searching for answers

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painbegone
New Member


Date Joined May 2009
Total Posts : 7
   Posted 5/16/2009 5:52 PM (GMT -7)   
Hi- I'm searching the internet for answers.  I have the phone book out looking for Drs.  I have put this off way too long.  Please don't be annoyed by my questions.  The answers to my questions are probably right in front of me on this site.  I am 43 years old, female and I have the worst stomach pains almost every night.  It doesn't matter what I eat, my stomach almost always starts hurting..knawing pain and it can last up to 5 -6 hours.  I could just roll on the floor with the pain.  Sometimes I even throw up.  I can't eat salad anymore, can't eat veggies unless they are cooked to death, can't eat steak anymore and now it seems I can't even eat a chocolate cookie.  The pain starts anywhere from 15 min. to 1 hour after I eat.  I am going crazy.  I don't have diaherrea but sometimes constipated.  Sometimes I feel like I have food poisoning.  This always happens at dinner and not at lunch or breakfast.  Does this sounds like Chrohns?  I have always had a sensitive stomach.  When I was a little girl, I would get excited about a slumber party etc. and would get horrible stomach aches and then couldn't go.  I'm 43 years old!  What can I do?  I WILL finally go to the Dr.  I can't take this pain anymore.  I'm about to go crazy!

pinkymoo
Regular Member


Date Joined May 2009
Total Posts : 28
   Posted 5/16/2009 6:06 PM (GMT -7)   
Hi
im so sorry you are going through so much at the moment, please dont ignore serious pain!!
Dont be scared take yourself down to emergency, i cant say you have CD but some signs are there but it could be something else to its not upto me to say what you have its not my place to..
i ignored months of symtoms because i thought i was suffering from stress and when i thought it should be all fine it wasnt so i made the choice went to doctor and now find out i have CD its not a death sentence just a change of lifestyle and decisions..
all the best and dont ignore it anymore go today or asap.
Good Luck keep me informed would like to know how you went.

painbegone
New Member


Date Joined May 2009
Total Posts : 7
   Posted 5/16/2009 6:13 PM (GMT -7)   
If this is CD, can it be treated by taking medication before I eat. Will I have to change my diet forever...not that I'm complaining if I had to.....I just physically and emotionally can't take the pain anymore. I'm reading no fruits, veggies, fried food, wheat, only lean meat and mostly band food. I also read no more carbonated drinks. Is this pretty much par for anyone with CD?

pinkymoo
Regular Member


Date Joined May 2009
Total Posts : 28
   Posted 5/16/2009 6:28 PM (GMT -7)   
im probably not the best person to ask because i have just been told last week that i have CD after being told after my colonoscopy week before that that i had ulcerative colitis which is a less severe then CD...
i am just about to see my specialist doctor in 2 days hopeing to be medicated, i have different symtoms then you do..
i have runny stool with white mucus most times, no stomach pain at all unles i need to go to toilet, ulcers in mouth, and a very sore butt lol...oh and loss of appietite
i am the type of person that loves all food hot cold spicy you name it but in the last week or so i have keeped my meals basic i have to have my coffee in the morning,toast, cup of soup or crackers
sandwich no cheese.
dinner could be anything from pasta or fish with cooked vegies or rice.. just try and keep it balanced and somewhat healthy....
i am reading some sites say fruit is ok others say no?? its depends if you find you eat say apple and you begin stomach pain straight away and a rush to toilet then you are rejecting it and i would stay away from it.
i am drinking flavoured water or cordial as i cannot stomach plain water but i was never a water drinker and i aim for 600mls a day at the moment but will increase it soon..
you need to drink heaps as you will get dry, i do around the mouth.
i hope my CD symptoms help you .

pinkymoo
Regular Member


Date Joined May 2009
Total Posts : 28
   Posted 5/16/2009 6:33 PM (GMT -7)   
oh and another thing is if you are a smoker try and quit i have been a smoker for 10 years and stopped i should have noticed that it agravates CD cause most times i lit up i would have to run to the toilet it was like a instant laxative bad...

