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MsRockonBelly21
Regular Member


Date Joined Dec 2008
Total Posts : 42
   Posted 5/22/2009 5:51 PM (GMT -7)   
Been so depressed on since I last seen my G.I in January. I still have pains and nausea, and vomiting. I had 1, 045mg Remicade in Feb, Mar, May and next month 6 days before my next G.I appointment.  I called and left a message(you never get a person, just answer machine) on Mar 31st I couldn't wait until my May 26th appointment cause of pain. I went to the E.R. and was given fluids and Dicyclomine for cramping and Prochlorper for vomiting and nausea(with no refills). Took some X rays and those vampires took more blood. E.R. doc said he was going to tell the Surgical Clinic and my doctor that I need the surgery. Got appointment notice in the mail for June 16th(the origninal date was May 26th)!!! I still can't believe they pushed my appointment back.  Complained to my primary doctor and she left a note for the head doc(I see students). G.I. doctors are only in the clinic at the hospital on Tuesdays. So the clinic closes at 4:30 pm. I'm always the last one walking out the door after 5:40 pm, even though my appointment time is 10 am.  I got another appointment notice in the mail 2 weeks ago, my appointment is still June 16th. I don't know what to do. I am thinking of stopping treatment again(the longest I went without was a little over 2 years.) 
 
 Oh, I forgot I am now on 40mg of Citalopram. I don't feel a difference(on 40mg since first week of April). I don't see my primary doctor until October. I am toying with the idea of contacting her. So my mental health sucks like my physical health.
 
I am sorry in advance cause I need to rant. I have no support at home. In the last few months I have talked more than I have in all my life(I am extremely quiet person). I am talking cause I scared and no one is listening. I am just scare. I am just crying and crying and crying. It is hard to take days off. I am a babysitter with monstrous student loan debt. Here's the thing I babysit 5 really really awful, smart of the tongue, fighting, name calling, throwing things, destroying things, not listening, lying kids(my nieces and nephews). I have them more than their mom(older sis). To make her story short, she is a single mom and life is still not together. Her oldest is 11 and I have watching him for 10 years. She never ask me, she forces me to. I am the mother and father. She is either moving to a new place or staying with mom and me years on end. She barely contribute to the household. I do the majority of the work. I am the chauffeur, the cook, the maid, the butler, errand runner, the enforcer of her kids, homework aide, etc. All this while I walking bent over due to cramps. Vomiting and crying in the garbage. I wouldn't care if she would come home when she says and her kids would actually listen. I have to bring her kids to functions even though she is doing nothing. I have to watch them at functions when she is sitting there doing nothing. Hell! I have to correct their behavior and she is sitting right by me!!! I have no life because of choices she made(and still making). Okay there's more but I already wrote too much. Another long story cut short: I do everything for everybody and they don't care.  My family(parents included) has me more crippled than this disease.
 
Please I need advice, kind words, plesant thoughts because I can only cry so much.
Don't judge a book by its movie.
 
In the past I have taken Asacol, 6mp, Prednisone(3x),  Remicade, Flagyl, Cipro, Phenergan, Colazal(think there was others).                       
 
I am on Metoprolol 50 mg for high blood pressure and heart beating too fast. On Citalopram 20 mg for my anxiety and depression. Started taking fish oil capsule 1200 mg for my high cholesterol. On Calcium 600 mg+ D 400 i.u.  pills. On Remicade 1,045 mg 
 
Diagnosed at age 14 in 2001, first started sick getting at age 13, Sept 2000. I am now 21


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 5/22/2009 5:59 PM (GMT -7)   
Oh my god...saying 'I'm sorry' does not suffice. I can't believe the situation you're in. Is there ANYONE that can help you? Any place you can go? You deserve so much better than this.
Is there a counseling center you might be able to go to?
I'm assuming that speaking with your sister hasn't yielded any results. But you have GOT to make someone listen. Is there any way she would wake up if you left and did something to take care of yourself instead of her children?

