Small bowel resection---any input??

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Blossom
Regular Member


Date Joined Mar 2008
Total Posts : 176
   Posted 5/20/2009 6:18 PM (GMT -7)   
Hi,
 
Yesterday I had a colonoscopy and endoscopy, because for the past month I haven't been able to eat much else except rice chex, white rice, white bread, and chicken.  Pretty much everything else gave me either intestinal problems, nausea, diarrhea, or severe heartburn & reflux.  (The good side is I've lost almost 10 pounds!) 
 
I'm awaiting the results of all the biopsies, however, my GI doc said that my terminal ileum (IC valve) is even narrower than one year ago (even though I've been on Humira for nearly 6 months).  He said we're going to need to discuss the possibility of a small bowel resection.  I'm SCARED TO DEATH!
 
I'm sure many of you have had one or more resections, and I sure would appreciate your input, suggestions, experiences with it etc! 
 
Also, do they usually only make tiny incisions, OR do they usually make one large incision?  After removing the diseased portion, do they route the small intestine to the outside for awhile for bowel rest?  Or, do they immediately rejoin the ends?  How long is recovery time?
 
Sorry I'm asking so many questions, but I don't know much about this.
 
Thanks!!
54 year old female;
 
Have had Crohn's of terminal ileum for over 9 yrs, but finally accepted diagnosis when it was confirmed Feb. 2008.
 
Allergic/hypersensitivity to Pentasa, Entocort, and 6-MP.  Recently started Humira in December.


Curly9878
Regular Member


Date Joined Apr 2007
Total Posts : 165
   Posted 5/20/2009 6:25 PM (GMT -7)   

Thanks for the post.

I JUST talked to the surgeon today about a small bowel resection.....     Terminal Illium....

I was also on Humira, didnt seem to work for me...

So, sorry I do not have info but it sounds like we are in the same boat!


30 years old.
Single, probably always will be...  In fact, I bet I become "the cat lady" of the neighborhood...  Only thing is, I am not a fan of cats.    
Oh and as an added bonus, I am a FAT girl with Crohns...  
I am getting ready for my first resection....   My mom always said my beauty was on the inside...   sooo what does it mean when my insides are a mess???   Thanks mom!  I bet I inhereted Crohns from your side of the family.  
NO GUTS-NO GLORY!!!    So, once I get my guts removed...   My "Glory" days are over....
 
That about sums me up!
 


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 5/20/2009 7:00 PM (GMT -7)   
I just had a resection in Feb. I had about 18" removed along with my TI and It wasn't as bad as I thought.
Mine was done laproscopically and they made 3 small incisions and one along my belly button that was about 8" in length.
I was in the hospital a total of 5 days.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 5/20/2009 10:39 PM (GMT -7)   

Just got home from colon resection Friday. Surgery was the previous Monday. (Four nights in hospital). Done laproscopically, small incision by belly button, two smaller incisions and four inch incision very low on abdomen. Can't really see because the tape is still on.

Getting around very well, no pain medication since being home.

 


55 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 5/20/2009 11:12 PM (GMT -7)   
I had my IC valve removed due to a tumor right beside it. I had a couple of small holes plus an incision about 3 inches long under my belly button. They need to make one larger incision to take out the intestine. They put me back together right away. I had to stay in the hospital until everything started working again. My surgery was on a Monday and I left the hospital on Saturday.

Actual recovery was about 3 weeks for the worst of it but I was very tired for about 6 weeks. I had D for quite a while, it took about 6 months before I was back to normal.

Everyone is different and every surgery is different. Don't rush your recovery. Your doc should be able to give you info on the incisions. You can search to forum for more info.

Good luck.

CazUK
Regular Member


Date Joined Jan 2009
Total Posts : 51
   Posted 5/21/2009 1:55 AM (GMT -7)   
Hello

I had a resection 2.5 years ago. They took 9 inches and did a lapro operation, so I have a small scar on my belly button (about 2 inches) and three others that are about half an inch wide, which they used to pump air in.

I had been told I'd be in hospital for 5 days, but I was actually in for 10 because it took ages for me to pass anything through - I was sick for the first few days when I tried to eat soup etc. I was off work for 6 weeks in total.

