Blossom .1st thing, my doctor said that it was 3 months to see if it would work. I still have 2 shots left so a months worth. Since being on humira I have been feeling worse and gaining weight none the less. I have had a lot of side effects from it and I dont like how I feel on it. Fatigue mainly. My doctor wants to do another colonoscopy and an upper endoscopy himself to see if my previous doctors have missed anything. I requested the celiac test to be sure. I have also been told by my doc that the blood test isnt always right. I can be celiac and still have the blood test come back negative. Which in my case the blood draw came back negative. There have been many people on this site as well that have said this.
It's not that I'm against surgery (or colonoscopies), it's just that I hope you get as much information as you can first, so that you are able to make informed decisions. One doctor's opinion is not necessarily another's. Maybe get a second and third opinion to help you make the "best" choice for yourself. Also, the members on this board have EXCELLENT input when it comes to their personal experiences regarding medications, surgery, etc.
I commented to you about the Humira and giving it 6 months, because I did some research and also made some phone calls---not only to the manufacturer of Humira, but also to the pharmacy that mails my prescription to me. I have heard many times that giving it 6 months was reasonable. My personal experience was that Humira did not seem to be helping me either (I ended up in the ER with a partial bowel obstruction 2 months after starting the Humira). My GI indicated that I hadn't been on Humira long enough to see whether or not it would help me. Fast forward 3 more months, and I seemed to be getting worse. Recent colonoscopy shows FURTHER narrowing of my IC valve. I'm still staying on the Humira for now until I get biopsy results. This is the LAST medication that I know of that I can try. Looks like surgery will be next step.
I'm telling you all this because it also sounds like Humira is your "last hope" for meds, as it sounds like the others didn't work for you. I would just give it more time (unless you're in a full blown bowel obstruction, of course) so that you'll know in your own mind that you've tried everything first.
Of course, this is only my opinion. You are your own person and have to decided for yourself what's best for you. You reached out to us, so we're just giving you our experiences and opinions.
Again, GOOD LUCK, and I wish you the best!! :)