My colonoscopy/endoscopy experience with the new GI

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Bluize
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Date Joined Mar 2005
Total Posts : 635
   Posted 5/19/2009 7:42 AM (GMT -7)   
Update: the doc left a message today (wed) on my vmail.  I missed the call.  She said mild to moderate inflammation in the small intestine above the surgical site and at the surgical site.  Also scattered mild inflammation in the colon which is pretty consistent with my symptoms.  She said she would try to call me later (she's scoping today) and I called and left another message for her.  I also made an appt to sit down, look at photos and come up with the right medicine strategy.  It's not much different than I thought before but since she's my new doc, she needed to see it for herself.   I'm thinking first line meds will probably be the way to go but she may be more aggressive.  I will update later if I have more info.  Thanks for reading along.
 
ps..she apologized for not getting back to me sooner.  She's somewhat redeemed.
 
 
 
I hope someone can talk me off the ledge about this.  I'm pretty annoyed.
 
I had a 3pm appointment.  That's way late but I had no choice if I wanted an anesthesiologist.  I had it done at Cornell.  Big fancy teaching hospital.
 
My doc arrives one hour late.  I'm already starving, nervous..freaked out.
 
I wake up in the middle with pain.  I'm sure they upped my dose because the next thing I know I'm waking up. ...on a different floor.  My husband had to be told to go to another floor to meet me.  I had no clue that was going to happen.
 
I'm waking up and my husband comes to meet me.  I ask for the doc.  They call down to find out she's already left.  I asked the nurses if everything was ok and she said yes.  Continue with my meds. (antibiotics). 
 
What????????
 
I put a call into her office this morning and I'm still waiting to hear.
 
I never had this experience before.  Maybe this is ok?  But I'm a bit pizzed off.
 
I was given propofol and versed.  I was never given versed before with propofol but I woke up to an IV in my arm which was put in before and one in my hand which must have been done while I was semi-conscious.
 
 


Susan
 
28 years with Crohns in the term ileum.  Feb 07 Resection.  No meds currently..but there will be some I'm sure. Taking acidophilus.

Post Edited (Bluize) : 5/20/2009 9:39:29 AM (GMT-6)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/19/2009 8:11 AM (GMT -7)   
I would definetly have done the same as you and put a call into the doctors office. I think the doctor may not have stayed around to talk to you because you were so sedated. Still they could have talked with your husband. So I would wait to hear from your doctor. I would keep bugging them too:)
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Bluize
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Date Joined Mar 2005
Total Posts : 635
   Posted 5/19/2009 8:13 AM (GMT -7)   

ok, I was sedated.  Probably a whole lot since I woke up and I was having two procedures.  From start to finish the whole thing took about 50 minutes.

There were no instructions such as call your doc tomorrow or anything.  The nurse just told me what to do, what not to eat and to take the meds I had.

I feel like I wasn't even a participant in this.

 

 


Susan
 
28 years with Crohns in the term ileum.  Feb 07 Resection.  No meds currently..but there will be some I'm sure. Taking acidophilus.


karendee
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Date Joined Mar 2007
Total Posts : 1642
   Posted 5/19/2009 8:26 AM (GMT -7)   
Susan, that is not right. I even sign docs so my Husband can talk with the Doctor. Mine comes in very briefly but he also prints out pictures and reports for me to take home. I could not imagine him not speaking with me at all.

I had to change Dr's cause mine moved. So you have me worried I won't have the same great bedside manner in the new Doc.

Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica

 

 


Bluize
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Date Joined Mar 2005
Total Posts : 635
   Posted 5/19/2009 8:34 AM (GMT -7)   
yeah, no warm fuzzies here.  My other doc is wonderful and always comes to my bedside.  I had no idea what to expect and now I know I should have asked.
 
I feel like an idiot.
 
I guess it was nothing too dramatic if I haven't heard yet but still I should have known something walking out of there.
 
Has anyone woken up in the middle with pain?
 
 


Susan
 
28 years with Crohns in the term ileum.  Feb 07 Resection.  No meds currently..but there will be some I'm sure. Taking acidophilus.