Oh and I had been prepared for a stoma/temporary ileostomy and later on a reversal, but in the end they joined the healthy ends back together immediately so I didn't need it.

Hope that helps
Diagnosed with Crohn's disease in Sept 05 aged 24


Resection in Nov 06


Currently taking Remicade, 125mg azathioprine, iron, multivitamin, probiotics and omega 3
 
Previously taken Prednisolone, Entocort, Flagyl, Cipro, Pentasa


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 5/21/2009 4:06 AM (GMT -7)   
Ahhh yes! The prep is the worst part, just thinking about it makes me want to vomit. YUCK!
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 5/21/2009 6:54 AM (GMT -7)   
Hi i had 2 resections (done at the same time ) in jan had to be opened up as they also had to operate on a fistula which came through an old scar in my belly the recovery was ok i had no pain after as i had the morphine pump and an epidural too try not to worry to much just focus on the outcome and the future wishing you well Bev x smilewinkgrin

Diagnoised with crohn's at 13 now 42
resection, right hemi 1993
In remmision from 93 till last sept with no meds or docs
2 resections small bowel jan 09 and given temp stoma
 No maintance drugs,only on B12 shots,iron syrup,loperimide


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/21/2009 7:01 AM (GMT -7)   
I have had two resections and both of them were the full open incisions. Most folks are able to get away with the laproscopic surgery. My incisions were about 6 in long and were about 2 in above the belly button to just above my whoo-hoo. I used a pain pump for my pain meds which was nice as I could dose my pain meds as needed instead of waiting for the nurse. The reconnected the bowel ends, very few us actually have ileostomies, so I wouldn't worry too much about that. Try to walk as much as possible afterwards as it helps to wake the bowel up. And do expect some explosive diarrhea for a bit until your bowels adjust to the changes.

Good luck and I hope your surgery brings you to a long long remission.

Hugs
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

lovetolaugh
Regular Member


Date Joined Aug 2007
Total Posts : 23
   Posted 5/21/2009 7:19 AM (GMT -7)   
I had a resection in October. They took 18 inches of the small intestine out. I have two tiny incisions and one larger one next to my belly button. I was in the hospital 18 days, but I was there for 10 days prior to the surgery because I was so sick. It wasn't as bad as I thought. I actually thought my gallbladder surgery five years ago was worse. Once they get pain under control post-surgery, its okay. I had an epidural for the surgery which was great because I couldn't feel a darn thing. Except the next day when the nurse tried to get me out of bed and my legs were jello.

The surgery has changed my life. I can finally eat without being in pain. My "crohn's" pain is gone. The surgeon told me I should get 10 years out of this. Its been a little over six months and I am still feeling great.

The surgery was about three hours, and they just connected the ends together with a few titanium staples. The pain pump was great except the one night nurse who didn't hook it up and every time I pushed the button, my dialudid was going on the floor and it took a few hours for them to get it under control. So make sure they hook it up to your IV. I actually had a Picc line and I thought it was better. Because I was on IV steroids, my IV site would be fried by the end of the day so they kept having to change the IV, so they did a PICC. They sent me home with enough pain killers but I really only needed them for a few days. I got out of the hospital on a Friday and was back to work on Wednesday.

One thing to be aware of is the water weight. I never expected to look 7 months pregnant after the surgery but I guess from all the swelling and water I plumped up. The swelling went down after a week or so, but it wasn't that bad that I couldn't fit in my clothes. The first couple nights were hard because I am a stomach sleeper and I would roll onto my tummy while sleeping and jump awake from the pain. But again, after a few days it was gone. I was just so happy to sleep in my own bed.

Post-surgery be careful what you eat. I was on clear liquids for ten days prior to surgery in the hospital and then for a few days after. Once they finally let me eat, it was low-residue diet. I spent the first few days out of the hospital at my mom and dads. I'm Italian and my mom is an amazing cook so I started eating some things I shouldn't have and had some pain and cramping. When you go 18 days on jello and chicken broth, I wanted real food. When you start eating, slowly introduce food. Nothing too rich, or spicy. I can eat anything now but for the first couple weeks be cautious.