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 5/16/2009 7:34 PM (GMT -7)   
Just throwing out here that tens of thousands of people have been helped by the Specific Carbohydrate Diet (SCD) that is explained in the book "Breaking the Vicious Cycle" by Elaine Gottschall. There's lots of online information for the SCD, too! I know it isn't the answer for everyone, but it helps many. It just might help you! It has been a God send for us! Best wishes!
Mom to 17 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium, vit. D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too.


painbegone
New Member


Date Joined May 2009
Total Posts : 7
   Posted 5/16/2009 8:01 PM (GMT -7)   
I don't smoke so that's not an issue. I need a list of what and what not to eat. Has someone posted something like this and if so, where can I find it. I hope it doesnt take too long to get into the DR.

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 5/16/2009 8:17 PM (GMT -7)   
For a list of foods that work for the SCD, including the starting, intermediate and advanced levels, see the tables near the bottom of this page:
PecanBread

pinkymoo
Regular Member


Date Joined May 2009
Total Posts : 28
   Posted 5/16/2009 8:29 PM (GMT -7)   
Hi again..

Firstly a well healthy diet regular excercise and enough sleep are the reccomendations ok
But food wise and what you can and cannot eat that depends on the individual i am also not sure on what we should be eating but i do know that i have a list that says.

Crohns patients should avoid the following foods and liquids:

-Dairy Products
-High fiber foods should be avoided during Flare ups
-Hot spicy foods
-Alcohol and Caffiene
-Foods containing saturated fats found in meat and dairy products. However some fats such as in fish oil may actually be helpful.
- Products containing corn or gluten those made from wheat, oats, barley.
-Foods, such as soy, eggs, peanuts tomatoes.
-Gas producing foods such as cabbage family Vegies ( Broccoli, cabbage, cauliflower and brussel sprouts) dried peas and lentils, onions and chives, peppers.
- Carbonated drinks ( so i would say Coke/Lemonade Etc
- Dried fruits or high sugar fruits such as grapes watermelon or pineapple
- Sorbitol ( its in chewing gum)

i am still researching these, look on internet too

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 5/17/2009 3:47 AM (GMT -7)   
Hi Firstly before you start changing your diet i would go to your doc and get some tests sorted out so that you can get a proper diagnosis they can then get you on meds and also advise you of what you can eat let us know how you get on hope you get it sorted soon Bev x

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 5/17/2009 4:39 AM (GMT -7)   
IF, and that is a big IF, because there are a lot of things that can be going on, it is Crohn's, you will need to be very careful with your diet while flaring. But when you are having periods of remission, you will be able to eat a more normal diet. The first thing you need to do is get an appointment with a doctor to being the process of finding out what is wrong. Depending on how long that will take, will depend on how much you want to alter your diet before hand. Certainly, you don't want to continue to suffer, but if you make drastic changes before tests can be done, it may affect the outcome of the tests and you may not get accurate results. So, in the meantime, try to eat soft, bland foods for a few days and see how you feel. Things like plain white fish, baked chicken, mashed potato, eggs, white bread, turkey. Basically think of things you would have if you were getting over a tummy bug, and eat those type of foods. If after a few days you are feeling better, then introduce more foods, and start keeping a food journal. Note how you feel after each meal, what you had, how it was prepared....

Please don't get too far ahead of yourself with worry. But do get an appointment set up and let us know how you are doing.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


painbegone
New Member


Date Joined May 2009
Total Posts : 7
   Posted 5/17/2009 10:22 AM (GMT -7)   
THANK YOU so much! I have the name of a Dr. that has been referred to me and I pray it doesn't take too long to get in. It's so strange to me that I will have the pains for say 2 weeks almost every night and then I'll go 2 weeks and I'm fine. This has been going on for years and I've finally reached my breaking point plus my flare ups are so much worse now. I can't imagine what I'll eat the rest of my life. I have not lost weight with this but I know everyone is different. I do have a lot of gas. Another ironic thing is that I have been going to weight watchers to lose 20 lbs for the past 2 weeks. I have been eating such a healthy diet and this is what happens to me. Just pray I get in to the Dr. ASAP. Thanks for all the support!

painbegone
New Member


Date Joined May 2009
Total Posts : 7
   Posted 5/17/2009 10:27 AM (GMT -7)   
All the foods to avoid is basically ALL the foods I eat. THis is scarey!

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4099
   Posted 5/17/2009 4:16 PM (GMT -7)   
Even if you have Crohn's, everyone is different about what foods they can and can't tolerate. Don't get ahead of yourself. I know it's hard , but you will figure this out!
50 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation

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