CHRONS AND ARTHRITIS

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falling apart in Arkansas
Regular Member


Date Joined Feb 2008
Total Posts : 32
   Posted 5/12/2009 9:53 AM (GMT -7)   
I was just told now I also have spondyloarthritis, and possible carpaltunnel in both hands. Chrons, IBS, arthritis, depression, restless leg, and cluster headaches, oh yes, and knee problems............wow..................i just don't know where to start with how I feel. Frustrated, why me, I have enough problems, thoughts of maybe I would be better If I were..............gone. I just don't understand........I am only 46 and always hoped i would be able to enjoy my life when I got older and did not have to work for a living. Well now I am so sick that I feel like doing nothing most of the time. I am presantly off work for knee problems. Having MRI today to see what is going on, have been hurting for a while now, have been going to therapy for almost a month and getting worse not better. This jan. had my second resection for Chrons and hoped I would get better, but now all this has cropped up, I know it could be worse...........but right now I feel that is not possible, the only thing that could make it worse right now is if they were to tell me that had cancer ( Yes I am at hight risk for Cancer, a typical cells) Plz I need some words of wisdom and comfort to get me going..................... shakehead cry
Diagnoced with Crohn's in 1999. Battling with it up and down ever since. Resection of my Terminal Ilium in 2000. Meds seem to change alot lately. But have been on predizone, endacort, pentasa, remicade, 6-mp, also do B-12 injection every month.( 2008 ) Well now they say I have IBS also, took me off pentasa, took away my B-12 injections, put me on Fiber. Still take the 6-MP for the Chrons now taking 4 green pills a day for the IBS. Can it get anyworse If Chrons was not bad enough now I have IBS also............Having more troule with the IBS lately. Chrons seems to be in remission, so far........well upate.. Jan. 2008 had bowel resection, now having severe joint pains. Seeing
a orthopedic doc on knees and seeing rumitoligist for orther body pains. He is saying he feels I have Spondyloarthritis . I don't need anymore problems with my health..................since Chrons sergery I am still having problems with the big "D" taking Questrian for that but does not seem to be helping.........................any advise on what could help with this arthritus pain, or anything...........welcome


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/12/2009 1:07 PM (GMT -7)   
Sorry to hear you have another diagnosis to add to your list. I think many of us feel much as you do. It seems as if its not one thing its another with this darn disease.

Sending healing thoughts and prayers your way.

Hugs
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

falling apart in Arkansas
Regular Member


Date Joined Feb 2008
Total Posts : 32
   Posted 5/12/2009 3:29 PM (GMT -7)   
thanks Gail
Diagnoced with Crohn's in 1999. Battling with it up and down ever since. Resection of my Terminal Ilium in 2000. Meds seem to change alot lately. But have been on predizone, endacort, pentasa, remicade, 6-mp, also do B-12 injection every month.( 2008 ) Well now they say I have IBS also, took me off pentasa, took away my B-12 injections, put me on Fiber. Still take the 6-MP for the Chrons now taking 4 green pills a day for the IBS. Can it get anyworse If Chrons was not bad enough now I have IBS also............Having more troule with the IBS lately. Chrons seems to be in remission, so far........well upate.. Jan. 2008 had bowel resection, now having severe joint pains. Seeing
a orthopedic doc on knees and seeing rumitoligist for orther body pains. He is saying he feels I have Spondyloarthritis . I don't need anymore problems with my health..................since Chrons sergery I am still having problems with the big "D" taking Questrian for that but does not seem to be helping.........................any advise on what could help with this arthritus pain, or anything...........welcome


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 5/12/2009 4:11 PM (GMT -7)   
Falling Apart, I understand your frustration and feelings of being piled on with all your health issues. I have been there too. I am older than you, but my serious issues started about your age. It can get better and it can be managed. I do have flares of different diseases and the unpredictability is frustrating. It is very hard to make plans too far in advance. It seems each time I see a doctor some new restriction is placed on me - don't lift, don't do this, etc., etc. I can no longer work because of my health. If your insurance allows, you might find it helpful to talk to a counselor that specializes in treating those with chronic illness. I started seeing a counselor to deal with my husband's death. He really helped me with dealing with my health issues too.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 5/12/2009 4:13 PM (GMT -7)   
What type of support do you have at home? (mother, father, siblings, significant other, friends)...just very concerned. I have used similar language before too...disease, pain, and oh yeah, those wonderful meds can lead to some helpless thinking. I'm pulling for you...

Me...when I am super down, even though it is hard, flower therapy works wonders. Even pictures on the internet (it's even better if I can drag my behind outside). Me likey flowers...all of them...even dandelions bring a smile to my face...

Coming here can help too. Even today, feeling like doody...tears flowing...this place helps...but Please, please, look into local support near you too...

