Diagnosed w/ Crohn’s Disease March 2007 Started Humira June 2008 (have been on other cd meds)
Diagnosed w/ Fibromyalgia May 2007 on Soma and Lyrica
I am so sorry the visit didn’t go well. I am currently in a lot of pain after having a mushroom drain inserted into a fistula/abscess after the setons I had inserted did not drain the infection fast enough.
I have found, however, that setons are great in terms of keeping things under control. I only had mine (2) for around a month before the infection came along and they removed one of them and left one in, but setons are quite comfortable after you have healed from the initial surgery. You can wrap some gauze around them instead of using liners to make it easier to catch the drainage.
Are setons an option for you at all?
I have this big scary awful tube poking out my butt at the moment while the infection heals, and I have no idea how long it’s going to be there. Being a 23 yr old female and trying to work full time (sitting alllllllll day) makes it extremely difficult with this tube poking out of my ‘infected butt’. I feel your pain and hope they can come up with a solution for you ASAP.
I had not heard about plugs before actually! At the moment I am going relatively ‘untreated’ for my crohn’s, something I hope to have changed soon, I am chasing up the hospital to try and get onto their gastro outpatient list so I can hopefully get access to some decent meds like remicade. Up until now I have had crohn’s for 4 yrs and was only ever offered pentasa or steroids. I had a terribly negligent GI (in my opinion). So my disease is very active but I am trying to get medical attention for it, its just taking a frustratingly long time.
I hope that once I try remicade it might help with my fistula/downstairs area and getting it healed up.