They will probably keep you on your meds. I am still on Imuran and a B12 shot. As far as scarring, I later it up with Vitamin E lotion and they have healed quite well. In the beginning, I would take a vitamin E capsule, cut it open and rub it on my incision. It really helps with the healing.

I know its scary anytime they talk surgery, but if its going to make you better, go for it. Just keep thinking positive.

Good luck!!
26 year old female
 Married to the most loving and supportive man
Just Graduted with my Master's Degree in Social Work
Diagnosed with Crohn's in 2004 after my gallbladder was removed 
Been on Prednisone, Asacol, and Remicade (became allergic to Remicade)
Too many flare ups to count
Been hospitalized five times in the past year (thank you morphine)
Had Bowel Resection October 1st, 2008 (18 inches of small intestine was taken out)
Currently in remission but still taking Imuran
Couldn't do it without my family, especially my mom
 
Have the greatest doctor in the world and will fight this disease til the end!


Blossom
Regular Member


Date Joined Mar 2008
Total Posts : 176
   Posted 5/21/2009 10:24 AM (GMT -7)   
smilewinkgrin  WOW!  You are all so great!  I REALLY appreciate you sharing your experiences!!  You are all true survivors.  It really helps having an idea of what to expect, and just hearing from you helps me to not feel so alone in this.
 
Hugs to all,
Cheryl
54 year old female;
 
Have had Crohn's of terminal ileum for over 9 yrs, but finally accepted diagnosis when it was confirmed Feb. 2008.
 
Allergic/hypersensitivity to Pentasa, Entocort, and 6-MP.  Recently started Humira in December.


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 5/21/2009 10:44 AM (GMT -7)   
Just want to say good luck Cheryl.
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. 10mg prednisone. Udo's Choice Probiotics (30 billion). Can't tolerate any iron supplements or infusions.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


Blossom
Regular Member


Date Joined Mar 2008
Total Posts : 176
   Posted 5/21/2009 10:59 AM (GMT -7)   

Hey Rider Fan---

Good to hear from you!  I was REALLY hoping to avoid any surgeries like you have been able to do so far!  Won't know much more until I talk with my GI in a week or so, and find out the results of all the biopsies.

Take care,

Cheryl


54 year old female;
 
Have had Crohn's of terminal ileum for over 9 yrs, but finally accepted diagnosis when it was confirmed Feb. 2008.
 
Allergic/hypersensitivity to Pentasa, Entocort, and 6-MP.  Recently started Humira in December.


Bluize
Veteran Member


Date Joined Mar 2005
Total Posts : 635
   Posted 5/21/2009 12:04 PM (GMT -7)   

I had a resection of the IT in Feb 07.  It was an open surgery with an 8 in scar right down the middle of my belly.  They were going to do it lap but the inflammation was too big.

I was in the hospital for 5 days including the day of and back at work in about 5-6 weeks.  I had an epidural put in while in the recovery room since the morphine didn't work.

I was petrified but I was in such bad shape it was affecting my quality of life.  I didn't go on meds afterwards but I should have.

That maybe would have given me a remission.

If the doctor seems to think you need surgery get a second opinion.  If both agree, then see a surgeon and see more than one.

 

Good luck.

 

 

 

 


Susan
 
28 years with Crohns in the term ileum.  Feb 07 Resection.  No meds currently..but there will be some I'm sure. Taking acidophilus.


dorri
Veteran Member


Date Joined Feb 2003
Total Posts : 1876
   Posted 5/21/2009 2:33 PM (GMT -7)   
Hi, I haven't had time to read the posts so forgive me if I am repeating any of the advice.

I had a resection 6 years ago and I've been pain free until recently. I had 3 feet of small bowel removed, secum and appendix and only recently I'm starting to feel some discomfort. Tests show that I have narrowing at the junction of small/large bowel again but they are going to wait a bit before surgery.

Anyways I cannot explain the difference in life. I lived with a narrow bowel for years and experienced nothing but wretched pain so for me it was well worth it, and I hope it will be for you.

The surgery itself is nothing. The length of the incision and recovery time depends on how extensive the crohn's was?. If it is extensive, chances are you may have a longer incision. It will be sore and itchy for a while but it will heal.

