I fired my dr and that's a first for me

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Regular Member

Date Joined Sep 2008
Total Posts : 91
   Posted 5/21/2009 9:31 PM (GMT -6)   
Hey eveyone,
     I finally after 10 weeks of IV therapy for pyoderma gangrenosum ulcer on calf have told the infectious disease dr bye-bye.  I've been on steroids ranging from 500 mg a day to 60 mg that I'm at now.  I'm working with a derm dr that is doing some steroid injections at the ulcer site and in just 2 days it already looks a little better.  We've changed how I dress the wound going from gauze and paper tape to non stick dressing with the bands you get after bloodwork.  I have been through hell this last 10 weeks from gaining 35 pounds , getting bi'lateral pulmonary emboli, high blood pressure, insomnia, extreme pain, and my pancreas having trouble controlling sugar.  I've been on unneeded IV antibiotics, gone through IVIG therapy, Lasix which brought on low potassium, Diflucan for thrush, etc.  I think the inf disease dr was in over her head, and I did as always and just followed orders.  I finally grew a set of you know what and decided I had to fight for myself.  IT FELT AMAZING.  I encourage other people to trust your gut and learn that just because someone has a medical degree does not make them all knowing.,  I look forward to working with this new dr she seems great and my GI to hopefully get past this latest saga with Crohn's.  I hope to be able to get the PICC line out in a couple of weeks and just trust in oral meds again.
wishing eveyone the best health possible,
diagnosed CD '03 after suffering for 10 yrs.
re-section surgery '05, Chronic Pancreas problems, joint and muscle issues (from Remicade), diagnosed March '09 pyoderma gangrenosum
meds been on-Asacol, Pentasa, Lialda, Remicade, Humira, 6-MP, Methotrexate, Rowasa, Prednisone, too many pain meds to list
Currently on-Cimzia, Cymbalta, Reglan, Pamine Forte, Methotrexate, Folic Acid, Probiotics, Phenergan, Omeperazole, and Klonopin(RLS) (IV Vancomycin, Fortaz, Solumedrol, and Lasix)

Veteran Member

Date Joined May 2007
Total Posts : 1220
   Posted 5/21/2009 9:48 PM (GMT -6)   
Good for you!!!!!!! Praying that you will be healed up right very soon!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.

Forum Moderator

Date Joined Nov 2003
Total Posts : 7056
   Posted 5/21/2009 11:03 PM (GMT -6)   
It is so impowering to take charge of one's own health. It sounds like your derm doctor is great. I hope that she gets that darn ulcer healed up soon!
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.

Veteran Member

Date Joined Dec 2008
Total Posts : 947
   Posted 5/22/2009 5:48 AM (GMT -6)   
Good for you!
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

Veteran Member

Date Joined Jan 2009
Total Posts : 829
   Posted 5/22/2009 7:20 AM (GMT -6)   
I am always in charge me my own therapy of course i dont know everything but i reed alot and if something does not sound right i talk to another doc. Its your body and you are in charge of it, docs are only here to give there opinion. You choose what to do.
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Entocort, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~

Regular Member

Date Joined Nov 2008
Total Posts : 192
   Posted 5/22/2009 8:33 AM (GMT -6)   
As others have said, good for you!!
Dx with Crohn's Colitis; Meds: Pred and Imuran; female in late 20s.

Regular Member

Date Joined Feb 2009
Total Posts : 350
   Posted 5/22/2009 8:52 AM (GMT -6)   
good for you!!!!!!!!!!!!!!!!!!!!!!!!!!!!
strictures, crohn's, adhesions, endo
just started on LDN, allergic to pentasa and 5ASA's. I'm taking Boswellia Serrata (works!) Just came off Xifaxan. Making 24 hour yogurt (FUN!)

Veteran Member

Date Joined Mar 2007
Total Posts : 1642
   Posted 5/22/2009 3:04 PM (GMT -6)   
Good For you!

I hope you heal quickly now .


Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica



Regular Member

Date Joined Feb 2009
Total Posts : 82
   Posted 5/22/2009 6:30 PM (GMT -6)   
Congratulations :) I think you should always be comfortable with your doctor.
22 years old, Female.
Diagnosed with Crohn's Ileocolitis November 2008.
Currently taking Humira.

Regular Member

Date Joined Feb 2005
Total Posts : 421
   Posted 5/23/2009 12:03 AM (GMT -6)   
Good for you! Now if only I could grow a set......
RX Crohn's 1999, over 30 surgeries, 3 strokes, still kickin!!
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."

Regular Member

Date Joined May 2007
Total Posts : 89
   Posted 5/23/2009 8:01 AM (GMT -6)   
Good for you Kimmy. Hope things continue to move along for you.
Out of curiousity, since I use the non adhesive dressings and have used many, I was wondering which one you are using?
Have a good weekend and continued healing.
Diagnosed 4 years ago. been  a helluva ride since.  If there is a side issue to this dd I can find it.  I suffer with Pyoderma Gangrosum and horriffic mouth ulcers that get to the point I can't open my jaws.  Last one was nice enough to create a fistula and  add to my list of fun things to deal with.
Been on all kinds a things, currently on Imuran 50 mgs and it at least give me some confidence in leaving my home.
Allergic to Remicade. Promethius test shows my body fights it.  Also suspected to have PBC or PSC  autoimmune liver disease.

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