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LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 5/19/2009 8:56 PM (GMT -7)   
Just posting to commiserate with anyone wanting to vent with me.

Let's see...so far:

My Crohn's is acting up from a lacking soft diet and heavy antibiotics

It's that time of the month

My mouth is still sore from having 4 wisdom teeth cut out

I can barely eat because of said procedure but am craving everything like mad because of my period and increased steroid dose implemented for the operation

I am having to simultaneously deal with trading in a car I cannot afford while find a new one AND looking for insurance options since I had it under my father as long as he was working with Amstar (he came home Saturday).

My saving grace? Amazing pain pills and really sweet boyfriend.
I know I'm not supposed to be eating brownies, but they are one of the few soft comfort foods I can get down...although I doubt they are helping with the Crohn's at all.

Did I mention my mouth hurts? I hope these stitches come out soon :)
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 5/19/2009 11:04 PM (GMT -7)   
You have to get the stitches out? It seems like mine just dissolved. How is your jaw feeling?

Tomorrow I have to break in a new PCP because my old one went and dropped my insurance. Grrrr. Then on Friday I get to go to the allergist and spend a couple hours letting them scratch and prick me. Actually, I'm kind of looking forward to that because I'm hoping to come up with some answers about what foods I need to be avoiding (I think I might be allergic to bananas, among other things).
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 5/20/2009 1:47 PM (GMT -7)   
Ouch! tough time for you! I hope yo do feel better soon. When I had my wisdom teeth out I ate grilled fish. I just broke off little pieces... it was a nice change!

feel better!
Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica

 

 


lenagirl
Regular Member


Date Joined Aug 2007
Total Posts : 44
   Posted 5/20/2009 5:58 PM (GMT -7)   
I can definitely relate. I just had all of my wisdom teeth cut out last month and I used it as an excuse to have milkshakes and pudding, which other than that I've been avoiding because of the sugar. The pain only lasted for like a week, and the stitches came out (dissolved, really) about a week after that, but I've still got big holes in my mouth.

As for the pain meds, my GI never gives me pain meds even though my pain gets pretty bad, and it was really nice to be on them for my mouth because it meant a week where I had basically no abdominal pain at all, even with the milkshakes.

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 5/20/2009 6:07 PM (GMT -7)   
No pain meds? I'm sorry..that must be really terrible sometimes :( I'd share with you if I could.
When did you start eating regular food again? I'm still on soft stuff though I did cheat with french fries today. The ketchup was probably a bad idea.

It really is a good excuse to be eating sugar though >_>
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 5/21/2009 4:16 AM (GMT -7)   
Sending you a (HUG) LMILLS. I hope you feel better soon!
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 5/21/2009 7:21 AM (GMT -7)   
Just wanted to give you a word of caution about trading in the car - Often the car is no longer worth what you owe and you can't just "give it back."  When you trade it in for a cheaper one they take the difference from the trade in and what you owed and roll that onto the loan for the next car.  Then, you are starting out upside down on that car.  It may end up breaking down before you have paid it off and you wind up getting another car while still owing a ton.  It is a viscious cycle so just be careful.  I understand if you can't afford it you can't afford it, but make sure you aren't setting yourself up w/ debt you can never get out of.  We kind of inadvertantly got in that position.  I have been driving a paid off car for years. My husband, is a different story.
 
His parents gave him a hand me down SUV that was paid off.  It started having recalls and safety issues.  The back window fell out on the highway.  I agreed we had to get rid of that car.  We traded it in for a truck.  After driving it a month he realized the truck was too small for his 6'5" body and his head was hitting the ceiling, etc..  Why he didn't realize that on the test drive, I will never know.  So that one went back and we got a great deal on an SUV.  We both had jobs with no snow days and needed to get to work so we thought it was great.
 