Good luck and don't worry. ok, ok, it will be alright.


pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 5/21/2009 3:37 PM (GMT -7)   
Had the same procedure as Wolfie, except had my appendix also removed.
They'll take biopsy from both ends of the surgery,to see if they removed all
the active Crohn's. The surgery was a breeze for me,7 painless days in the
hospital, until your first bowel movement.A dozen staples which they remove.
The hospital offered me more pain med's than I could possibly ever need.
Boy do they ever give you a close shave!(I'm pretty much hairless.)
Missed 8 weeks of work,and watched tons of TV.(like a long vacation)
diagnosed 1981
remission until 2006
Remacade,resection
B-12,Pentasa,Loperamide,
Entocort, 6mp,Hydrochlorothiazide
Remission since surgery
and 8-week Remacade.
d since 1981(enjoy the look
on Dr's faces)


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 5/21/2009 4:53 PM (GMT -7)   
pillpopper said...
Had the same procedure as Wolfie, except had my appendix also removed.
They'll take biopsy from both ends of the surgery,to see if they removed all
the active Crohn's. The surgery was a breeze for me,7 painless days in the
hospital, until your first bowel movement.A dozen staples which they remove.
The hospital offered me more pain med's than I could possibly ever need.
Boy do they ever give you a close shave!(I'm pretty much hairless.)
Missed 8 weeks of work,and watched tons of TV.(like a long vacation)

 

 Yes they do shave you close. I too had my appendix removed.


Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Blossom
Regular Member


Date Joined Mar 2008
Total Posts : 176
   Posted 5/23/2009 6:35 PM (GMT -7)   
Thanks again all of you for giving input and sharing your experiences!  This information helps me TREMENDOUSLY!!!  I am not as afraid of the possibility of having surgery, and am actually quite surprised about how quick the recovery time is.  (Of course, it may not seem so quick when you are in the middle of it!)   You are the greatest, and I'm so grateful for this website!
 
Take care--
 
 
54 year old female;
 
Have had Crohn's of terminal ileum for over 9 yrs, but finally accepted diagnosis when it was confirmed Feb. 2008.
 
Allergic/hypersensitivity to Pentasa, Entocort, and 6-MP.  Recently started Humira in December.


mintyamy
Regular Member


Date Joined Mar 2009
Total Posts : 50
   Posted 5/23/2009 8:49 PM (GMT -7)   
I had 23 inches of small intestines removed. I went into surgery not knowing if I would wake up with a bag or not. The doctor said he would have to see when he got in there, thankfully, the pre-surgery IV meds did the trick, so no bag! The sugery was done laproscopic (sp?) so I had a 2 inch incision over my belly button and small, small incisions on my upper right abdomen and lower left abdomen. I had no stitches, just those strips, which healed up very quickly. I was scared out of my mind before the surgery! But overall, it wasn't as bad as I had imagined. It took a good full month to start feeling normal (whatever normal is for a crohnie, lol). Lots of leaking stool (ew, sorry). That's my story, but remember no one is the same! Everyone is soooo different.


mimik81
Regular Member


Date Joined Jan 2008
Total Posts : 88
   Posted 5/30/2009 9:07 PM (GMT -7)   
I had a resection 2 weeks ago. I had an open surgery, and they removed 8 inches of my small intestines, 4 inches of my colon, and my appendix. I woke up with very little pain, thanks to the pain pump. I did have to have the gastric tube for two days, which was the most annoying and uncomfortable thing - it bothered me more than anything else.It really did a number on my throat, and it was just plain aggravating.

I had progressed fine until the fourth day in the hospital. I started having a lot of pain, and I began passing lots of blood when I went to the bathroom. I got very weak. The surgeon was called right away, and within a few hours, they gave me IV meds to help my blood to clot, and I had two pints of blood transfused.I began to feel better almost immediately. I am not telling you this to scare you - I just wish I would have known about that risk so that I would not have been so worried when it was happening.

I was only in the hospital for 8 days total (as far as the surgery part - I was there a week prior to the surgery because I was so sick and dehydrated). I had liquids for two days and was able to eat a regular diet (sticking to more bland and easy to chew foods) by the time I left. I go for my follow-up in a few days, and they will remove the 24 staples.

