Any1 in the UK - just curious

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littlemissmuffet
Regular Member


Date Joined Feb 2009
Total Posts : 269
   Posted 5/15/2009 9:46 AM (GMT -7)   
smhair  Hi all
 
I notice that a lot of people on this forum seem to be from the US, I was just wondering how many of you are in the UK? And where abouts are you.
 
Im in Hull in East Yorkshire
Diagnosed 2005.
 
Current medication  -  infliximab infusions, ranitidine, ferrous sulphate, Vitamin B12 injections, asacol


spiceman
Regular Member


Date Joined Aug 2008
Total Posts : 51
   Posted 5/15/2009 10:18 AM (GMT -7)   
I'm from Cambridge yeah
5mg Pred tappering over a 5 week period.
 
Resection 28th Jan 2008


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 5/15/2009 11:20 AM (GMT -7)   
Hi iam neighbours with the queen!!!live in Buckinghamshire near Windsor. My husband originally comes from up north till he joined the army in 1980 and was posted in Windsor the in-laws are still up there though i love it proper fish and chips YUM YUM Bev X

Post Edited (crohnielass) : 5/15/2009 12:27:07 PM (GMT-6)


lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 5/15/2009 1:25 PM (GMT -7)   
Ooh I was born in Windsor and lived there til I was 5! I'm currently in Devon.
 
 


crohnielass
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Date Joined Mar 2009
Total Posts : 1118
   Posted 5/15/2009 1:33 PM (GMT -7)   
lilchrohnie, you didn't go to lawns nursery or oakfield school did you?

Wild_Swan
Regular Member


Date Joined Apr 2007
Total Posts : 89
   Posted 5/15/2009 1:59 PM (GMT -7)   
ireland if that counts :)
 
 


uklass
Regular Member


Date Joined May 2009
Total Posts : 65
   Posted 5/15/2009 2:10 PM (GMT -7)   

hi everyone

I live near Wakefield in Yorkshire. This a great website - haven't come across anything like it here. Seems US and Canada so much more clued up and more choice of treatment - unfortunately they have to pay for it unlike us (phew!). will be great to catch up with you all from time to time, and get your experience of dealing with the uk system. i'm new to all this forum stuff but I'm learning all the time.

Penny     :-)


lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 5/16/2009 3:44 AM (GMT -7)   
Yeah those from the US give me a great insight into drug options as everything that gets approved over there eventually makes its way into the NHS!
 
crohnielass - no I did pre-school at Upton House, I can't remember what primary school my siblings went to, none of those rings a bell though!
 
 


snohare
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Date Joined Oct 2004
Total Posts : 2088
   Posted 5/17/2009 2:57 PM (GMT -7)   
idea I'm also about to be the Queen's neighbour. I'm moving to just along the road from Balmoral ! But meantime I am in Aberdeen, which I have been told ranks up there jointly with Tel Aviv as world capital for Crohn's Disease. eyes Around here when you say you have Crohn's, folk don't go, "What's that ?" they say, "Oh yes, I know so-and-so who has that".

irv-uk
New Member


Date Joined May 2009
Total Posts : 3
   Posted 5/17/2009 4:34 PM (GMT -7)   

Hi from Scotland

 

__________________________________________________________________________________________________________

Diagnosed 1996 / 2 x surgery 1999 & 2007

meds - 6 x 500mg Pentasa / 4g colestyramine - daily

 

 

CazUK
Regular Member


Date Joined Jan 2009
Total Posts : 51
   Posted 5/18/2009 1:15 AM (GMT -7)   
Yep I live in London.

Diagnosed with Crohn's disease in Sept 05 aged 24


Resection in Nov 06


Currently taking Remicade, 125mg azathioprine, iron, multivitamin, probiotics and omega 3
 
Previously taken Prednisolone, Entocort, Flagyl, Cipro, Pentasa


STUBOY66
New Member


Date Joined May 2009
Total Posts : 10
   Posted 5/18/2009 1:35 AM (GMT -7)   
I live beside Loch Lomond,

Had resection jan 2009 on questran light 1 a day

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/18/2009 1:50 AM (GMT -7)   
Sno and Crohnielass, do you see ERII very often? Are you affected by extra security precautions whenever she comes to stay in your area?
Co-Moderator Crohn's Forum.

New meds thread


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 5/18/2009 7:03 AM (GMT -7)   
Ivy, i have met her a few times when my husband came back from Bosnia and then Iraq we do have a lot of security in Windsor when she has visitors all the litter bins are checked ,undrercover cops everywhere also  my sister in-law is one of the queens chefs and lives in buck palace and when we go up to visit them its a nightmare getting in with all the security Bev x

snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 5/18/2009 7:20 AM (GMT -7)   
Pretty relaxed around Balmoral, you can bump into them out hillwalking/picnicking - but camo-clad figures supposedly lurk in the foliage and all the buildings on the estate are wired up to alarms, rucsacs are subject to searches.

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/18/2009 4:45 PM (GMT -7)   
Wow! So did we ever get to see your sister, Crohnielass, in that documentary about the Queen's Castle? I remember they went through each department and talked with the secretaries, cooks, cleaners etc.

Tell me if so, and I'll try to rewatch it and find her. They have a copy of the DVD in our local library, for some reason.

So strange to think that you can just bump into them like that, Sno. I thought they'd be more heavily guarded, what with the IRA and Sept 11 and general public nervousness...
Co-Moderator Crohn's Forum.

New meds thread


snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 5/19/2009 3:45 AM (GMT -7)   
Back in the bad old days of the IRA, things were a bit more fraught, I believe there were more bush lurkers. Even now there is still a Queen's Guard stationed down the road at Ballater, and you can always tell when royalty is around because there are police patrols running along the road along the river (it's a narrow valley so only one main road) and they stop for nothing, not even a traffic accident.
My father was brought up in the area, literally within sight of Balmoral Castle. Got totally fed up of rural life, wanted to see the world; so joined the army, the local regiment being the Gordon Highlanders. Went down South for basic training, did well, really put himself out and impressed the sergeant major. So upon passing out....they made him part of the Queen's Guard. An offer he couldn't refuse. Guess where they posted him....! idea smilewinkgrin yeah cry
To this day I think he is overcompensating with all his holidays abroad. eyes
I will not tell you of my only meeting with royalty, it is too embarassing.

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 5/19/2009 5:59 AM (GMT -7)   
Hi Ivy yes but she didn't speak she was in the background wrapping something in tin foil . she also made the wedding cake for princess Anne's son it was in hello magazine  i remember seein jane in town and she had been and brought a sander because the icing was not perfect on the cake and she had to sand it off!!! we are all so proud of her though x
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