Post Edited (Bluize) : 5/19/2009 9:39:51 AM (GMT-6)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/19/2009 10:10 AM (GMT -7)   
I wake up all the time in the middle of my c-scopes and thats even when they have given me extra meds. I hate having such a high drug tolerance that I can't even enjoy being knocked out for a scope:(

We just a had post recently about whether to be put out or not. Some folks like to watch (shudder) and others are the same as you and I, PUT ME OUT!!!

Hugs
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

MikeB
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Date Joined Mar 2006
Total Posts : 1169
   Posted 5/19/2009 10:11 AM (GMT -7)   
Well this may not be what you want to hear, but here goes. You indicate that you requested an anesthesiologist, which is not usual with scopes. You also indicate you had both versed and propofol, which is also not standard, and sedated you far beyond what is usual. The fact you woke up with an extra IV in a different area also indicates that you were deeply sedated and probably had to be moved to a more intensive post-op monitoring area. To have done otherwise wold have been irresopnsible on the part of the hospital. The time was also shifted to accomodate your request for extra sedation, likely away from the times the GI normally does scopes, and which may have conflicted with her office hours. If it took you a good time to wake up -- which it apparently did -- you can hardly expect the GI to sit around for an hour waiting on you. And various privacy laws and the constant threat of nonsense gold-digging lawsuits also cause many doctors to be wary of discussing findings with anyone other than the patient, which would explain the no-info for your husband. I expect you will get a full report from the doctor soon. Overall everything you report can be traced to your requested extra sedation and the resulting unusual circumstances surrounding what is usually a simple procedure. And as for waking up mid-procedure, it is very common, since scopes are done under concious sedation, not a general anesthetic. It sounds to me like the GI went above and beyond to accomodate your needs and that you are now complaining about the results of that action.

Bluize
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Date Joined Mar 2005
Total Posts : 635
   Posted 5/19/2009 10:32 AM (GMT -7)   

well Mike, I have had many colonoscopies and they have always been done under propofol.  This doc originally wanted to semi sedate me with versed and demerol.  I opted for an anesthesiologist so I could be put out.  I asked the doc if I would be out and she said yes.  I will be out completely using both drugs.  I was only out for 50 minutes according to the nurse and the clock on the wall.  I had two procedures.  I have had this done before and my other GI always was there when I woke up to give me the gist of what he found and showed me pics.

She arrived an hour late.  Said 3 words to me, I signed a consent and then i was out only to awaken with pain.  (Not out, I was not properly sedated).  Complete sedatation is common..it's as common as the semi conscious sedation.  I was in a regular recovery area with others who had a colonoscopy.  The nurse gave me instructions, my husband signed me out and they tried to reach the doc and she was gone.  Her office hours are until 5 and this was 5:10.  She does procedures on Monday and Wed.

This is the first time I have ever experienced a doctor being an hour late to a procedure without even an apology knowing how awful prep and a clear diet can be for 2 days.  I find it appalling how my time was disregarded as a patient.  Even more, not giving me or my husband who is my health care proxy any information.  He didn't know to meet me on the other floor.  He thought something might have been wrong.

I requested nothing out of the ordinary.  This might be the way they do it there, but they didn't give me the info I needed.

 

 

 

 


Susan
 
28 years with Crohns in the term ileum.  Feb 07 Resection.  No meds currently..but there will be some I'm sure. Taking acidophilus.


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 5/19/2009 2:09 PM (GMT -7)   

MikeB, Evidently not all hospitals agree with you about what is typical for a colonoscopy. At Englewood Hospital an anesthesiologist worked with my daughter when she had her scope done in 2006.

The tone of your post is a tad off-putting.


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 5/19/2009 3:07 PM (GMT -7)   
And, Mike, I've had a scope w/propofol (diprivan), you are AWAKE and alert much much faster w/propofol than w/versed. I would question WHY both a sedative AND the propofol? I'm wondering if doing both procedures had something to do w/the length of time Bluize had to be "under" and maybe started w/one and switched to the other between procedures.

I would be asking a LOT of questions. And INSISTING on an office appointment SOON for the answers. No need to get nasty, but certainly darn FIRM on an appointment w/answers. Since my gastro will be late for her own funeral (we are kindred spirits in that regard) I wouldn't be at all surprised at her being an hour late by 3 in the afternoon. I would expect it. Heck, one of my scopes I was her first patient of the day and she was 45 minutes late!

