Beating myself up...

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Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 5/17/2009 9:37 AM (GMT -7)   
I had a colon resection Monday, released Friday and home later that day (3 hours in car).
I have waited to post mainly because I wanted to be able to think more clearly and digest some info.
I asked at pre-surgery assessment if I could take a sleeping pill the night before surgery and did, however I did not sleep. So I feel like every time I talked to either my surgeon or assisting doctor from just before surgery to the time I was released I had some kind of 'brain fog". I do remember the surgeon saying he was going in to remove the stricture in my sigmoid colon and I remember saying 'just put me asleep'.
They removed about eight inches of colon and was told that there was also about six inches of small intestine that showed some slight stricturing. They did not remove this and that is what I am struggling with. I would think that if I was awake on the operating table, I would have asked to have it removed? I know I went into surgery thinking that once the stricture was removed, there would be no disease activity at least for awhile.
Past colonoscopies have said in regards to terminal ileum 'subtle narrowing and ulcerations, no obvious stricture', 'possibly some very mild Crohn's disease in the terminal ileum, although the biospy did not really show significant inflammation', (2009-01-06) 'the rest of the colon and T.I. was normal', and lastly from a letter written by a fellow MD for my surgeon (2009-28-2009) 'the pateint indicated that she was told the last colonoscopy was able to go through the stricture and the terminal ileum was looking healthy without any evidence of disease'.
After surgery he said something about him thinking I would or could maintain this with medication especially since even the other stricture was not giving me any usual symptoms of CD. I do not like meds, especially the stronger ones and thought I could use a lesser drug for maintenance.
Like to think things happen for a reason and the only good thing I can think of right now for leaving the small bowel alone is is that I may have been  put into a false sense of security with this disease and maybe something Metho or something similar will be the most beneficial down the road. All for now.
55 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
Started weekly methotrexate injections 09/22/08.
Sigmoidectomy scheduled for May 11/2009


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 5/17/2009 11:31 AM (GMT -7)   
Don't know if you've heard this or not, but with Crohn's patients, surgeons are taught to "look for reasons NOT to cut" vs the usual patient that they cut when there's any sign that it could help. That being said, if you have a stricture that's not causing problems, sometimes it is best to treat you with meds and not surgery. Surgery can just make things worse by your body developing scar tissue, and you could get repeated strictures from the scar tissue.

Hope that helps. I have a surgeon who I completely trust, and he is very conservative when it comes to cutting on me. He's told me many times that if I was a "normal" person he would have probably done surgery for my obstructions (caused by scar tissue) rather than making me wait it out and hope it goes away with time.

I hope you're healing well from surgery and feeling better soon!
Becky

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05
Currently on Humira, Prilosec, Effexor, Seroquel, Calcium, Vit D, sublingual B12; phenergan, ultram, clonazepam as needed


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 5/17/2009 11:57 AM (GMT -7)   
My doctor tells me the same thing he does not want to cut me, he says just be relaxed and wait it out.
That is really hard but I think it is better than to have surgery, and if I did have to have surgery I would want them to take as little as they could.


Good luck in your recovery ;)
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Entocort, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 5/17/2009 12:37 PM (GMT -7)   

Thanks a whole lot, you don't know how much your comments mean. 

I knew there can be scar tissue from resection. And yes, he does know that I do not have the usual symptoms, it has been a topic of conversation at the clinic. I do like him and my GI and do want to have a continued good relationship. I have a follow up appointment with each and will address this as a learning curve and keep the communication and understanding open.

The hospital stay opened my eyes a little more to this disease and I am thankful every day how fortunate I am.

Actually doing very well, just went for a walk outside. Very little pain, very neat and low incision.  And hopefully be able to put this aside and get some better sleep.


55 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 5/17/2009 2:05 PM (GMT -7)   
It is frustrating to have an operation and they leave something out, but I am sure they know what they are doing and everything they do is in your best interest.

Just do what you said, ask them why they did this and I am sure you get some good answers..
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Entocort, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 5/17/2009 7:13 PM (GMT -7)   
I'm glad your up and walking, I was worried about you as I have not heard from you.
I thought I was going in to have about 8" taken out and they ended up taking 16-18" out. They did not know that I had a Meckals 3" away from the bad intestine and did not want to leave that in me even though it was in good intestine.
How do you feel?
Wasn't as bad as you thought?
Walking makes you feel better?
Glad your back!!! :-)
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 5/17/2009 10:52 PM (GMT -7)   
Wolfie, how have you been since your surgery? My only bad spot is the ileocal valve, and I've been pondering whether to let it be, or get it cut out.
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 5/17/2009 11:03 PM (GMT -7)   
Great to hear from you Bammer. I think they did the right thing. You'll be ready for curling season!
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. 10mg prednisone. Udo's Choice Probiotics (30 billion). Can't tolerate any iron supplements or infusions.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/18/2009 1:25 AM (GMT -7)   
Bammer, I'm concerned to hear about your lack of sleep. How long has this been going on? Do you have trouble falling asleep, or do you wake up early in the morning, or do you feel as if you just lie there all night and never really achieve proper sleep?

