New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 5/21/2009 8:42 PM (GMT -7)   
Just saw your post under Immodium. Are you having problems since your resection? Have you decided what meds you are going to go on or waiting to get your hand taken care of?
 
Today I had an hour or so of pretty severe cramping with some nausea which hurts to dry heave when you've just had abdominal surgery but otherwise doing good.
 
Just wondering how you are doing, take care.
55 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 5/22/2009 4:04 AM (GMT -7)   
Well, yesterday was a real treat. I was at work and about 10 A.M I all of a sudden had pain in my lower right abdomen. It was almost the same pain that I get when I'm having a blockage. The pain wasn't going away so I called my nurse at about Noon and told her what was going on. She said that she would talk with the doctor and get back to me. She called me back around 1 P.M and told me she was going to order an x-ray and bloodwork. I still had the pain but it had not gotten any worse and by about 4 P.M it had subsided some. At 5 P.M I had my x-ray but they could not find the orders for blood work so I didn't get it done. I got home and I was feeling better and now this morning I am fine no pain at all. I even had dinner last night. I don't know what it was, I hope it was not a blockage. She is going to call me this morning with the results and I will let you know. I was very nervous and worried.
As to the immodium, I was doing well about a month after surgery, formed BM and back to my normal once a day. Recently these past few weeks, I have been having "D" and gas, sometimes going 2-4 times per day. I don't know what happened as I eat pretty much the same foods everyday.
I never had any cramping or nausea after surgery. Are you eating normal foods yet? Maybe pushed them to soon. My doctor would tell me to go back on on a low residue diet for a week and then slowly start introducing regular food back into my diet. I really feel bad for especially after what you have just gone through, don't let it get you down. There are going to be good days and bad days for probably a year for both you and me and we need to keep a positive attitude and get through this.
I hope you feel better soon!
Wolfie :-)

P.S  Do they have you on any maint. meds yet? Did I ever ask you about Methotrexate, my doctor wants me to go on that over Imuran. Your thoughts when you feel up to it.


Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 5/22/2009 5:42 AM (GMT -7)   
The episode yesterday was the only time since having surgery but didn't last that long. Don't know if the single regular Tylenol did the trick or what. As far as the nausea I took a chewable Rolaid and was instantly nauseous. I may have pushed the food thing a little but I kept asking if there were any diet restrictions and they said none. Even then I didn't believe you shouldn't be careful for awhile at least and haven't introduced anything that I didn't eat previously.
 Other than that, I feel like I am doing really well. Have to remind myself that I just had surgery less than two weeks ago and take it easy.
I see my GI on June 9th & surgeon on June 10th so will discuss meds then. My thinking is that I will stay on MTX for awhile as I have had no side effects from it. Going to see about subcutaneous injections or pills but have read some people do better on the injections. I am wondering why your GI says MTX over Imuran? I know I preferred MTX to Imuran but can't remember all the reasons why. I know MTX helps arthritis and joint pain so that might be a bonus. Have a lot of questions for my GI.
 
Hope the results were nothing serious!
 
55 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009


Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 5/22/2009 5:48 AM (GMT -7)   
Just read one of your other replies regarding blockages. What do you think causes the blockages? And do you mean food blockage or maybe the bowel gets kinked or something? And how often do you get these?

55 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 5/22/2009 6:11 AM (GMT -7)   
Immflamation causes my obstructions. I wonder if not being on a strong enough medication would cause it. Not sure as I'm so wishy washy about going on Metho or Imuran.What is "subcutaneous injections "?
I kept a journal everyday as to how many BM and consitency along with my weight ,food that I ate and genrally how I felt. I was then armed with all the info for my GI appt. without having to remember.
You said that you did not have any problems with Metho? Did you do your own injections?

Wolfie
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 5/22/2009 7:40 AM (GMT -7)   

Read my thread under MTX 5/19/2009 on Page 4 right now. It will tell you wht you are asking and other's replies.

Never thought about blockages from inflammation but sounds like you might need something stronger.

 


55 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009


Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 5/24/2009 7:25 AM (GMT -7)   

Hi Wolfie, Read your other post this morning, sorry you are having problems again. Did you get the results of the X-ray? I would hope that it's not from scar tissue from surgery already? Don't know if you got my last post on here or followed up on the B12 thread? Did your GI just put you on B12 because you had a resection? Are you tired or fatigued? Have you had your B12 checked? Or is this something he prescribes for everyone? As I posted I saw my B12 results on one of my bloodwork reports.

As far as being wishy washy, no one wants to be on any higher end drug than necessary. And they all come with their risks. With both Imuran and MTX you have to have regular bloodwork done. Maybe that's a good thing  to know how things are overall but it means one more poke in the veins.

You were right about wanting to see the  incisions. Just have tape left on my biggest one.

Will be watching for replies to your other post and hope you get some answers and relief from this.

 


55 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 5/24/2009 5:24 PM (GMT -7)   
X-rays showed nothing, I now believe that it is scar tissue.
I was on B-12 for years every other month, now it is monthly due to low B-12. I used to be tired before resection, now I'm roarin to go. I can even stay up past 9 P.M now. Woo Hoo!
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 5/24/2009 6:22 PM (GMT -7)   

But you get up very early, I have seen what time you post on here. Good to hear there are some positive outcomes of the surgery. When you talk about the pain going from one side to the other it made me wonder if when then take your intestines out and stuff them back in again, if they go back to the same place?

I cannot go to sleep before midnight and sometimes its 2-3AM. but can sleep in if needed. Partly due to age maybe and change in lifestyle.


55 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 5/25/2009 5:47 AM (GMT -7)   
I am a morning person, up before the sun. I have been able to stay up late, is it because of the additional B-12 or because I got rid of all the Crohns in my intestines.
Feeling good today, a little tender yet on the left side.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 6/13/2009 9:18 PM (GMT -7)   

I am surprised your Doc is talking about Humira now? How come he is thinking about jumping past metho or Imuran? You were reluctant about them, what do you think of Humira? I know my GI mentioned Humira for the first time at my visit last week. Haven't researched it enough yet but would reeeaally question that if I was not experiencing Crohn's symtoms.

Did reply to your post on my thread 'small bowel ultrasound'. Thought I could be left alone for awhile but I am quite interested in finding out what they can see. (As long as it isn't bad news!)


57 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 6/14/2009 5:42 AM (GMT -7)   
He just said that if there is active Crohns that we would skip Metho and Imuran and go straight to Humira.I think if there is Crohns that he wants to nip it in the butt right away with Humira so that I won't do to much damage to my intestines.
The more immflammtion the more chnaces scar tissue is building up again and you know what happens then. I'll tell you, I have good days and then I have bad days. I eat good foods and I quit coffee over Memorial day.I was feeling good until Friday when I had severe "D". I even took a an Immodium to help slow it down. I feel better today so lets hope that things are okay again for sometime.
I'm really glad that your feeling well and I do hope that you stay in remission for a long time.

Wolfie


Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

Post Edited (Wolfie40) : 6/14/2009 6:46:07 AM (GMT-6)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/14/2009 6:31 AM (GMT -7)   
Wolfie are you keeping an eye on your diet. After my resections I kept having mini little flares like you, and found that it was caused by things in my diet. Started paying closer attention to what I ate and things improved. It also takes close to a year for you to fully recover from the resection, so that can have issues with it too.
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 6/14/2009 12:43 PM (GMT -7)   
Thanks Nanners! I do watch what I eat, and when I do have problems I eliminate the food source that gave me problems like coffee.
I basically eat the same things for breakfast and lunch and then dinner is different. I feel better during the week when I go to work and then comes the weekend and thats usually when I have problems.
I am learning what I can and cannot eat all over again, I figure it out eventually.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 10:34 AM (GMT -7)
There are a total of 2,735,394 posts in 301,299 threads.
View Active Threads


Who's Online
This forum has 151402 registered members. Please welcome our newest member, Len.
300 Guest(s), 11 Registered Member(s) are currently online.  Details
robotguy, fly with me, smlafleur, iho, maria2016, rockyfords, exqualls, sam12, JackH, Kristvet86, ljimd


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer