I am so sorry to hear... Your family and daughter have been through so much. Hopefully they will let her start Cimzia soon after the I&D. Then it can go to work healing all those incisions/fistulas. I feel horrible for her... My thoughts are with you guys!
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone, Tysabri
--Prochymal in Phase III study (can't wait til it's approved!)
--currently taking methylprednisolone 40mg-taper. Started Cimzia first dose 2/10/09. Dx Osteoporosis 10/08 started Forteo 1/27/09
--single mom to 11-yr-old girl