Haha I keep meaning to watch all saints since you last mentioned it but always seem to forget!
Maybe you should switch to house? :P
What did the character do this time?
Oh god; I’ve never watched all saints but it sounds terrible!! Maybe I can watch it for the laugh-factor one night….
I’m feeling OK Ivy how about you? How are the new setons going? Are they the same colour? They took one of mine out when they inserted this mushroom drain, and I was kind of sad about it because the seton was just starting to get comfortable. I still have my 2nd seton in. The new drain is very painful and uncomfortable because I have to sit on it all day long and it’s stitched into my skin, and getting up/sitting down/walking is quite painful. I have my follow up on Monday so hopefully then I can get some sort of idea of how long this thing will be poking out of my butt for.
I have been taking ½ doses of pain killers to get me through because I’m still struggling along and working fulltime L I am stubborn!
Oh ivy that’s awful I know that feeling so well. They gave me ‘digesic’ for the pain – but I only have a very few so I am trying to limit their use – I wish I had an unlimited supply! Less than 20 left and that has to keep me going till Monday.
Funny that I was only offered decent pain meds when I demanded them. I don’t think these drs have the faintest idea how painful these drains/ops/setons are!
The tubs is pretty awful; my butt looks like a construction site, pretty much. Stitches and a 6cm tube poking out. owch. Can’t wait to see what they say on Monday.
We were all wishing you well and thinking of you during the surgery….. is there a lot of pain associated with replacing a seton in an existing tunnel?
I think the 2nd seton I had which was in there might have been a ‘cutting’ seton to open the tunnel up. Have you heard of these? I think it might have opened a flap of skin between the fistula tunnel and my anus. If that makes sense. I hope that’s what its doing anyway. I just took a look and I’m at work and I pulled it more than I usually did and it seems to have cut the space between the tunnel and the anus open so it can heal though I’m not sure it’s so cofusing!
Argh I hate having to get out to get food!! Have you thought about meals on wheels for a bit to help you through? I was lucky to have my BF to do shopping for me, I would just write a list but I did feel guilty asking him, too. You need somebody who can do that for you!
You’re not rambling at all! Your info is so useful for me. Really Ivy you so often feel like my ‘crohn’s Gandalf’! I feel pretty lost in the system a lot of the time.
With my latest drain surgery they told me I would need to be on amoxicillin and flagyl but discharged me without the scrips because they couldn’t locate the dr to get it written. They told me to see a GP for the script. How ridiculous is that! I mean I could barely walk!
Luckily I had scripts left over to see me through.
I will try and get through to Monday with these pain meds. I am hoping it will get less and less sore as time goes on. I’m just so anxious to know how long I will have to have this tail for!
I was wondering about the quality of meals on wheels. A lady I work with does ‘lite and easy’ and the food she gets is fabulous – very fresh and they deliver it right to your door. I don’t know if it would be too pricey; but she does lunches and breakfasts five days a week and it comes to $70 (including delivery). Obviously it would be more if you were doing dinners also, and doing it for 7 days a week, but maybe it would be a thought for those times when it was hard to get out?
I wish we lived closer; if you lived in Brisbane I would happily go out and do some crohn’s-friendly shopping for you J
Yeah panadol or neurophen+ is always there as a last resort but they don’t really make the pain any less; its as if my body has become so used to them now they don’t do anything. I was taking them every day for weeks to try and get some relief from the pain of the abscess – excruciating pain – and didn’t think to ask for some decent pain meds. I think these should tide me over until Monday though.
I know that the lady I work with would highly recommend lite and easy. It is designed as a weight-loss system but you can choose different calorie-level plans, and it is pretty cost-effective from what I can see. Apparently you can check online all the foods you will receive and you have choices. At the moment there is a lot of winter comfort food available. Maybe just have a look online and see what you think….
That’s awful to hear about your mother; I think that with the everyday chaos of hospital so many people’s treatments get overlooked. You get caring nurses, and tough heartless ones. It’s just the luck of the draw I guess. I was lucky to have a lovely nurse when I woke up this last time, I asked her when she looked if my drain ‘looks scary’ and I was crying because I was frightened of what they’d put there and I’d woken up in so much pain, and she was so lovely. When I sat down on my side slowly in recovery she said ‘very gracious’ and whispered ‘noone ever need know why’. It was lovely.
Then I got stuck in recovery with a nurse who wouldn’t get me a wheelchair or my meds! Oh well. Everyone was too distracted with the horrifying flood waters.
It’s pretty unbelievable that I was never offered anything else for the pain – since everyone who looked at my abscess said they didn’t know how I had been functioning with that infection for so long since it was so painful. Maybe it’s a requirement that you request strong pain meds before the prescribe them? It’s the only explanation I can think of. I wince when I think of the pain I was in before with the abscess, I could hardly walk and would be crying when I had to walk somewhere, and hyperventilating from the pain! All I can do I guess is ask for some stronger meds on Monday when I see the follow-up team at the hospital.
I guess its one of those things that in hind-sight, you slap yourself for. I wish I had requested stronger pain meds earlier. Especially following my seton surgery (they only gave me ibuprophen!)
Oh my god! Those things are killers! I’ve heard so many people being bitten and poisoned so quickly by them. Lucky you found it! do you think there might be more around? Keep your eyes peeled!
I am thinking of buying a kitten this weekend; I’ve just been approved at my flat. Now I’m just umming and ahhing about it – it’s a big commitment. I know I could take it home with me if I drove down to see my parents, and my friends/bf could care for it if I went home by train/plane. I would love a little companion. It’s just a big decision and I’m a very indecisive person!
I think the problem is that a lot of drs don’t know all that much about the ‘ins and outs’ of crohn’s – I’ve also heard ibuprophen shouldn’t be taken by crohn’s patients. Don’t worry, I didn’t take it (because it never relieved the pain) – but I had been taking neurophen a lot – maybe the antibiotics stopped the flare? Though I am probably in a flare at the moment anyway, I think my tummy might just be a bit distracted by my bottom problems at the moment, if you know what I mean.
I wish I had asked for better pain meds. But I also wish I had better doctors to suggest them!