Swollen Ankles - Scary

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mintyamy
Regular Member


Date Joined Mar 2009
Total Posts : 50
   Posted 5/22/2009 6:18 PM (GMT -6)   
For about 2 months my ankles have been swelling up.  Some days are worse than others, sometimes my legs hurt as well.  I have no tingling or swelling anywhere else.  It really is scaring me now, because the past two days have been bad.  I woke up this morning and they were still swollen.  I go to my doctor on Tuesday, but was wondering if anyone else with Crohn's has had anything like this?
 


sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 5/22/2009 8:06 PM (GMT -6)   
Yes, I dealt with this for months. Doc thought it was from humira and then ran a rheumatoid panel. Finally, determined tt was due to my very low protein and malnourishment. Might be a good idea to ask doc to run some blood work.

Good luck.
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.


Easier2Run
Regular Member


Date Joined Nov 2008
Total Posts : 58
   Posted 5/22/2009 10:14 PM (GMT -6)   
I had this problem for about a month. My parents thought I was nuts for having joint pain at the age of 23, but when I showed them the massive swelling they believed me. It was also in my knees and elbows. It got so bad that when I moved while sleeping at night I would wake up from the pain and really... walking around was quite the task. And for this reason, I intend to purchase a ranch style home! Anyhow, doctor told me that it was a systemic effect of the crohn's disease. He put me on relafen which was specifically for arthritis pain and it did wonders! I used to be a runner, but after that bout, my joints don't do high impact anymore, and my PCP told me to avoid those types of activities.
-Heather, 23 yrs. old
____________

- Crohns disease since 1995, officially diagnosed in 2003.

- Bowel resection in Dec. 07, Crohns reoccurred July 08.

- Medications - Entocort 9mg, Wellbutrin SR 150mg, Lexapro 20mg, Bentyl 10mg, Levsin, Trazadone 50mg, Humira


mintyamy
Regular Member


Date Joined Mar 2009
Total Posts : 50
   Posted 5/23/2009 5:52 PM (GMT -6)   
Thanks so much for your input! I feel a bit relieved knowing it could be crohn's related. I'm reading things online, like heart failure and edema and it's scaring me. Unfortunately, I am a hairdresser and standing is part of my job. I am beginning to think I might need a different career :(


jhicks
Regular Member


Date Joined May 2009
Total Posts : 176
   Posted 5/24/2009 8:39 PM (GMT -6)   
Hi,

My right ankle has been swelling every day for three months. It goes down with elevation overnight, but is achy all night, and if I turn it the wrong way, it throbs. At one point it was so bad that I was on crutches for 2 weeks. I could not wear shoes other than flip flops. I had an x-ray and MRI, which were normal, other than showing a lot of fluid and edema (the joints/tendons were fine). My GI finally prescribed Mobic (an NSAID similar to Advil), which seems to help with the pain, but not the inflammation. It works during the day, but it wears off at night and is quite achy. The swelling started on the outside of my ankle and shifted to the inside after about two weeks. Now it's all around. I still don't feel as if I can put my foot flat to the floor most days. At the same time, my knees started alternately aching, too. It's called migratory arthritis and is associated with Crohn's. It is so frustrating and debilitating! I feel like I'm missing out on so many things - with friend, my husband and kids. I cannot do any activities that require a lot of walking. I put myself on turmeric, Osteo Biflex and DHA fish oil a couple of weeks ago and added Align probiotic, too. My ankle seems to be marginally better - no more crutches, and I can get myself in normal shoes most days, as long as I don't wait too long. A naturopath suggested that I use arnica cream/gel 3 x a day. I started seeing an acupuncturist last week who seems to think she can help with the inflammatory processs. My stomach has not been bothering me, but I had a colonscopy 2 wks ago that shows the inflammation/Crohn's has returned. I'm sure the swelling is related. My GI suggested remicade, too. Scares me to death. But I have been researching it and will meet with my GI to discuss all my concerns/benefits and risks. I cannot live the rest of my life with this debilitating conditon, so I am warming to the possibility of Remicade. I have a co-worker with rheumatoid arthritis who has been on remicade for a couple of years. He says it has been a Godsend.
I also take Pentasa, a multivitamin, Vitamin D and acai berry.

Good luck with your decision. I will be praying that both of us (really all of us) make the right and best decision.

Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 5/25/2009 6:34 AM (GMT -6)   
My ankles swell REALLY bad when I'm going into a flare (so bad that I can't walk or drive and I end up on crutches for a few days until I'm able to hop around from the kitchen to the bathroom to my bed). That kind of swelling (for me) lasts about 2 weeks.

Then sometimes even when I'm not flaring (like today) my ankles will swell slightly. Not bad enough to where I can't walk or drive but just enough to where it's annoying.

My Rhuemy Dx me with Crohn's Arthritis and suggested I take Remicade, Humira or Enbrel. I declined those drugs. I'd only resort to them if the really bad swelling of my ankles (where I couldn't drive) lasted longer than a month.

I remember being irritated a couple of years ago with my GI when I first told him about my ankles swelling...he just shrugged and said he didn't know what that would be caused from and changed the subject. I guess since it wasn't in my GI tract, he wasn't worried.

