Foot Drop after colitis and long hospital stay

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Roliie
Regular Member


Date Joined May 2009
Total Posts : 33
   Posted 5/13/2009 5:47 AM (GMT -7)   
First time on the site, My husband developed foot drop 3 months ago after a long long stay in the hosptial with perf bowel/Toxic mego colon/septic shock complications. He had 40 weight loss and stockings to prevent clotting while in the hospital, malnutrition and lots of sitting for 70 days. He has had nerve conduction done and emg plus mri. No one can figure what is causing the foot drop. He has an adominal abscess that is being drained for the 3rd time, this time for the past month. He has had physio for 2 months and homeopathy now giving the chiro a try. Can anyone shed some light or has had a similar condition. Any thing else anyone can share. My husband appeared perfectly healthy until developing UC last summer and it went from bad to worse real fast. I should add he also developed c-dif in the hospital. His pain started on his sit bone and now is leg and foot - sciatica we think.

PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 5/13/2009 6:23 AM (GMT -7)   
Gosh, you sound just like I did last year. My husband was hospitalized for 45 days last year, during which time he was diagnosed with both c-diff and crohn's colitis. He lost about 45 lbs in the hospital, and lost a lot of muscle mass, and was pretty malnourished. He also had to wear those stockings to prevent clotting since he was bleeding so much, and his platelet count was high. My husband developed a complete food drop in his left leg - so if had to walk, he had to pick up his foot altogether, he couldn't flex his foot in order to walk.

We went to the neurologist, and she did a nerve conduction study (about 1 month after foot drop developed, and about 15 days after he started feeling better, and he was able to eat some solid food). The nerve conduction study showed severe slow-downs on his left side, but it also said even his right side was slow. Also, since a pinched nerve in the spine can also result in the foot drop, she did the nerve conduction study along his spine as well, to rule that out. So, she gave him an initial diagnosis of demyelenating polyneuropathy, which scared us, given that what got him better was remicade, which can cause demyelenating diseases. So, then, to figure out whether to continue to remicade or not, we got a head, neck and spine MRI to see if there were any lesions indicating the development of multiple sclerosis. Thankfully, there wasn't any indication of MS, so we continued with the remicade. We took the approach of conducting a nerve conduction study after every remicade infusion, to see if his nerve conduction issues got worse. In the meantime he went to physiotherapy.

It's taken about 1 year, in order to regain about 75-80% recovery in function - he now walks normally and can run etc with no issue. Also, over time, as we repeated the nerve conduction studies, we only saw improvement, and everything went back to normal ranges about 3 months after his hospital stay. The only region where there were problems, was the peroneal nerve bundle (which if damaged can result in a foot drop) - so that's what we conclude happened to my husband - the sudden severe weight loss, his tendency to cross his legs, combined with the tight circulation stockings he had to wear, probably damaged his peroneal nerve bundle, and with better nutrition, and physiotherapy, his body slowly repaired the damage.

It sounds like your husband has some back issues - has he been checked to ensure that it is not a pinched nerve in his spine that's causing the foot drop? That's a very likely common scenario. I hope this has been of some help to you.

PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, and in crohn's remission, knock on wood


Roliie
Regular Member


Date Joined May 2009
Total Posts : 33
   Posted 5/13/2009 7:09 AM (GMT -7)   
I was notified that PV replied to my post.....but new to all of this...I cant find the reply....help

Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 5/13/2009 7:28 AM (GMT -7)   
Sometimes you can mark someone's name by mistake as someone whose posts you don't want to read, and then their posts aren't visible to you. I don't remember how this is done or how to correct it, but I am copying PV's message into my own post in the hope that you will be able to read it there. This is her message:
 
Gosh, you sound just like I did last year. My husband was hospitalized for 45 days last year, during which time he was diagnosed with both c-diff and crohn's colitis. He lost about 45 lbs in the hospital, and lost a lot of muscle mass, and was pretty malnourished. He also had to wear those stockings to prevent clotting since he was bleeding so much, and his platelet count was high. My husband developed a complete food drop in his left leg - so if had to walk, he had to pick up his foot altogether, he couldn't flex his foot in order to walk.