Sending you lots of healing vibes,

Ivy.
Co-Moderator Crohn's Forum.

New meds thread


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 5/18/2009 4:39 AM (GMT -7)   
spookyhurst said...
Wolfie, how have you been since your surgery? My only bad spot is the ileocal valve, and I've been pondering whether to let it be, or get it cut out.

 

I've been okay, just can't eat what I used to. We went out last night for my wife's b-day and I'm really paying for it today. Nausea,and major butt hurting "D"

I had a couple fried mushrooms, piece of bread. french onion soup, blackened red snapper with a half rack of ribs and mashed garlic potatoes. I did have two martini's and wonder if i can't tolerate alcohol anymore.

I did not finish my dinner and came home with a doggie bag.

Thanks for asking


Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 5/18/2009 9:05 AM (GMT -7)   

Feeling better faster than expected. And looking back, wasn't that bad.

We have 7 acres so can walk outside except it is snowing now. Do use my treadmill at a very slow pace. It feels better to keep moving although the couch looks inviting.

Rider Fan - Wasn't worried about curling, want to be golfing and will be. Have been doing a tournament for Breast Cancer with the same four girls for five years now. It is the end of June and one girl has Crohn's had  a resection beginning of May last year.

Ivy, I am going to address my sleep issues. It is not always a problem as I think I function quite well with less sleep than some, cannot go to sleep very early and now if I can sleep in, it's better. Maybe it's anxiety, good or bad. Do dwell on things and have conversations in my head with people over and over. Will get past this. 

Wolfie - I was hoping to eat some things that I couldn't before. Both doctor and surgeon said no diet restrictions but I don't necessarily agree with that for anyone.
 
Thanks guys and girls,
55 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/18/2009 11:39 AM (GMT -7)   
Bammer,

Its okay to walk on the treadmill for a little bit, but don't over do it. Walking is good at waking up the intestines. But it is also good, to make sure you get adequate rest. Remember you just had major surgery.

Good luck,
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 5/18/2009 12:35 PM (GMT -7)   
Thanks Nanners, No, I won't overdo it on the treadmill. My body feels good from neck down but my head feels like it's a extra 10 pounds. I am thinking it is still from the effects of the drugs but yes I should probably rest more as well.
55 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 5/18/2009 4:12 PM (GMT -7)   
Ahh yes, the heavey head feeling. It took about a week or before the fog lifted.
Snowing? Where do ya live Alaska. I didn't want to hear that word until December, everything just started to turn green and now the trees have leaves again.
Go slow with the foods, I also kept a journal and wrote down what I had for breakfast,lunch and dinner and when and how many bowel movements I had. It helps when you go to the doctor too.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 5/18/2009 5:03 PM (GMT -7)   
Alberta. Always snows sometimes in the May long weekend. Sunburn one day, snow the next. Yea, taking it slow with the foods. I thought about writing a few things down but I wonder how long it takes to effect you if it does? I know there was a thread about this awhile ago. Get confused with the fibre thing. Have been on low fibre diet with stricture but think I should add more fibre now? Do not normally have D and have had some formed stools already.

55 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009


Curly9878
Regular Member


Date Joined Apr 2007
Total Posts : 165
   Posted 5/18/2009 6:23 PM (GMT -7)   
BAmmer, how long were you in the hospital and how long were you off work?
30 years old.
Single, probably always will be...  In fact, I bet I become "the cat lady" of the neighborhood...  Only thing is, I am not a fan of cats.    
Oh and as an added bonus, I am a FAT girl with Crohns...  
I am getting ready for my first resection....   My mom always said my beauty was on the inside...   sooo what does it mean when my insides are a mess???   Thanks mom!  I bet I inhereted Crohns from your side of the family.  
NO GUTS-NO GLORY!!!    So, once I get my guts removed...   My "Glory" days are over....
 
That about sums me up!
 


Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 5/18/2009 8:06 PM (GMT -7)   

Curly9878, I had surgery Monday and was out Friday. Another guy in the hospital had his 5th resection on Monday but he was still there Friday. He had had bowel movements I had not, different surgeons.

My husband and I have had our own business for 31 years and run it out of our house. We have slowed down and business is slow so that is not a problem for me.


55 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009

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