I went to get my Remicade last week and was denied. I was told that my appointment was changed. Their response was that they send me a letter. No they didn't(it happen once before). Umm... they have both telephones numbers. I was told and shown that the doctor had change my Remicade schedule in May. So now I don't like the nurses, again. I had to take off from work, again. It takes me over an hour to get there. Gas is high. I was already feeling bad. I was cussing over the phone with my sisters, trying to calm down. So I decided to go to E.R. because of the pain. I ended up being admitted!!! I was there for 4 1/2 days. I did not know Crohn's can mess up with your heart. So they did 2 EKGs. I was put on a heart monitor because of the high rate. I was really dehydrated. Lots lots lots lots of bloodwork. An up-to-date Ct scan. Instead of the chalky barium, I had to drink 3 1/2 bottles of diaulated barium to go along with the warming dye. So gross. The whole time I was there I was pump full of fluids, multivitamin fluids, steriods, nausea meds, and pain medicine. I didn't get Remicade until Sat(was admitted Wed). I wasn't allowed to eat until late Sat morning because no one read my Ct scan. I took the scan early Thursday morning and was promise results before lunch. My ivs kept infiltrating. I had a huge hump on my arm. My arm looked like a boob . My arms are bruised because the ivs kept changing and all that bloodwork I had to do. I was in a fog. I'm getting some of my energy back(didn't have much to begin with). Walking was really hard. Tuesday morning I got mother of all headaches. It was a constant blinding thumping headache. My eyes, neck, right shoulder and right arm was affected. I never had a headache like that. My sis says it was a migrane. I have a little pain now, but it is nothing like it was before. I was vomiting and crying; that made it worse. My arm still hurts a little. Since I was admitted to the hospital, they push my appointment back, again.
Next time I will stay home(that's why I didn't go to the ER for my head)