My gastro is only in the office on Mondays and sometimes half days on Wednesdays. The rest of the week she is doing procedures. Well, Friday she is off period. No procedures, no office. And she can't keep up w/her office appointments. I've told her more than once, these "well visits" every 6 months are assinine when her patients can't get a timely appointment when they are sick and their Crohn's or whatever is acting up. Quit w/the "well-visits" and have some TIME for your SICK patients WHEN they are sick!


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Post Edited (CrohnieToo) : 5/19/2009 4:10:07 PM (GMT-6)


pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 5/19/2009 3:39 PM (GMT -7)   
My gastro tends to always run a little late because he takes his time, and explains everything to newbies.I ask to have the procedure as early as possible,and scheudle it a year in advance.
My old gastro was very short with my wife so I got a new one, and I asked him to explain every-
thing to her.(I'm out cold)Bedside manner is everything to me and my wife.Oh how it stinks to
change Dr.'s,I feel for you...
diagnosed 1981
remission until 2006
Remacade,resection
B-12,Pentasa,Loperamide,
Entocort, 6mp,Hydrochlorothiazide
Remission since surgery
and 8-week Remacade.
d since 1981(enjoy the look
on Dr's faces)


Bluize
Veteran Member


Date Joined Mar 2005
Total Posts : 635
   Posted 5/19/2009 6:10 PM (GMT -7)   
still no call from the doc. I guess I will have to make an appt and pay a co-pay?

I found out the 3rd floor thing was on my instruction sheet but I was so concerned with the prep instructions I must have missed it.

The office said she was running way behind yesterday and then had to do another scope or come back to the office for a patient.

She is the only one in her group that accepts insurance and I bet she is overrun. It's possible her senior colleagues that don't accept insurance advise her to do their scopes if the patient scoffs at the charge. Who knows.

All I know is that this was very different from my last experience. Also, I think the IV in the hand had to do something with my vein collapsing in my arm. The bandage was bloody when I removed it. Maybe that's why the sedation wore off because my vein collapsed and then had to re-administer through my hand.

I'm speculating but it makes sense.

So I wait. This is frustrating. smhair
Susan
 
28 years with Crohns in the term ileum.  Feb 07 Resection.  No meds currently..but there will be some I'm sure. Taking acidophilus.


Bluize
Veteran Member


Date Joined Mar 2005
Total Posts : 635
   Posted 5/20/2009 8:39 AM (GMT -7)   
bumping for the update.
Susan
 
28 years with Crohns in the term ileum.  Feb 07 Resection.  No meds currently..but there will be some I'm sure. Taking acidophilus.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 5/20/2009 10:32 AM (GMT -7)   
With the Holiday weekend coming up, I would be insisting on hearing from the doctor before the start of the weekend. But that's just me. I get very upset waiting for results and jumping every time the phone rings. Can you phone the office and "ask" when you can expect to get your results?
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Bluize
Veteran Member


Date Joined Mar 2005
Total Posts : 635
   Posted 5/20/2009 11:40 AM (GMT -7)   
Zanne..read the update in my first post in green.  I should hear from her today again if not early tomorrow.
Susan
 
28 years with Crohns in the term ileum.  Feb 07 Resection.  No meds currently..but there will be some I'm sure. Taking acidophilus.


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 5/20/2009 1:28 PM (GMT -7)   
Glad she called. She should have done it sooner but at least she called.
 
My new Doc is not as quick at getting back to me and I get frustrated but he is also extra busy because he got my old Doc's patients when he left the practice.
 
Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica

 

 


Bluize
Veteran Member


Date Joined Mar 2005
Total Posts : 635
   Posted 5/21/2009 8:59 AM (GMT -7)   
I spoke to her today.  I have some moderate inflammation in the neo ileum and some mild scattered in my colon.  She is going to keep me on the antibiotics and add Lialda and another first line med.  She will also recommend something topical for the rectal inflammation and she said she saw some evidence of healed ulcers there.  Now it's just mild patchy inflammation.
 
I see her next week to see pics and get the pathology results.
 
She thinks this combo of meds should really help.  I can stay on the meds through a pregnancy which is good too.  That was the whole point of doing this with a doc who knows about crohns and pregnancy.
 
