Chron's and employment

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maliceu
New Member


Date Joined May 2009
Total Posts : 2
   Posted 5/21/2009 12:22 PM (GMT -7)   
Hi everybody! sry if my forum etiquette isnt great my 1st ever.
Noticed over 131000 post replies for Chron's disease and im thinkin this is a good source for advice.

In 2001 i was diagnosed with Chrons of the ilieum, it happend fast 2 hours before i finished work i was felling sick. as soon as i got home i called a taxi to bring me to the ER. Once there i was on painkillers and then surgery. I needed a resection i think they called it. (they cut out infected intestine) I belive i was on Prednisone? after the surgery and that was the last time i took any meds for Chrons probley not a great idea but i didnt care i willed death being manic depressive as i am.

Well, my question is what is medicine going to do for me?? from what ive read here so far i have the same complications as anyone here difference is... i refuse meds. I have good days an some bad days diareaha 1-2 times a week an itchyhole excuse me.

What im saying is i dont want to trial n error pills with, who knows whats in them or depend on them physically or mentally. Plz if im wrong i need someone to help me with sound advice thx for reading :)

maliceu
New Member


Date Joined May 2009
Total Posts : 2
   Posted 5/21/2009 12:33 PM (GMT -7)   
SRY got a little off topic is there a common profession among people with Chrons disease? everything i wanted to be requires me to do grunt work for the 1st year which will give me stomach pains an make me yawn in technicolor . Feels like im darned to work in my shipping dept for the rest of my life

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 5/21/2009 12:59 PM (GMT -7)   
The people on here tend to be severe regardless yes, but this does not mean that it holds true for every person with Crohn's. It's quite possible that taking medication may greatly reduce your symptoms.
Not only this, but it will help prevent further, more serious measures that may need to be taken to help you stay healthy.
There are some of us who would literally waste away without medication because our disease was even allowed to get to that point.

I highly suggest looking into different diets (many of use the SCD as a sort of guideline) and at least into some maintenance medication like asacol or pentasa.

As far as work is concerned, we have people from all walks of life with Crohn's. Some do heavy labor and some do less involved work like typing at home. It comes down to knowing your limits and sticking to that. Also, always be sure to look into reasonable accommodations that your job can offer.

As for trial and error, that's really something we with Crohn's will ALWAYS have to deal with whether it comes to food, medicine, exercise, people, etc. you name it. That's just the nature of the disease. I would suggest at least asking a good GI for advice on what you should take and try asking him/her about some simple maintenance medication.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 5/21/2009 2:56 PM (GMT -7)   
With so many different kinds of jobs out there, pick one that you are comfortable with. I decided to find something where I am on my feet the whole time, i just feel more comfortable and have less gas/issues being up constantly. Some need to be sitting constantly. Even if you are trained specially for something or you have a dream job, you can always tailor it the way you want.
SCD since 01, remission since 01, occasional random junk food breaks :)
No meds ever.


Easier2Run
Regular Member


Date Joined Nov 2008
Total Posts : 62
   Posted 5/21/2009 6:36 PM (GMT -7)   
I'm actually in my last year of nursing school right now. I do work at the hospital as a nurse aid, usually 12 hour shifts. I have to say that they are incredibly understanding of everything... since obviously the nurses and doctors know the disease process. When I'm not feeling well they let me rest and understand that I sometimes need frequent breaks.. especially when the arthritis hit.... ugh. 12 hours on my feet was less than a picnic! haha, and if needed, I always have the ER a couple floors away!

As far as medications go, its totally your own preference. Personally, for me, I'd probably be in bad shape without them, even with them its not great. If you're doing well without em, try other methods, diet, herbal supplements, stress management techniques. If I could go without meds, I totally would.... who knows what the long term effects of these are.. ect.
-Heather, 23 yrs. old
____________

- Crohns disease since 1995, officially diagnosed in 2003.

- Bowel resection in Dec. 07, Crohns reoccurred July 08.

- Medications - Entocort 9mg, Wellbutrin SR 150mg, Lexapro 20mg, Bentyl 10mg, Levsin, Trazadone 50mg, Humira


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 5/21/2009 7:15 PM (GMT -7)   
My job requires me to stand all day...I'm a candy maker, but I specifically work with chocolate; making truffles, fudge ect ect.., however since having my last resection I've gone from working 48 hours a week down to 32 because my body just can't handle it anymore. My GI suggested I go on disability, but I decided I'm too young for that and I would stick it out until I personally thought it was my time.



Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Imuran 50mg, Vitamin B12 (injection), D, and C tablets. Fish Oil Tablets, Cats Claw, Slippery Elm, and Reishi.
 
www.myspace.com/mastermelissa

Post Edited (MAG102886) : 5/21/2009 8:46:54 PM (GMT-6)


heatmiser
Veteran Member


Date Joined May 2003
Total Posts : 1671
   Posted 5/22/2009 7:33 PM (GMT -7)   
Welcome! This is a good group to be a part of. I only get online occasionally as my kids hog the computer, but there is always good advice here whenever needed.

Give meds a reasonable try I say. They have made my life better since before I got dxd, even though sometimes I flare up despite my good efforts. Still better than no meds though.

As for jobs, my last one (and first one since I was dxd) was as a hotel front desk clerk part-time. There were 2 bathrooms close by and I never had to call in sick. Now I've been at my current job as a cashier for just a month and called in sick for the last 3 days. Not sure if my current symptoms are cd or not. I'm hoping to make it in tomorrow and will bring my dr's notes.

Common profession - I think the toilet paper companies should hire us all as we give them the most business!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/23/2009 8:33 AM (GMT -7)   
I am a client service associate for a large Wall Street firm. I assist stockbrokers to service their clientele. Been at the same company for almost 20 years. Basically, it is a desk job.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 5/23/2009 5:06 PM (GMT -7)   
Medication put me in remission and I've been doing great for about 5 years. I'm an appellate attorney. Pretty much a desk job, with decent hours if I am disciplined about meeting deadlines.
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, went med-free 2 months to nurse (stupid), but back on Pentasa and still nursing.


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 5/23/2009 10:37 PM (GMT -7)   
I work for my dad, and the company is VERY flexible with all employees, allowing people to work from home if needed (I took advantage of this while I was at my worst), and allowing very flexible schedules, so I am easily able to accommodate doctors appointments and tests. I feel very fortunate, because if there is ever a day where I'm not feeling well, I can stay home and rest or work at home with no questions asked, and everyone in the office is like a big family and genuinely care about everyone else's wellbeing.

Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 5/24/2009 1:06 PM (GMT -7)   
Welcome!

Medication, for me, keeps me 98% symptom free. Can't put a price on that for sure! People rarely pick up on something wrong with me and it's nice to be "normal" for long stretches of time. IMO, being symptom free is definitely worth trying some medication!

I have found that when I'm flaring, getting off the couch is difficult and painful so it doesn't really matter what line of work I'm in in that regard. Even if it is a desk job, when I'm flaring I can't even do that well. So, I followed my passion and work as a minister at a local church. My church family and colleagues know my issues and sometimes, they step in to help cover my areas. That's pretty rare; I can typically do anything my job calls for.
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