I wish so badly I could help you...
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 5/22/2009 6:58 PM (GMT -7)   
I am guessing that you are unable to get a place of your own. Is it possible for you to go stay with a friend for a couple days just so you can get some rest and gather your thoughts? If you could do that, your sister would be forced to take care of her kids or make arrangements for them. Your situation sounds awful. I am appalled that youor parents are letting this behavior go on and that they are not realizing the negative impact this has on your health.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/23/2009 8:51 AM (GMT -7)   
She had those kids, those are her kids, its time for you to say NO!!! Your health is more important than anything. Its time you put a stop to this. What the heck is she going to do if you end up having surgery? I too am shocked that your parents are allowing this. Someone needs to be an advocate for you, and if your parents won't do it, then you just need to put your foot down and say no.

Big Hugs
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 5/23/2009 12:18 PM (GMT -7)   
Hi sorry to hear you are having a rough time at the moment i noticed you said you are on citalopram i too took these but have recently changed to EScitalopram which i feel are alot better than just citalopram maybe ask your doc about these.also sweetie you need to start thinking about yourself and not have to be worrying about other peoples kids which is obviously adding extra stress to your health. i hope you get sorted out soon at the hossy to take care and keep us posted. Bev x 

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 5/24/2009 11:36 AM (GMT -7)   
I just wanted to check in and see how you are doing. Have you been able to work anything out??
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."


MsRockonBelly21
Regular Member


Date Joined Dec 2008
Total Posts : 42
   Posted 6/8/2009 12:50 PM (GMT -7)   
The only things that has change since 5/22 is that it is summer and she has enrolled in school(LPN studying for RN). AGAIN!!! Which means I went backwards again. I tried everything and they still don't care. The only contact I have with friends is through myspace(used to be my best friends at school). I have Remicade appt this week and I finally have my G.I. appt next week(last seen was Jan). Everytime I mention my mental health, she smiles and thinks I am talking about my physical health.
 
 I just wanted to be selfish and lazy for my birthday. I wanted attention. For my birthday I wanted a tattoo(been wanting since middle school).  I couldn't get it because she had to work and I had to bring her eldest to some function at his school that was meant for PARENTS. So I ended helping her clean her house(she is finally move, again).The function was suppose to last 30 minutes, ending going a little over 2 hours. The eldest is the worst( He hates me, I'm stupid). Before she went to work, once again she had to go somewhere. She brought them food, but left in the car. So I had to go to the store spent the last few dollars I had because it wasn't payday yet. My other sister and brother-in-law brought me a birthday cake and card. It was past the kids bedtime when me and nephew finally got home. I burned the pizzas cause yelling at them and not paying attention , so they just ate the  top and complained.  My other sis and bro-in-law couldn't stay late, work the next day. My mom was with her mom. It was written all over their face how sorry they felt for me.  My dad didnt't even tell me Happy Birthday. I was longing for the days when the when the whole family would gather around the kitchen table, turn the all lights off. and sing Happy Birthday. (sigh) I am stuck in the past. We decided to go to my fave Chinese restaurunt without the kids to make up for my b-day. The air was thick with nobody didn't want to be there. I just wanted to be selfish and celebrate my b-day. I got my tattoo a week later. It is a cross with a rose in the middle(mom help me pick out). I think she was telling me to go back to church. I was close to tears talking with the artist and his friend about life. Why is talking to strangers so comforting?
 
I am tired of lying about my life to friends, neighbors, and extended family members. I thinks she is getting back at us because when she finish high school she couldn't go to college. She had to watch my bro, other sis, and me(parents always working).
 
I never heard of  EScitalopram. When I go to my G.I. I going to ask for a closer appt(October something when I go back) with my primary doctor.  I can't go to a counseling center  because I wouln't have the time. I keep thinking about to the E.R. and lie so they would have to admit for a couple of days smilewinkgrin   
 
I thank yall for your concern, suggestions, and advice. I always feel better when I come here. yeah
 
 
 
 
Don't judge a book by its movie.
 
In the past I have taken Asacol, 6mp, Prednisone(3x),  Remicade, Flagyl, Cipro, Phenergan, Colazal(think there was others).                       
 