Then gas prices sky rocketed and SUV's plummeted in value.  He ended up finding another job 45 minutes away. The SUV was no longer a sensible solution.  It took too much gas and gas was too expensive.  We could afford the car, not the gas.  We found another cheaper car but what we could get on trade for the SUV and what we owed differed by about $5,000.  They just rolled it into the loan on the next  car.  The next car is a piece of junk and has needed all kinds of work.  We really need to get rid of it.  But now we owe about $8,000 more than what it is worth.  We are looking to get a direct trade.  An old car priced at the same amount as the one we are trading in.  We are going to only do a 3 year loan so we can finally pay off the difference and be even again.  It is a mess.  We can't even give the car away because of how much we still owe.  Just don't get in that situation!
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 5/21/2009 7:48 AM (GMT -7)   
Oh believe me, Fitzy, we have considered that...I really don't want to be in that situation at ALL, but right now our car is 430 a month, and that is just impossible! We're still not completely sure what we're going to do yet, but I will definitely take into account what you've said. It's wonderful to get advice on these things since it's the first car I have ever 'owned.'
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 5/21/2009 10:20 AM (GMT -7)   
Well hopefully you have a really nice car and can trade it in at a decent value and get something cheap but reliable like a hyundai and not wind up rolling over too much debt while still lowering your payments.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 5/22/2009 10:11 PM (GMT -7)   
I went to the allergist today. My back is one big swatch of itchy welts now! I'm apparently allergic to every tree, weed, and grass in the free world. In addition, when I eat things like bananas, my body confuses the protein with the pollens I'm allergic to, and reacts to that too. I've been trying to get my PCP to send me to an allergist for years, but it took a bad reaction to cashews for him to finally agree to it. Thank goodness! Now I can start getting allergy shots, which should help me out quite a bit. Unfortunately, I seem to be allergic to most nuts, but my allergist said to go ahead and keep eating almond butter since I'm not reacting to it. But am I ever itchy tonight. And I can't reach the itches to scratch them smhair!
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 5/22/2009 10:30 PM (GMT -7)   
WOO HOO RANT TIME!
On Tuesday wrote off my car when a "person" decided to run the red light. Still haven't heard anything from our insurance company...who by the way insure's our 2 houses and 4 cars. BLA.
On Wednesday, had yet another colonoscopy with tattooing. I've finally been approved for a complete rectum removal and a colostomy.
Have lost about 9lbs in 2 weeks because I can't keep anything down.
Had to go into emerg (anyone ever been in emerg in Canada????? wait on a uncomfortable chair for 5 hours...) for a possible blockage, was a stricture. This was 2 weeks ago.
Had to stay home today from work because my back is sore from the accident.
Had my husband crawl into bed with me and cry because he couldn't do anything and "you are sooo skinny Allie, please eat something" He has decided he will feed me Boost and Ensure when Im not paying attention.
And last but not least...Im wide awake because I slept all darn day! LOL
-Allison
RX Crohn's 1999, over 30 surgeries, 3 strokes, still kickin!!
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 5/22/2009 10:37 PM (GMT -7)   
Wow Allison, my itchy back is nothing compared to what you're dealing with! (((Hugs)))
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/23/2009 8:11 AM (GMT -7)   
Lmills can you possibly try to refinance your car? You could get lower payments that way. Just a thought, of course that is unless, the car doesn't run well.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

omigrandma
Regular Member


Date Joined Dec 2008
Total Posts : 57
   Posted 5/24/2009 5:44 AM (GMT -7)   
Dear Allison, my thoughts and prayers are with you. I hope that your surgery is safe and successful. When I read things like what you are going through, I feel guilty complaining about myself.

Good luck, Omigrandma, Darilyn

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 5/24/2009 11:24 AM (GMT -7)   
My heart goes out to all of you...I'm just glad we have a place vent..
I have only had itching as a side effect from anesthesia for two days so I can barely imagine what you are going through. That is just terrible! I hope you get some relief soon.

And we want to refinance or well, anything, but our credit is not so good at the moment and we only have had it since last August. Apparently that isn't enough time to the car dealership to change anything, but we're going to go in and try nonetheless. I doubt they would want anyone bringing the car back in because that would mean all of us losing money.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 5/26/2009 3:21 PM (GMT -7)   
Am just happy to have a place to rant. I love reading other's stories/info because it makes me realize that I am not alone. And really, it HAS to get better right?? *grin*


-Allison
RX Crohn's 1999, over 30 surgeries, 3 strokes, still kickin!!
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 5/26/2009 4:02 PM (GMT -7)   
I really do believe it always gets better. Of course there was a study done recently showing that people have a natural tendency toward optimism and that it increases with age. I'd like to think that they're right.