I still have D a lot, but it is getting better every day. I am still very tired, but not in hardly any pain. In fact, most of the pain that I have experienced is in my back - I guess from using it to shift the pressure off of my abs.I am still eating softer foods - I am having a hard time with being afraid to eat some things - I'm just not ready for certain foods yet.

I was able to go 13 years before this first surgery. It freaked me out when the doctors decided it was necessary. However, I am really optimistic that my quality of life will be much better. Just realize that it gets to a point where surgery is inevitable, and it is better to do it when you aren't in an emergency-type situation. Don't freak out too much.
Diagnosed with Crohn's for 13 Years
First Resection 05/19/09 - Currently Medication Free!

Tried prednisone, flagyl, pentasa, imuran, and Humira (developed drug-induced lupus and had to stop).

Accountant and Mom of a 3-year old


Blossom
Regular Member


Date Joined Mar 2008
Total Posts : 176
   Posted 6/5/2009 6:18 PM (GMT -7)   
Hi mimik81,
 
Wow, you had quite a bit to be removed all at once!  I'm assuming that's why they did an open surgery instead of the laparoscopic method.  For the small intestine, was it the terminal ileum that had to be removed?
 
So sorry to hear about you suddenly bleeding so much!  Is this something that commonly happens?  I know only a week has gone by since you last wrote, but I sure hope you are feeling much better.
 
I noticed in your signature that you developed drug-induced lupus.  How long were you on the Humira before this occured?
 
My best to you, and I hope you're feeling better and better each day.
54 year old female;
 
Have had Crohn's of terminal ileum for over 9 yrs, but finally accepted diagnosis when it was confirmed Feb. 2008.
 
Allergic/hypersensitivity to Pentasa, Entocort, and 6-MP.  Recently started Humira in December.


joohana
Regular Member


Date Joined Feb 2009
Total Posts : 66
   Posted 6/6/2009 11:28 AM (GMT -7)   
Hi, sorry to hear you will need a surgery, no wonder you feel anxious...

I had mine done in order to be allowed to have a second baby, didn´t really think about it that much-wanted a baby asap and this was necessary to do it, so I did it.
I had laparoscopic surgery- 3 small incisions, one in belly button, one above it and one bellow, barely visible 2 years later. And one bigger (about 10cm long), the surgeon took about 40cm of my terminal illeum through my old(er) appendectomy scar.

Surgery was fine and I was recovering quickly, unfortunately a bit of my illeum got twisted, stuff could´t get trough and I had to be taken straight to the theatre again (a friend who is a surgeon said this was nobody´s fault, it sometimes happens).

They joined both ends immediately, but this is individual and sometgimes they have to give the patient a bag...

I recovered without any further problems after this and had been only on Pentasa and Entocort for a year and half and only on Pentasa since birth of our baby girl.

Hope everything goes fine for you, good luck !!!
Diagnosed with Crohn´s in 2005, 3 surgeries, . Pentasa 2x2, Budenoflak 1x2, 30 yrs old mother of two. Boy 05/2005 and girl 03/2009


Blossom
Regular Member


Date Joined Mar 2008
Total Posts : 176
   Posted 7/14/2009 8:06 PM (GMT -7)   
yeah  Hi all!
 
I thought I'd post an update to my opening posting on this thread.
 
16 days (July 30) until my FIRST small bowel resection.  I'm a little apprehensive, but I can't wait to get it over with!!  I've been having problems since early this year, so it will be a welcomed relief.
 
Thanks again to all of you for your input and ongoing support.
54 year old female;
 
Have had Crohn's of terminal ileum for over 9 yrs.   Stricturing is pretty severe now, and need surgery SOON.
 
On Humira since Dec. 2008.  Allergic/hypersensitivity to Pentasa, Entocort, and 6-MP.  


pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 7/14/2009 8:32 PM (GMT -7)   
You are very welcome!
Wish the best for you...
Please keep us updated...
B-12injections,Pentasa,Loperamide,Entocort,6mp,Hydrochlorothiazide,8 week
Remicade,vitamin-D,Terbinafine,
Remission since surgery
and 8-week Remicade.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/15/2009 5:54 AM (GMT -7)   
Hope your surgery brings you to a long long remission.


Good luck,
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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