I am on Metoprolol 50 mg for high blood pressure and heart beating too fast. On Citalopram 40 mg for my anxiety and depression. Started taking fish oil capsule 1200 mg for my high cholesterol. On Calcium 600 mg+ D 400 i.u.  pills. On Remicade 1,045 mg 
 
Diagnosed at age 14 in 2001, first started sick getting at age 13, Sept 2000. I am now 22 yrs old.


atctackett
Regular Member


Date Joined Oct 2008
Total Posts : 114
   Posted 6/8/2009 1:14 PM (GMT -7)   
I am sorry that you are having to deal with these situations. I agree with those that have posted before me that if no one else will be your advocate, then you will need to stand up and demand to be heard. I am appalled that your parents are not more supportive, especially in the area of your sister and her kids. You should not have to be the one raising them. I hope that you are able to find some form of a resolution to some of these issues soon and are able to focus more on your own mental/physical health. With your GI, have you specifically mentioned being depressed? Definitely make sure that you mention it to your general doc. I am hoping that things improve. You are in my thoughts and prayers.
Shawn
 
Diagnosed with Crohn's in July 2005. 2 Bowel Resections in 2008.
Currently taking Pentasa 1000 mg 4X/Day, 6MP 100 mg/day, multivitamin, Lopressor 100 mg/day (Blood Pressure), Remicade IV every 6 weeks, Omeprazole CR 40 mg/day, Percocet for pain, Lomotil, & Phenigren PRN


MsRockonBelly21
Regular Member


Date Joined Dec 2008
Total Posts : 42
   Posted 6/9/2009 11:28 PM (GMT -7)   
Atctackett, thanks for having me in your thoughts and prayers. I really really apprecaite it!!! My GI knows I am on depression meds. He even suggested taking 2 or 3 depression meds(at that time I was kind of okay). He even suggested in the future(he said this in Jan) I might need a psychartist. He only asked about mental health because he notice in my charts that my primary doctor put me on depression medicine. Bout time I finish babysitting them, they are going pushing my wheelchair smilewinkgrin . At least they finally moved out, again. She is finishing the last details on their house. But she still gone for hours on end: on my off days, before work, and after work. One day I was fed up and shouted "People die from Crohn's. Stress is making it worse". Only my other sister cared. My oldest sis has the  whole family stress since 1999. My parents aren't in the best shape, but they could at least recognized that I am not in the best shape either. My take is that I have to do the majority one because I'm the youngest. They complained to me, but won't say a word to her. Just tired of the years, money, energy, and time on kids that do not respect me. Well I guess get ready for another dose of Remicade, that do not work. Will keep in my mind not to strangle my G.I. next week. Peace turn
Don't judge a book by its movie.
 
In the past I have taken Asacol, 6mp, Prednisone(3x),  Remicade, Flagyl, Cipro, Phenergan, Colazal(think there was others).                       
 
I am on Metoprolol 50 mg for high blood pressure and heart beating too fast. On Citalopram 40 mg for my anxiety and depression. Started taking fish oil capsule 1200 mg for my high cholesterol. On Calcium 600 mg+ D 400 i.u.  pills. On Remicade 1,045 mg 
 
Diagnosed at age 14 in 2001, first started sick getting at age 13, Sept 2000. I am now 22 yrs old.


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 6/10/2009 4:20 AM (GMT -7)   
I would tell your sister flat out that your not watching her kids, or don't be there when she brings the kids over for you to watch. She nedds to stand up and be a parent!
It's time to start living for yourself!
Wihing you the best.
Wolfie
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/10/2009 6:49 AM (GMT -7)   
I agree with with Wolfie. Its time for YOU to say NO!! No one else can do this for you except YOU. Good luck!
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

MsRockonBelly21
Regular Member


Date Joined Dec 2008
Total Posts : 42
   Posted 6/18/2009 9:46 PM (GMT -7)   

