tried 2/09, landed in the ER with severe back pain and raised liver funtions....
 


Chronicallyill
Regular Member


Date Joined Apr 2008
Total Posts : 195
   Posted 5/12/2009 8:26 AM (GMT -7)   
Thanks :)
Age:22/6"1'/146lb - Diagnosed: 2001 @ age 15 now 22
First time mom as of March 8th 2008
Past drugs: Pentasa, Flagyl, Budesonide, Prednisone, tons of Antibiotics, Didrocal, 6mp
Past herbal remedies and vitamins:Probiotics, Omega 3&6, Prenatal vitamins, B12, Calcium, iron, vit C, vit D, vit E, Selenium, mineral drops
Current drugs: Valtrex, Methotrexate as of October 2008
Problems:Fissure and Tags on rectum, blood clots, Chronic UTI's, Osteopenia, Ulcers in my decending Colon
No surgeries....yet. Gone through 5 G.I.'s found a 6th G.I. crossing my fingers
Procedures: 4 colonoscopies, 1 upper endoscopy, 2 barium swallows, 1 biopsy of the fissure and tag (chron's affected)


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 5/12/2009 3:47 PM (GMT -7)   
The immunosuppressing properties of the TNF agents can cause repressed viruses to activate. Both herpes and shingles outbreaks are known to occur in people on Humira, Remicade, Simponi, Enbrel. A recent study of RA patients on the anti-TNFs showed a very high occurance of shingles in people taking them.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


Chronicallyill
Regular Member


Date Joined Apr 2008
Total Posts : 195
   Posted 5/19/2009 11:33 PM (GMT -7)   
If I would have known that I was going to have out breaks from my herpes on Humira I wouldnt have even started it. :( I see my doc tomorrow and Im going to tell him that I dont want to be on this drug anymore. I just noticed a spot of psoriasis on the back of my ankle. It itches like crazy and is annoying the h*ll out of me :(. As well as a problem with my eye and itchy patches of skin all over my body. Also I started breaking out. I have never had a problem with acne before. I havent noticed a change in my BM's and figure that immunosuppressants just arent for me. I really want to try LDN, but no doctors will prescribe it to me. My last doc appointment wasnt very promising. He said that this is pretty much my last option drug wise and that my last resort is surgery, either a colectomy or colostomy bag :(. I just dont feel that Im at that stage yet :( I know someone who has been on LDN for 14 months now and her quality of life has improved greatly. She has had one small flare that was controlled with an increase in dosage. She was going 15 to 20 times a day and now she goes maybe 3 times a day at the most. She doesnt have anymore pain either. I know lots of people are skeptical about LDN, but I am willing to try something that i have hope in, rather than having my body get chopped up.

Age:22/6"1'/146lb - Diagnosed: 2001 @ age 15 now 22
First time mom as of March 8th 2008
Past drugs: Pentasa, Flagyl, Budesonide, Prednisone, tons of Antibiotics, Didrocal, 6mp
Past herbal remedies and vitamins:Probiotics, Omega 3&6, Prenatal vitamins, B12, Calcium, iron, vit C, vit D, vit E, Selenium, mineral drops
Current drugs: Valtrex, Methotrexate as of October 2008
Problems:Fissure and Tags on rectum, blood clots, Chronic UTI's, Osteopenia, Ulcers in my decending Colon
No surgeries....yet. Gone through 5 G.I.'s found a 6th G.I. crossing my fingers
Procedures: 4 colonoscopies, 1 upper endoscopy, 2 barium swallows, 1 biopsy of the fissure and tag (chron's affected)

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 2:03 AM (GMT -7)
There are a total of 2,735,780 posts in 301,335 threads.
View Active Threads


Who's Online
This forum has 151435 registered members. Please welcome our newest member, Manny222.
171 Guest(s), 4 Registered Member(s) are currently online.  Details
Heatheranne87, Lymiemomster, holo100, Hibee


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer