Cimzia - Anyone?

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moedon1
Regular Member


Date Joined Jun 2005
Total Posts : 139
   Posted 5/22/2009 2:36 PM (GMT -7)   
Just started Cimzia and I am a little anxious.  Has anyone had experience with this new med.  I have been on most of the others the last being Humira which worked for about 1 1/2 years.  Although I never quite made it into remission I did have easier days.  I would like to know specifically if anyone has had any migraines or seizures.  I have epilepsy and have has TIA storkes and I'm a little concerned that things may not stay as good as when I was on the Humira.
I would appreciate any info.
Thanks,
Donna
Donna
 Formal diagnosis 3/2006, IBS 1992, Degenerative Arthritis Facet block and RFA, Seizure Disorder, Severe Carpal Tunnel both hands, SVT arrythmia, 2004 cardiac Ablation
Cushings Syndrome(thanks Prednisone), Asthma, Multiple Laps for ovarian adhesion to bowel, C/5 & 6 disc herniation - plate with screws, resistant to anethesia/most pain meds.  Chronic fungal infections.
Multitude of Meds. Have tried most Crohn's meds.  Gall bladder removal and Intestinal Lap. June 08.- Intestinal blockage July 08 moved on from on Humira..now on Cimzia.
 


Benisone
Regular Member


Date Joined Jan 2009
Total Posts : 48
   Posted 5/22/2009 4:37 PM (GMT -7)   

I just received my first maintenance dose 3 weeks ago, and I experienced some side effects which diminished in time. They were; muscle weakness, chest cold, puffy eyes, and loss of appetite, but I am getting my "sea legs" and my eyes look normal and have a healthy appetite, I am also looking for more serious side effect like lymphoma, cross my fingers nothing has me concerned for the moment.


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 5/22/2009 8:38 PM (GMT -7)   
I've never had any ill effects from the Cimzia aside from some minor bruising. But, I didn't have side effects from Remicade or Humira either.

Sounds like you've got enough to worry about without Crohn's on your list. Maybe Cimzia will work better than Humira for you. The formula is "pegylated" (whatever that means from a scientific definition) and it's supposed to last longer in the system.

Good thoughts your way!
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine  --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone, Tysabri
--Prochymal in Phase III study (can't wait til it's approved!)
--currently taking methylprednisolone 40mg-taper.  Started Cimzia first dose 2/10/09.  Dx Osteoporosis 10/08 started Forteo 1/27/09
--single mom to 11-yr-old girl


moedon1
Regular Member


Date Joined Jun 2005
Total Posts : 139
   Posted 5/23/2009 6:04 AM (GMT -7)   
Thank for the info. It has been tolerable so far.
Donna
 Formal diagnosis 3/2006, IBS 1992, Degenerative Arthritis Facet block and RFA, Seizure Disorder, Severe Carpal Tunnel both hands, SVT arrythmia, 2004 cardiac Ablation
Cushings Syndrome(thanks Prednisone), Asthma, Multiple Laps for ovarian adhesion to bowel, C/5 & 6 disc herniation - plate with screws, resistant to anethesia/most pain meds.  Chronic fungal infections.
Multitude of Meds. Have tried most Crohn's meds.  Gall bladder removal and Intestinal Lap. June 08.- Intestinal blockage July 08 moved on from on Humira..now on Cimzia.
 

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