Information for my employer

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Sylph
Regular Member


Date Joined May 2004
Total Posts : 362
   Posted 5/26/2009 11:29 AM (GMT -7)   
Well, I'm finally back to work after 2 years, and it feels great! I may not be in remission, but my symptoms are controlled tolerably well.

Unfortunately I have to ask for some accommodations. While in the meeting to request said accommodations it became very (very) obvious to me that neither management or HR had any idea whatsoever about IBD. I had questions like:

Why will you need time for a nap during the day? (This when I told them I might be away from my desk for up to half an hour at a time or more)
If you can't come to work because your sick, than how could you possibly be productive at home (asked for a telework accommodation (part time only))
Why would flexible hours of work help you, either your sick or your not. Which is it?

Mornings are my personal hell. Usually after several hours of being sick, I'm relatively okay for the rest of the day, with bathroom breaks of course! Because I have to get up at 4 am to be at work by 8 I wanted to be able to come in to work late some days and make up the time later, or on days when I just don't have the energy to shower, etc to meet the dress code, that I could work from home, mainly just in the mornings. In the end they grudgingly allowed that I could come in as much as 2 whole hours late, like they were handing me the world on a platter, but telework was flat out denied, and in a position where I know it would be perfect for part time use (I had the job for 6 of the 13 years I've been with this employer).

So once again I'm asking for your help. I've looked everywhere for some sort of pamphlet that doesn't give all the hoary details (I don't think they need to know about my bloody diarrhea), is directed towards an employer, and still explains the challenges we face. Yes I know I don't look sick, yes I know I'm fat (man I hate pred) but I am sick and it's not going to go away!

So if you know of a place to get such information could you please tell me where?

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 5/26/2009 11:38 AM (GMT -7)   
Why don't they need to know about your bloody diarhea, I would tell them for sure.
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. 9mg prednisone. Udo's Choice Probiotics (30 billion). Can't tolerate any iron supplements or infusions.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 5/26/2009 12:13 PM (GMT -7)   
Maybe a note from your Doctor might help.
 
I was asked to apply for FMLA recently and my Dr was very good about answering the type of questions you posed without divulging any personal info about me. Maybe you can get some info from your doc about how mornings can be difficult?
 
I would not give them too many details and let them know the disease is unpredictable. Maybe let them know what you told us that mornings are hard when you have been sick all night. I can attest to that for sure!!
 
The reason working from home is ok for me is I can wear comfy clothing and even work on my computer lying down which cannot be done at work etc.
 
 
 I was told after working from home for 6 different days that I cannot do it anymore, they did not believe I was working all day when home mad I actually felt I got more work done at home but in the end was told I cannot work from home.
 
If they can give you 2 hours I would take it. I think Dr notes are a big help though!
Also, Apply for FMLA if you are qualified for it. It can help protect you as well.
maybe those 2 hours missed can be FMLA?
 
congrats on getting back to work!
Karen

 

 


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica

 

 


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 5/26/2009 12:23 PM (GMT -7)   

Sylph,

Congrats on getting back to work!

What's really great is that they are asking these questions. Why? Because it gives you a chance to answer them. In fact, I would encourage tons of questions.

At many other places of work, people might thinking these questions, but not voicing them. This makes it worse, because: a) it's harder for you to know what you are up against and b) so harder to effectively fight it. 


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 5/26/2009 2:04 PM (GMT -7)   

Sylph, unfortunately, people in mgmt positions and even HR aren't always up to date on the laws, etc (I'm in HR, by the way).  I know that, in order to request reasonable accomodations where I work (a university), you are supposed to fill out a form and have your doctor complete to say if the things are medically necessary.  Maybe if you were to write out your requests and have your doctor comment on each one as to why they are medically necessary, then they will be more likely to approve them.  Plus, if you have doctor's certification saying they are necessary and they aren't unreasonable cost wise, you can always file a complaint against your employer. 

Sometimes people in HR positions are very skeptical of requests like FMLA and reasonable accomodation.  Providing HR with information on the disease is a good idea but having a doctor certify that it is necessary for YOU will be more effective than providing them with an overview of what Crohn's can do.  Good luck!


Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


Sylph
Regular Member


Date Joined May 2004
Total Posts : 362
   Posted 5/26/2009 5:26 PM (GMT -7)   
Thank you to everyone who replied!

I do have a note from my doctor, requesting the exact accommodations that I asked for, and some of the reasons they would be helpful. I specifically requested my Dr. not to get too specific as I have found in the past that is has done more harm than good. I find it hard to think of all the answers I need to give them when under pressure. Later I think of all sorts of answers I should have given. That's why I'm looking for more general information that's geared towards an employer, so I'm still hoping one of you will know of a good handout.

Karendee, I worked in management for a while and I know that "productivity" measurement is always a concern when a person wants to work from home. Measuring productivity is harder for a manager to do when they can't see you at your desk, most are too lazy to bother trying. Never mind how many people are "presenteeing". Is it possible for you to give them a projected work outcome, or have them assign you tasks with a reasonable deadline? To arbitrarily just say Nope you can't do it anymore cause we don't believe your working, probably isn't supportable if you contested it. Also a lot of remote networks record connections so you could actually show them when your computer was hooked up. If you have an IT person to ask, they might be able to help with that sort of proof. You could also check your e-mail log (if your like a lot of us communication seems to go via e-mail) if you can show e-mails periodically through the day it would also be proof. Not that any of this helped me, but than I'm not finished fighting yet either.

Lastly could someone please tell me what FMLA stands for?

Good health to all (yes I know it seems far away, but someday they will find a cure!)

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 5/26/2009 8:39 PM (GMT -7)   

Family and Medical Leave Act

Overview

Covered employers must grant an eligible employee up to a total of 12 workweeks of unpaid leave during any 12-month period for one or more of the following reasons:

  • for the birth and care of the newborn child of the employee;
  • for placement with the employee of a son or daughter for adoption or foster care;
  • to care for an immediate family member (spouse, child, or parent) with a serious health condition; or
  • to take medical leave when the employee is unable to work because of a serious health condition.

More details in link below:


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 5/27/2009 7:09 AM (GMT -7)   
I think the CCFA website has a brochure for employers.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 5/27/2009 8:20 AM (GMT -7)   
thanks Sylph!! that is great advice!!

I have thought of bringing in my home computer and asking IT to add the work network to it. (I have a laptop)

I have access to most of my work , email, and our HR databases and payroll already from any computer.

Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica

 

 


CrohnsPatient
Regular Member


Date Joined Feb 2008
Total Posts : 314
   Posted 5/28/2009 3:46 PM (GMT -7)   
I believe Fitzyk23 is right. There is a little brochure on CCFA's website specifically for employers to read, atleast there used to be a few years back.

www.ccfa.com

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 5/28/2009 5:44 PM (GMT -7)   
I couldn't find it but you can call their "resource center" - I am sure they could get you a copy of it.
1.888.MY.GUT.PAIN
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 

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