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Easier2Run
Regular Member


Date Joined Nov 2008
Total Posts : 62
   Posted 5/19/2009 8:22 PM (GMT -7)   
Just have to vent for a minute. I called up one of my best friends today because I feeling just a little depressed. I've been under alot of stress latley and as a result, my crohn's has flared up.... every day for about 2 weeks now. We ran some errands together and she asked me what I was depressed about and I told her that my crohn's has been bothering me.. just getting kind of sick of feeling sick, ect. She looked at me and said, Heather, you have everything, you always get what you want, your family is weathy, you're pretty, you're skinny. I don't get what the deal is, why are you depressed. I was so pissed, my reply was, that doesn't take away the fact that I have a chronic disease that cannot be cured and it doesn't take away the fact that I feel like crap everyday. I'd rather be dirt poor. I was stunned only because she's a nurse, and I suppose I just expected more understanding, and the fact that I get everything I want and that my dad is wealthy is completely untrue. We all work hard for what we have. Ugh. I often feel bad for my dad. He has a good job and worked hard to get where he is. I feel bad when I have to pick up my medications every month.... theres about $800, when he has to renew health insurance every year... all the doctors visits, the time, ect. We've had to cut back on things at home... as I'm sure everybody has had to do. I guess I just expected more. I feel so alone sometimes.

BUTTTTTT on a happy note, I was at my GI doc office, and they had this magazine that just came out called, CROHN'S ADVOCATE. Its all about Crohn's, features questions, real life issues, ect. FINALLY! I was so thrilled! I signed up for the complimentary subscription! I would highly recommend it!
-Heather, 23 yrs. old
____________

- Crohns disease since 1995, officially diagnosed in 2003.

- Bowel resection in Dec. 07, Crohns reoccurred July 08.

- Medications - Entocort 9mg, Wellbutrin SR 150mg, Lexapro 20mg, Bentyl 10mg, Levsin, Trazadone 50mg, Humira


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 5/19/2009 8:26 PM (GMT -7)   
I'm so sorry that happened....it's amazing how people fail to see the pain you're going through for artificial reasons. Have you tried talking to her about the implications of what she's saying?
It's said to think that she's a nurse and can't understand how debilitating this disease is...
I'm sending good thoughts your way. I hope things get better.

Good to know about the magazine too :)
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 5/19/2009 11:00 PM (GMT -7)   
I guess it's up to us to help people understand this disease. There is so much misunderstanding it boogles my mind. Yea, you would hope a nurse would get it but obviously she's young or dumb and didn't listen in school. A lot to learn. Ending on happy notes is the only way I know to keep ahead of the depression that can engulf us in this sickness. God bless.

HM
Regular Member


Date Joined Sep 2008
Total Posts : 211
   Posted 5/20/2009 7:14 AM (GMT -7)   
It seems that perhaps your friend is a little stressed and depressed as well. I am so sorry she didn't support you the way you needed to be. I completely can relate, as it is hard to explain just how as a person with crohns deals with things. I live in a small town where there is no support groups or anything. I have found one other person (my sons teacher) who can relate, however he lives 40 minutes away. It is just frustrating on a daily basis. This board has been a great comfort to me although I don't post all that much. I do read it on an almost daily basis. I have used the advise given on here to help me with my disorder. You are not alone and I will add you to my prayers tonight.

Take care!

36/f   proud single mom of 2

Diagnosed with GERD/Acid Reflex 2002

Diagnosed with IBS 2007

Diagnosed with UC, then Crohn’s 2008

Current medications: Imuran 50 mg daily,Endcort 3mg 2X daily, Pentasa 2 500mg caps 2X daily, Prilosec 20 mg 2X daily (if needed), Probiotics, Calcuim/Mag/Vit.D. Flinstones multi with Iron and Vit. C 500mg daily


aronk
Regular Member


Date Joined Jun 2006
Total Posts : 229
   Posted 5/20/2009 7:42 AM (GMT -7)   
I'm sorry for you.. I can defintely relate. 

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4095
   Posted 5/20/2009 9:04 AM (GMT -7)   
What I have found is that it is not necessarily my best friends who understand about this illness.  I pick and choose who I share things with, according to their reactions.  There is a mom on my daughter's soccer team who knew nothing about Crohn's, but had breast cancer, and she ALWAYS asks me how I am.  It is great to know that she is there for me.  I do go to this forum, especially when I'm not feeling physically well or feeling depressed.  I also live in a small town, so it is just nice to have "Crohnnie friends" here on the board.  It takes away the feeling of being so alone.  Some people just don't understand chronic illness...I just try to accept people for where they are and move on.  Sending you big HUGS!
50 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 5/20/2009 10:20 AM (GMT -7)   
I guess that's why I come here. No one else really gets it. I have been blessed with a wonderful husband who has been very lucky to work in an industry that has not been affected by the economy (yet), two wonderful daughters, a lovely home, and I have the luxury of working part time doing something that I enjoy. But still there are days that I just feel down right crappy and coming here helps. All the best friends in the world and family can't understand what we go through and how it can take an emotional toll on us. Last week alone I had gone to 6 doctors appointments by Wednesday afternoon. While we might not technically be "depressed", we still have our down days and need to vent. So feel free to vent away, we get it!
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 5/20/2009 1:18 PM (GMT -7)   
I'm quite fortunate as in I have  lot of people in my life who are very considerate and caring towards me when I'm sick.
 
BUT theres also several people who just didn't understand and were really inconsiderate at times and its damaged friendships. I'm at uni and living with friends but I think the worst bit is I try so hard to not show when I'm ill and get on with things but of course if your throwing up and having diarrhea 10+ times a day as well as being anaemic and doped up to the eyeballs on tramadol and still in pain its darned hard to put on a brave face and I tried SO hard to still be friendly and do my bit and it just got thrown back in my face by one of the girls I lived with who was very nasty to me, and even one of the ones who was always very sweet to me said they don't like living with me when I'm ill but that they love me when I'm well. I was so hurt and offended especially after all my efforts to try and not let it affect them. Next year I've opted to live with strangers so that I can have my own bathroom and not bother anyone if I get ill again seeing as its apparently sooo inconvenient for everyone. Sorry that turned into a bit of a rant there!
 
 


Curly9878
Regular Member


Date Joined Apr 2007
Total Posts : 165
   Posted 5/20/2009 6:50 PM (GMT -7)   
I hate people.
30 years old.
Single, probably always will be...  In fact, I bet I become "the cat lady" of the neighborhood...  Only thing is, I am not a fan of cats.    
Oh and as an added bonus, I am a FAT girl with Crohns...  
I am getting ready for my first resection....   My mom always said my beauty was on the inside...   sooo what does it mean when my insides are a mess???   Thanks mom!  I bet I inhereted Crohns from your side of the family.  
NO GUTS-NO GLORY!!!    So, once I get my guts removed...   My "Glory" days are over....
 
That about sums me up!
 


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 5/20/2009 7:25 PM (GMT -7)   
I've got a guy at work and all he does is whine about his life and not being able to to do things financially. I said to him that I would trade places with anytime and he can deal with my disease. His problems can be fixed mine can't.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

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