worried tests wont find anything

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Regular Member

Date Joined Jun 2008
Total Posts : 221
   Posted 5/13/2009 11:35 AM (GMT -6)   
I have an upper and lower endoscopy today and I am worried that they wont find anything wrong with me.  I have crohns and I have had to have 4 surgeries recently do to abcesses and fistulas. My blood work is coming more normal now and everything is looking good except that I dont feel good!!  I am worried that the tests today wont show anything wrong.  My doctors are considering a colostomy.  But I am worried that if nothing is wrong they will just decide to wait until I flare again.  Even if I have the colostomy I am not sure i will feel better.   I am just so sick of lying on the couch all day not having the energy that I am used to having. 

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 5/13/2009 1:30 PM (GMT -6)   
Wish I had some kind of magic wand that would give you your desired answers, unfortunately I don't. But I can send out some healing thoughts and prayers your way. Hope you find out whats going on to cause you to feel so bad.

Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Sep 2008
Total Posts : 457
   Posted 5/13/2009 7:03 PM (GMT -6)   
I know how you feel when you know something is not right, and want to prove it to the doctors. Even if they put off the colonoscopy, please stress to them how you feel.
I am sending good thoughts your way.
Dx'd with Crohns 1984 and polycystic kidney diease in 1996
I was in remission for 16 years, Bowel Resection surgery 2006, Now on Asacol, folic acid, and Enalapril, Have been flaring on and off since August.
I love my life and everyday I pray that my body cooporates and allows me to do what I have planned.

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 5/13/2009 9:56 PM (GMT -6)   
dreamer - were you the poster who was studying in London and couldn't get home? Glad you made it back. Are you feeling a little better at least being in your home with your family? Did you end up flying coach? How did you do it?
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 

Regular Member

Date Joined Jun 2008
Total Posts : 221
   Posted 5/13/2009 10:21 PM (GMT -6)   
That was me who was in London.  I am feeling better than I was but I am still not feeling great.  I ended up paying more and flying first class.  I am not sure it was worth it.  It was still the longest day of my life.
But as far as the tests went today.  My stomach is okay, yet they game me a new med sucralfate. its suppose to coat my stomach.  They also said that my colon is normal there is no inflamation and no crohns.  Does that mean i am dont have crohns anymore or what I am now so confused.  They did say that the first 3 inches of my recotom were raw and really inflamed.  I am so confused I dont get why my colon shows no crohns yet I am taking all these meds, and still dont feel good.  I am seeing the surgeon tomorrow so hopefully they will be able to clear some things for me.  Right now I feel lost at sea.

Veteran Member

Date Joined May 2007
Total Posts : 1220
   Posted 5/14/2009 5:52 AM (GMT -6)   
Hi Dreamer!

My CD is only in the rectum so I understand how the rest of the colon can be fine but you feel like garbage. It takes a long time for that inflammation to go down in the rectum even with drugs. Inflammation makes you feel weak and unwell. The drugs probably are making you feel poorly too on top of it all! How are your vitamin levels? Low D and B-12 can also really make you feel bad -- believe me. The good news is that you will feel better in time. It may seem like a long way off now but it will get better for you! You are in with good doctors and they will help you move in the right direction! Praying you feel better at lightening speed!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.

Veteran Member

Date Joined Dec 2008
Total Posts : 947
   Posted 5/14/2009 6:12 AM (GMT -6)   
I know how you feel! I feel like crap and they can't find anything wrong. It's got to be the pills we take. The tiredness is the Crohns and hate that I'm tired all of the time, but I just keep pushing along.
I'm gald that they found no active Crohns, that should put a smile on your face.
Good luck!
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

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