Last year when I was in the worse flare I'd been in since I was first Dx, I had to see my GI's NP because my GI was on vacation. His NP said immediately that my swollen ankles were due to Crohn's Arthritis. Since Crohn's is an inflammatory disease, it can cause inflammation in other parts of your body besides your intestines. He THEN proceeded to tell me they had a patient who ended up being Dx w/Crohn's BASED on the fact that his ankles were swollen. He was having mild intestinal issues but his feet were swollen for so long he had to miss a semester of college. This "extra-intestinal" symptom ended up leading them to a Crohn's Dx for him. Weird, huh?
Diagnosed in October, 2004 at age 32 (misdiagnosed with IBS in 2002)
37/F/SC
Current Rx's: Colazal (generic), Omeprazole, Ferrous Sulfate, Librax, One-A-Day multivitamin, Probiotic, Omega-3 Fish Oil, Vitamin D, Cranberry pills
Secondary conditions: swelling ankles, extreme fatigue, mouth ulcers, joint pain
Previous/occasional Rx's: Prednisone, Flagyl, Levaquin, Xifaxan, Carafate
4/7/09: Gall bladder removal laproscopic surgery (gall stones)


Karineb
Regular Member


Date Joined Nov 2005
Total Posts : 319
   Posted 5/25/2009 8:51 AM (GMT -6)   

Hi,

I just posted about this very same thing a couple weeks ago.  I had been in a bad flare for about 3 months at that point and my feet and ankles were like wpainful water balloons.

Say my GI, got some bloodwork done and it was totally from malnutrition and super low protien levels.  I drank protein shakes, and tried to eat things with extra protien.  Now my feet are pretty much normal.

One of the things that I found helped a lot was sleeping with 2 pillows under my feet so that they were elevated.  The next day they did not seem as bad.

I hope you get some relief soon.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6923
   Posted 5/25/2009 9:48 AM (GMT -6)   
This started happening to me when I got the remicade and humira induced lupus. I found couch cushions work well. Plus I use refridgerated gel packs and ace wraps at night on my feet. I have also put a triple pad underneath bedroom carpet.
Just be to be on the safe side I would elimate heart problems, just because that is me.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


mintyamy
Regular Member


Date Joined Mar 2009
Total Posts : 50
   Posted 5/26/2009 4:52 PM (GMT -6)   
Saw my doctor today. He ordered blood work and a urinalysis. He seems to think it's a protein/malnutrition issue.

MMMNAVY - I asked him about heart disease, because it is a prominent issue in my family, and he told me I was too young. (23) If nothing comes of this blood work, I will definitely push the issue of heart disease. Thanks!

I really appreciate all the input! Thanks.


Sylph
Regular Member


Date Joined May 2004
Total Posts : 362
   Posted 5/26/2009 8:06 PM (GMT -6)   
I don't mean to scare you, but I had a friend drop dead at 27 from heart disease. Don't let it go. If this stupid disease can effect every other organ, why not the heart says I....
At the very least ruling it out will reduce your stress which will in turn help you feel better.

mintyamy
Regular Member


Date Joined Mar 2009
Total Posts : 50
   Posted 5/28/2009 6:15 PM (GMT -6)   
Dr called today with results. My hemoglobin, protein, and potassium are all really low. He said to start taking protein supplements, iron, and eating a banana a day. We'll see. Thanks again!


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6923
   Posted 5/28/2009 6:53 PM (GMT -6)   
Just do not ignore any heart issues if you happen to feel them potassium is part of what it takes for muscles to contract and the heart muscle needs potassium to beat properly and regulate blood pressure.

http://www.weightlossforall.com/potassium-rich-food.htm

Ignore the weight loss thing, just look at all the foods that have potassium.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


BeeSting
Regular Member


Date Joined Nov 2008
Total Posts : 392
   Posted 5/30/2009 4:36 PM (GMT -6)   
Had the same problems some years ago, had the symptoms for 2 - 3 years. Asked my GP, he ignored my question, so I thought that this was nothing to be concerned about. If this was today, I would ask him to let me meet a specialist in cardiology. Often swollen ankles could be a sign of heart issues.

Interesting that swollen ankles also could be a sign of malnutrition or artritis when having Crohns disease though.

Post Edited (BeeSting) : 5/31/2009 4:09:42 PM (GMT-6)


jhicks
Regular Member


Date Joined May 2009
Total Posts : 176
   Posted 5/31/2009 1:18 PM (GMT -6)   
Does this mean you ultimately had heart problems?

geordie lass
New Member


Date Joined Jan 2009
Total Posts : 2
   Posted 5/31/2009 5:13 PM (GMT -6)   
hi and yes i sometimes get the swelling also and it comes and goes as it pleases . Not only do i get it in in the ankles but in my knees elbows and at times hips . My main places for swelling tho is my hands ,not only do they swell but they get very hot and sore . I was until last week on inflixamab which maybe called something else if your not in england as i am ,which is supposed to be helpfull in crohns disease and also arthritis but i found it makes my joints feel worse but doesnt matter now anyways as my last infusion i had a recation and am unable to have anymore. I hope this helps and you can find some answers from your doctor .Good luck geordiedi x    
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