Of course if I get pregnant I won't be on Cipro.  That's a no-no for pregnancy.
 
I will cycle again in July and hopefully by that time I will have some sort of remission and able to go through IVF and hopefully if the moon and the stars are in alignment a healthy pregnancy and a healthy baby.
 
I woke up twice at the beginning of the scope and it seems that my vein wasn't cooperating so they ran another line in my hand.  Thankfully the anesthesiologist was on top of it.  The doctor and I both agreed that it was best to use this method of sedation and it will be noted in my chart for the future. (if they ever catch me again to do another scope) tongue
 
I didn't remind her she was late or anything..I figured, what's the point?  I don't want to be labeled that problem patient.  She did say that my prep was excellent and she was able to see everything.  Well I was totally cleaned out and had liquids for 2 days. 
 
My endoscopy was fine and there was nothing going on.  I told her I get wicked indigestion and she said we can talk about a short course of something to help with that but she wants to concentrate on the crohns issue which is more pressing.
 
Glad she called and I got the info.  Hopefully these meds will help and I will avoid future surgery.
 
Thanks for reading. smilewinkgrin
Susan
 
28 years with Crohns in the term ileum.  Feb 07 Resection.  No meds currently..but there will be some I'm sure. Taking acidophilus.


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 5/21/2009 9:20 AM (GMT -7)   
Good Luck with the baby making!!! I wish you success and hope to see you posting you are pregnant !!
 
Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica

 

 


Bluize
Veteran Member


Date Joined Mar 2005
Total Posts : 635
   Posted 5/21/2009 12:06 PM (GMT -7)   
Thanks Karen.  I will certainly keep you posted.
 
I praying real hard.
Susan
 
28 years with Crohns in the term ileum.  Feb 07 Resection.  No meds currently..but there will be some I'm sure. Taking acidophilus.


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 5/21/2009 5:05 PM (GMT -7)   

This kind of treatment I think is unfortunately quite common in public hospitals in Australia. I had a surgical procedure of insertion of two setons a month ago and was not spoken to by a dr afterwards, I was simply sent home. I understand this is because the surgeons are extremely busy and are in surgery all day. It was scary to be sent home without being consulted on what happened in the theatre but I also understand that these medical professionals are extremely busy and time-poor. I guess since nothing was ‘snipped’ and it wasn’t surgery then they felt your follow-up would be a soon enough time to brief you on what they found during the colonoscopy.

 

It can be very scary and frustrating but I have come to learn this is the way of the medical system and not much can be done about it. I had surgery the day before yesterday and was lucky to have some Q’s answered following surgery but of course now I have so many more Q’s I wish I’d asked! And I only had someone to follow up following surgery because I demanded it before I went in. otherwise I would have just been sent home…


Bluize
Veteran Member


Date Joined Mar 2005
Total Posts : 635
   Posted 5/22/2009 7:45 AM (GMT -7)   
Phoeb you are right.  It was very routine but my other doc always spoke to me after.
 
I do have some moderate inflammation going on with some friability.  when she biopsied it bled for a bit.  All is fine now but I am still a bit sore and crampy.
 
The endoscopy suite nurse told me before that they would follow up with me the next day to see how I am and that never happened either.
 
When I see the doc I will let her know how different of an experience this was from my previous ones.
 
When I had my CT a few weeks ago there was also some drama.  The radiologist and the gi were on different pages about what kind of CT I needed.  She wanted me to have a CT enterography and the radiologist thought I only needed a pelvic and abdominal.  They kept me waiting in the waiting room for 30 minutes while they duked it out.  Silliness.  Then there was a power surge and they had to re-boot the machine (and we only have one machine?)  The tech couldn't get the contrast in my vein..had to use another vein (notice the theme about my veins?)  I warned them and my veins are really not that bad, it's just when you are dehydrated it's harder to make it work.
 
So far the experience with the testing with this GI has not been smooth and first is my health but I am a customer and I want to be treated with respect as a human. 
 
This GI came highly recommended so I'm inclined to chalk it up to sh!t happens. 
Susan
 
28 years with Crohns in the term ileum.  Feb 07 Resection.  No meds currently..but there will be some I'm sure. Taking acidophilus.

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