I've already started calling myself the Million Dollar Rectum because everytime I get a statement for a Remicade treatment it's $7,000. Now, it will be closer to $15,000 since I doubled my dosage. Times 7 a year is $105,000. In ten years it would be over 1 milion dollars!! Just so my butt doesn't hurt!!!!
I told my wife it makes me feel kind of guilty to be using that much money but she tells me it's not my fault that the drug costs such an insane amount of money.
Ivy, My GI believes Botox to be a temp solution when it comes to healing crohn's fissures. It stops the spasm for awhile and the fissure goes away but then the conditions for the fissure are set up again as the Botox wears off.
On a bad note, I saw blood this morning so I am actually getting worse. One week after my Remicade was doubled. Should I wait for the new dosage to kick in or call it a failure now?
The blood is definately from my fissure. It was just on the TP.
I know what you mean about temporary relief being better than nothing, but this battle has been going on for four years. I just want something done to end it. I have a way of dealing with the pain which works pretty well but it's insane: I wake up at 3:40, have my bm (yep, like clockwork!), take a warm bath, eat breakfast and go back to sleep by 4:30 and sleep until 5:40. I am sleeping off most of the pain. However, the other day I missed my morning BM and ended up going that afternoon and realized just how much discomfort still have. Urghh!!
Thank you Ivy.
Surgeon says yes, GI says don't do it unless you have to since you'll lose rectal tension which could be bad when I'm older.