As for today? I let my doctor draw blood to save a trip from going to a hospital, and I learned two things any patient should know before having anything done with a needle:

1)Always, ALWAYS have a nurse stick you instead of a doctor.
2)Request a butterfly needle.

I failed to do both today and can barely use my left arm! I've been stuck god knows how many times and have never had a problem, but today was the worst haha...in a good way too because I really can't help but laugh. He is such a nice doctor I can't be angry.

You know what does get me down though? Having 800+ worth in bills due in a week but only having about 40 dollars left. We'll see how this goes I suppose!

I hope you're doing all right today...it's nice to have people to rant with that really understand.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."


Sylph
Regular Member


Date Joined May 2004
Total Posts : 362
   Posted 5/26/2009 6:35 PM (GMT -7)   
LMills,

I just have to give you a hug so <<hugs>>

First the bright side: Since we don't eat much we really save on the grocery bill!

Seriously though I've been there, I understand, and it's when I found God. I don't usually bring it up because I don't like to be preachy, no one should have religion shoved down their throat, but it made a difference for me. Even if I don't understand why he can't just heal me.

For refinancing your car, have you tried taking the remaining debt to a bank instead of to the car dealership? In my experience they give a better interest rate, and if you pick a credit union or community bank they are often more understanding. When I was in your circumstances I went to a credit union, got a line of credit that covered all my bills (and enough for groceries that month) and then negotiated interest only payments with a 2% over prime rate. This allowed me to make small payments when things were bad, and bigger ones when things were better. Of course I'm still in debt for stuff I don't even own anymore but hey you do what you have to. I also have heard that those debt counseling places can often get you a much better rate than you can get on your own, and they're payed by the banks not you. If your stuck with the dealership, remind them that they're better off working with you then for you to declare bankruptcy and keep the car anyway. (In Canada they let you keep one car and your house, I don't know about the US though). Chances are you've already thought about all this while laying up at night worrying about how your going to pay your bills. So in the end, I just wish for you a really, really good day. Just one day (well more if you can manage *smile), but one day with no pain, and something really good happening.

P.S. Buy a lotto ticket you never know...

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/26/2009 7:08 PM (GMT -7)   
I am glad someone else needed to vent as well. I am in so much pain and I am radiating heat. I cannot keep my meds down.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 5/26/2009 7:16 PM (GMT -7)   
Sylph-No one has ever suggested that before..I'm going to have to look into this!
And yes, you never know haha. We're always joking about how we'll win the lottery but never buy a ticket.

Navy-Has this been going on for a long time? I've been reading your other posts, but I didn't assume any of this...I hope you'll go to the ER if things get out of hand. Do you know what's going on???
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/27/2009 12:47 PM (GMT -7)   
I did end up going to the er last night. I don't have a good handle on what is going on, but morphine works well.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 5/27/2009 2:14 PM (GMT -7)   
Oh Navy, I'm so sorry...I just can't believe how terrible this disease can be sometimes. I hope you're getting the rest you deserve at least..
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."


cindywchrones
Veteran Member


Date Joined Mar 2005
Total Posts : 1115
   Posted 5/27/2009 6:59 PM (GMT -7)   

Vent time about my vacation---We got to our camp site and realized we had a broken water line in our trailer and had to use the public bath house which thank god was close but it rained..We then ate breakfast at a place which I got the urg suddenly to end up in a line for a unisex bathroom with about 5 women in front of me..The lady in front of me I guess noticed my pain and let me go in front of her.  I almost had a serious accident.  My kids and husband made fun of me over that incident the rest of the trip insisting the lady probably thought I had number 1 not 2...Bathroom issues and vacation and travel can sometimes be tricky!!

 

Cindy 


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 5/27/2009 7:08 PM (GMT -7)   
I'd be handing out smacks to any family and friends who gave me trouble over something like that...I can't have enough sympathy for anyone who needs to use the restroom.

Sounds like an irritating ordeal :( I hope you're back near a restroom of your own!!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

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