(HEY, THANKS MR. Waite for setting this place up :-) )
"The earth laughs in flowers"


falling apart in Arkansas
Regular Member


Date Joined Feb 2008
Total Posts : 32
   Posted 5/12/2009 4:24 PM (GMT -7)   
I don't know where to go for support, except a theripist, and last time I said something to my doc about it " I need someplace to talk to someone about all of this" he said " I will have to think in that" yes, I had the same feeling. Bet If I were to be taken to the hospital because I tryed to commit suicide he would have found one.He is my HMO doc so have to have referal. I am still looking for a support group for my depression. As far as the support, my folks do not know much about Chrons and all it's problems, so not much of a support group. I do have a good friend that is very supportive, but she is going through some things of her own and so don't talk to her much. my son 26 and daughter 14 live with me, my son understands, but I don't think my daughter really does. I think she feels that my illness is causing her not to do the things she wants, and to bye what she wants...........normal teen girl? I sure wish there was a chrons or arthritis support groups here in my area. I am doing a bit better tonight.........I am hanging in (on a thread, but hanging on)..........that helped me to laugh for a moment. Thanks for caring and I will try to look at things in a diffrent light
Diagnoced with Crohn's in 1999. Battling with it up and down ever since. Resection of my Terminal Ilium in 2000. Meds seem to change alot lately. But have been on predizone, endacort, pentasa, remicade, 6-mp, also do B-12 injection every month.( 2008 ) Well now they say I have IBS also, took me off pentasa, took away my B-12 injections, put me on Fiber. Still take the 6-MP for the Chrons now taking 4 green pills a day for the IBS. Can it get anyworse If Chrons was not bad enough now I have IBS also............Having more troule with the IBS lately. Chrons seems to be in remission, so far........well upate.. Jan. 2008 had bowel resection, now having severe joint pains. Seeing
a orthopedic doc on knees and seeing rumitoligist for orther body pains. He is saying he feels I have Spondyloarthritis . I don't need anymore problems with my health..................since Chrons sergery I am still having problems with the big "D" taking Questrian for that but does not seem to be helping.........................any advise on what could help with this arthritus pain, or anything...........welcome


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 5/12/2009 4:53 PM (GMT -7)   
Dear,Dear FAINA,

My heart goes out to you. I seem to live with "whatever can go wrong will" and I decided long ago to try to find humor to feel better. Then try to keep moving, being in water for A is very theraputic for most people. I try to swim 3 times a week and keep my joints moving comfortably.

Teenagers don't understand much I would have to agree. Hope you all survive the challenges of the moment.

I did get cancer to go with all the rest and I am still processing it. I try to do things that make me feel happy these days. And know that we need to learn from our experiences.

You sound like a strong spirited person, will pray you are able to conquer struggles and "hold on"

falling apart in Arkansas
Regular Member


Date Joined Feb 2008
Total Posts : 32
   Posted 5/12/2009 4:58 PM (GMT -7)   
sorry to hear about the cancer. You ok now..............yes, when I feel real down I just try to remember that it could be worse, and there are others out there worse off than me.
Diagnoced with Crohn's in 1999. Battling with it up and down ever since. Resection of my Terminal Ilium in 2000. Meds seem to change alot lately. But have been on predizone, endacort, pentasa, remicade, 6-mp, also do B-12 injection every month.( 2008 ) Well now they say I have IBS also, took me off pentasa, took away my B-12 injections, put me on Fiber. Still take the 6-MP for the Chrons now taking 4 green pills a day for the IBS. Can it get anyworse If Chrons was not bad enough now I have IBS also............Having more troule with the IBS lately. Chrons seems to be in remission, so far........well upate.. Jan. 2008 had bowel resection, now having severe joint pains. Seeing
a orthopedic doc on knees and seeing rumitoligist for orther body pains. He is saying he feels I have Spondyloarthritis . I don't need anymore problems with my health..................since Chrons sergery I am still having problems with the big "D" taking Questrian for that but does not seem to be helping.........................any advise on what could help with this arthritus pain, or anything...........welcome


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 5/12/2009 5:00 PM (GMT -7)   
You could also talk to persons of your religious community...a priest, minister, or other person at a those facilities may help and you don't necessarily have to be a member of that organization at that time. Places like the Salvation Army, your county, city, and state have places that work on a sliding scale so you don't always have to go through your PCP (though I would at some point). When it get so overwhelming...you can call places...it can be nice to speak to a live person...I don't have all the answers and there are some here on this forum that are better able to help with answers about community resources.