We went to the neurologist, and she did a nerve conduction study (about 1 month after foot drop developed, and about 15 days after he started feeling better, and he was able to eat some solid food). The nerve conduction study showed severe slow-downs on his left side, but it also said even his right side was slow. Also, since a pinched nerve in the spine can also result in the foot drop, she did the nerve conduction study along his spine as well, to rule that out. So, she gave him an initial diagnosis of demyelenating polyneuropathy, which scared us, given that what got him better was remicade, which can cause demyelenating diseases. So, then, to figure out whether to continue to remicade or not, we got a head, neck and spine MRI to see if there were any lesions indicating the development of multiple sclerosis. Thankfully, there wasn't any indication of MS, so we continued with the remicade. We took the approach of conducting a nerve conduction study after every remicade infusion, to see if his nerve conduction issues got worse. In the meantime he went to physiotherapy.

It's taken about 1 year, in order to regain about 75-80% recovery in function - he now walks normally and can run etc with no issue. Also, over time, as we repeated the nerve conduction studies, we only saw improvement, and everything went back to normal ranges about 3 months after his hospital stay. The only region where there were problems, was the peroneal nerve bundle (which if damaged can result in a foot drop) - so that's what we conclude happened to my husband - the sudden severe weight loss, his tendency to cross his legs, combined with the tight circulation stockings he had to wear, probably damaged his peroneal nerve bundle, and with better nutrition, and physiotherapy, his body slowly repaired the damage.

It sounds like your husband has some back issues - has he been checked to ensure that it is not a pinched nerve in his spine that's causing the foot drop? That's a very likely common scenario. I hope this has been of some help to you.

PV


Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, and in crohn's remission, knock on wood

PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 5/13/2009 8:23 AM (GMT -7)   
Also, I noticed in another post, that you enquired about what supplements my husband is taking to help rebuild the myelin sheath. Here's the list:
Vitamin B Complex
Vitamin B-12
Choline
Inositol
Panothenic Acid
Folic Acid
Soya Lecithin
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, and in crohn's remission, knock on wood


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/13/2009 2:10 PM (GMT -7)   
I suggest you go to Google and run this search:

"foot drop" site:healingwell.com

and slowly work your way through the results that come up.

If that isn't specific enough for you, you could also try:

"foot drop" colitis site:healingwell.com

I've just tried both searches and have had many results, but think it would be best if you worked through them yourself, as you will best know what threads are most related to your situation.

All the best,

Ivy.
Co-Moderator Crohn's Forum.

New meds thread


Roliie
Regular Member


Date Joined May 2009
Total Posts : 33
   Posted 5/13/2009 4:58 PM (GMT -7)   
Thank you for the reply PV. Yes, it is helpful just to know this has happened to others in similar situations. It has been so weird, it was at about 60 days in hospital that the pain started and it was in his sit bone not his leg. He had a spine/lumbar and a pelvic MRI and neither showed an issues with nerves being pinched or back problems, no disc problems found. do you remember the physical signs of recovery that your husband felt with regard to the nerves regenreating and the foot drop improving. My husband says the pain has changed in that it is less severe on a continuing daily basis but it is a stabbing pain starting about 6:30 in the evening and less frequent. Night has always been the worst. He has some numbness and a little pain in his right leg, foot drop and severe pain is the right leg. Between healing from the ileostomy, infection, septic shock and now nerve damage in his leg this has been horrible ordeal for both of us. Foot drop started near the beginning of Feb.

thanks

Roliie
Regular Member


Date Joined May 2009
Total Posts : 33
   Posted 5/13/2009 6:29 PM (GMT -7)   
just saw some other infor on this site. Flagly/Metroniazole side effect can be Peripheral Neuropathy ie peroneal nerve palsy is just that. My husband took a course of this drug for Cdif that was discovered right at the end of his long hospital stay. We are going to discuss with Neurologist. Anyone else has info on this? thanks

PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 5/13/2009 6:59 PM (GMT -7)   
My husband too took both flagyl and vancomycin for c-diff. We asked if Flagyl could be the reason for the foot drop as well after reading about the neuropathy issues sometimes seen with flagyl. Our neurologist said that while flagyl does sometimes cause neuropathies, typically they are very painful neuropathys, and typically does not cause foot drop.
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, and in crohn's remission, knock on wood


Roliie
Regular Member


Date Joined May 2009
Total Posts : 33
   Posted 5/19/2009 5:28 PM (GMT -7)   
Thank you PV for the information. For some reason I couldnt see your reply for a few days. My husbands foot drop has been very painfu. Sharp stabbing pain, numbness and electic shock feelling, Did your husband not have pain? Re the supplements you listed, how did you know what to use? My husband is taking the B complex but just one a day. What are your dosages? When you husband started to feel improvement, how did it start? Thanks for your support, it sure seems like a coincidence after the Flagyl for both of them to get foot drop.
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