I went to get my Remicade last week and was denied. I was told that my appointment was changed. Their response was that they send me a letter. No they didn't(it happen once before). Umm... they have both telephones numbers. I was told and shown that the doctor had change my Remicade schedule in May. So now I don't like the nurses, again.  I had to take off from work, again. It takes me over an hour to get there. Gas is high. I was already feeling bad. I was cussing over the phone with my sisters, trying to calm down. So I decided to go to E.R. because of the pain. I ended up being admitted!!! I was there for 4 1/2 days. I did not know Crohn's can mess up with your heart. So they did 2 EKGs. I was put on a heart monitor because of the high rate. I was really dehydrated. Lots lots lots lots of bloodwork. An up-to-date Ct scan. Instead of the chalky barium, I had to drink 3 1/2 bottles of diaulated barium to go along with the warming dye. So gross. The whole time I was there I was pump full of fluids, multivitamin fluids, steriods, nausea meds, and pain medicine. I didn't get Remicade until Sat(was admitted Wed). I wasn't allowed to eat until late Sat morning because no one read my Ct scan. I took the scan early Thursday morning and was promise results before lunch. My ivs kept infiltrating. I had a huge hump on my arm. My arm looked like a boob turn . My arms are bruised because the ivs kept changing and all that bloodwork I had to do. I was in a fog. I'm getting some of my energy back(didn't have much to begin with). Walking was really hard. Tuesday morning I got mother of all headaches. It was a constant blinding thumping headache. My eyes, neck, right shoulder and right arm was affected. I never had a headache like that. My sis says it was a migrane. I have a little pain now, but it is nothing like it was before. I was vomiting and crying; that made it worse. My arm still hurts a little. Since I was admitted to the hospital, they push my appointment back, again.

Next time I will stay home(that's why I didn't go to the ER for my head) smilewinkgrin


Don't judge a book by its movie.
 
In the past I have taken Asacol, 6mp, Prednisone(3x),  Remicade, Flagyl, Cipro, Phenergan, Colazal(think there was others).                       
 
I am on Metoprolol 50 mg for high blood pressure and heart beating too fast. On Citalopram 40 mg for my anxiety and depression. Started taking fish oil capsule 1200 mg for my high cholesterol. On Calcium 600 mg+ D 400 i.u.  pills. On Remicade 1,045 mg 
 
Diagnosed at age 14 in 2001, first started sick getting at age 13, Sept 2000. I am now 22 yrs old.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/19/2009 6:07 AM (GMT -7)   
It sounds though like you really did need to be in the hospital. Plus, your sister had to take care of her own kids, not you!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 6/19/2009 9:13 AM (GMT -7)   
Hi so sorry you are having a really hard time of it i can relate to some of it especially where hooy is concerned in sept i was going backwards and forwards to A&E and would be put on fluids i wasn't able to eat because of the pain i had after eating the doc said they would refer me to a specialist doc i got the appointment through a few days later for 23rd Dec  I was now just on ensure and had lost alot of weight went to the appointment to be told that crohns wasn't his field!!! and he refer me to the right person that appointment came through which was 27th feb i asked for a nearer one but was told none was available in the end on 3rd jan my mum and dad took me to A&E and told them they wouldn't be taking me home until i had been admitted and sorted out. which they did because by now i was dehydrated not eating and had lost over 2 1/2 stone i'm now finally getting back to normal.i to took citalopram my GP changed them the other day as i felt they were not working lately and has put me on SERTRALINE 50MG per tablet he said these are much better i have only taken them for a few days and feel totally relaxed maybe speak to your doc and get yours changed hoping you get sorted out soon Bev x :-)
Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma
 No maintance drugs as such on B12 shots,iron syrup,loperimide, 20mg EScitalopram 4 anxiety.


MsRockonBelly21
Regular Member


Date Joined Dec 2008
Total Posts : 42
   Posted 6/26/2009 1:55 PM (GMT -7)   
Head doc told my doc increase Remicade and see what happens. Older sis and kids are still getting on my nerves. I am so emotional and physical drain.

Don't judge a book by its movie.
 
In the past I have taken Asacol, 6mp, Prednisone(3x),  Remicade, Flagyl, Cipro, Phenergan, Colazal(think there was others).                       
 
I am on Metoprolol 50 mg for high blood pressure and heart beating too fast. On Citalopram 40 mg for my anxiety and depression. Started taking fish oil capsule 1200 mg for my high cholesterol. On Calcium 600 mg+ D 400 i.u.  pills. On Remicade 1,045 mg 
 
Diagnosed at age 14 in 2001, first started sick getting at age 13, Sept 2000. I am now 22 yrs old.


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 6/26/2009 3:48 PM (GMT -7)   
first of all these are not your kids why are you taking care of them? Does your family not know how sick you are ?
Don't the kids have a dad or something ?

I feel for you for having a family that does not seem to care about your illness.
I could never managed these last months with out my family and friends.

I think you need to sit down with your family and tell them what you can and can not do :(

Big hugs and best of luck hope things get better for you.
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~

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