Oh, I forgot...but you use the search part...some previous posts by Sniper, Randynoguts, Snohare and many others are funny, and I mean FUN--NY! Those guys can cheer me up in no time fast. (okay, my sense of humour is a little off too...but I like the potty humour(www.snopes.com/language/document/skipjack.asp))
"The earth laughs in flowers"


LittleSisSmurf
Regular Member


Date Joined Apr 2006
Total Posts : 164
   Posted 5/13/2009 12:11 AM (GMT -7)   
when i started to get reealy sick!,.... I had a hubby of 6 yrs, a supportive mother, a sister for a best friend, a  great job with great co-workers.  
                                            NOW..(one yr later)  I am living in a bsmt suite alone on welfare bcuz I cant work.  My Hubby left me, my sister and I had a big blow out and my mom has had a stroke and cant talk. My aunt passed away and my son was diagnosed with crohn's.
                                          AND YET..I think everything happens for a reason.  Not sure why yet??? 
Yesterday i nearly drove my truck into the ditch becasue I was having a reeealy bad day BUT today I feel  stupid for having those thoughts. Im not one for taking the easy way out. I do love my life!! Its hard and there isnt much to be happy about now a days...but Its mine!    Take care..      We are not alone            

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 5/13/2009 10:14 AM (GMT -7)   

falling apart, I have a list as long as yours and I'm only 28.  Yes, life has dealt us a crappy hand but I believe we have to make the most out of it and just do what we can each day.  Find comfort where you can and try not to focus on the negative.  Just the other day, I found out that a coworker who had just had a tragedy in her life has RA and her family member was very sick with Crohn's.  I was able to offer some advise and she said that my phone call that day was like a call from an angel.  It gave me some comfort to know that my troubles and pain had helped spare someone else some pain and hopefully guide them in the right direction as far as treatment goes. 

I see a psychiatrist and believe the medications have really helped me.  If your doctor didn't pay attention last time you asked, tell him again that you really feel that you need to see a specialist.  If you can't find a local support group, there are tons of people on here that can offer support and advice.   


Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


RK
Regular Member


Date Joined Oct 2006
Total Posts : 153
   Posted 5/13/2009 10:41 AM (GMT -7)   
Two weeks before I landed in the hospital with a Crohn's related absess (2007) I found out that I also have chronic Hepatitis B (thanks to a former boyfriend who cheated on me). Two weeks after that I was told my pap test wasn't good for the second time and there was a chance I had cervical cancer  (all other tests have since been negative). After that, every time the phone rang I would have a mini heart attack out of fear that it was more bad news.
 
Bad things happen to good people all the time. I certainly would NEVER wish anything bad on anyone but sometimes I can't help but feel like maybe the universe could spread it around a bit and not pile it all on the same people all the time. Terrible, I know.
 
If it wasn't for my family and friends, I would never have been able to function. I also went to see a therapist who helped a lot. And of course, this support forum has been amazing. Thanks everyone!
33-year-old female diagnosed with CD in 2001.
Currently on Remicade every 8 weeks (it's a miracle drug!!)


orngie
Regular Member


Date Joined Feb 2009
Total Posts : 161
   Posted 5/13/2009 11:17 AM (GMT -7)   
I try to remember that the horrible, crappy, why-me? days help me to appreciate the days that I feel pretty good. I hope that you will have some good days very soon.

yellowfin43
Regular Member


Date Joined Aug 2008
Total Posts : 305
   Posted 5/13/2009 12:32 PM (GMT -7)   
Im 50 years old and Ive finally made some peace with myself and my condition...s. Most of all the problems I have are somehow linked to Crohn's so instead of getting overwhelmed about them all I try to think of them as one issue. It's just Crohn's and these are the things it does to me. That makes it easier to cope with. I dont have many things, I have one and it does these things to me. It still sucks but I corraled them together for easy viewing. Next I stopped trying to fight it and deny it. I just said hey world this is me like it or not. The more I fought it and denied it the more depreesed I got for failing and that made things seems worse, Everyone is fighting demons.....everyone! Im stressing over my disease, my neighbor is stressing over her broken heart, her mom is stressed over her husbands addiction................it never ends and we're certainly not alone.
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 8 months ago. Now on Remicade, B-12 injections and iron. Feeling much better!
God Bless. Tony


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 5/13/2009 5:33 PM (GMT -7)   
I am only 24 and with so many health problems like you. It does not bug me that I am so young I don't really feel like I am missing out on something.

I try to take just one day at a time and always look at the bright sides of life, of course there are hard days and I just want to feel like crap but I try really hard to stay positive no matter what and find funny sides to this stuff.

For example I am no longer afraid of flying, if the plain goes down I will have peace forever and no more crohn's (I am not suicidal).
This is just my way of using my head to help me deal with stuff I don't like.

I have crohn's I cant work, so I get to stay home with my family all day and my wonderful dogs :) and using my time to get better and learn more about life. In stead of stressing over some work stuff that has no meaning for me or my life.

After I got sick I always talk very openly about all my diseases. Lots of people have contacted me and said that they also are sick with Crohn's, Anxiety or something else, and are really glad to have someone to talk to about this stuff, so I am helping others with my diseases :)

I am also way more relaxed then I was before getting sick small things got me upset in just a few seconds, Now I am more relaxed and happy. Maybe is the long wait for the all the docs hehe.

I am way more grateful for the good days I have and use them as much as I can. The good days I have these days are worse then normal days before I got sick but they are the best I got now and I just have to make the most of it.

The list can go on and on I can always find something good.

But recently I have been having many bad days especially emotionally but there is always something good in you life no matter how sick you are. You just have to find them sometimes it is hard to see it but just look harder and you will find it.

Good luck hope you feel better..
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Entocort, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~

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