Remicade question

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aim928
Regular Member


Date Joined May 2007
Total Posts : 38
   Posted 5/26/2009 4:55 PM (GMT -7)   
Hello! To all of you whose has been on Remicade, were you able to eat more things that you couldn't before? I am scared to go on it but on the other hand I am curious if I could finally eat an apple or celery? lol

Thanks!
Amy

ExJohnson
Regular Member


Date Joined Feb 2009
Total Posts : 128
   Posted 5/26/2009 4:57 PM (GMT -7)   
Yeah, remicade worked great for me the first round. I considered it my wonder drug. So for me, yes I was able to eat pretty much anything I wanted once it kicked it. The wonder of it all was how fast it worked. Like, three weeks. I'd say if you have insurance, give it a try.
I am a pre-30yr. old who has been diagnosed with Crohn's for 14 years.  Symptoms change from cramping and weight loss to severe anemia with fatigue and diarrhea. 
I'm DONE (D-O-N-E, DONE!!!) with immuno-suppressants.  Tremble, yee Pharmacuetical companies, for you will not withstand the aggressive onslaught of our healing!
new prescription from natural doc,
3.5 grams Chlorella daily.
4.5 mg Low Dose Naltrexone nightly. 


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 5/26/2009 5:12 PM (GMT -7)   
Remicade put my guts into remission. I could not eat any raw fruits or vegetables for 25 years. Now the only things I can't aet are Romaine lettuce and popcorn.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


want_2_be_well
Regular Member


Date Joined Sep 2006
Total Posts : 181
   Posted 5/26/2009 8:44 PM (GMT -7)   
Before Remicade I was not able to eat any nuts, raw fruit, basically anthing hard to digest.  Remicade has been a wonder drug for me, it not only enabled me to eat again but gave me back a decent quality of life.
want_2_be_well
33 year old Female
Diagnosed with CD 2006, had suffered long before 2006.
CD Meds: Remicade every 7 weeks & Imuran 50 mg,
Also have seasonal allergies, milk allergy, and asthma.
  
 


CrohnsPatient
Regular Member


Date Joined Feb 2008
Total Posts : 314
   Posted 5/28/2009 5:00 PM (GMT -7)   
When I was on Remicade I considered it my wonder or miracle drug. No contest, hands down, the best for me. And there should be no reason to be scared, no more of a reason then any other medicatino you take, i mean think about the issures and problems that can accompany steriods, lots of things, some even life-threatening. The bottom line is...the benefits outway the risks by far, or it wouldnt even be on the market, and if somehow it made it then YOUR dr wouldnt bring it up for you to be on.

Trust your doctor. I find thats a major issue around here. People might not notice this but lots of problems people have is because obviously they dont trust their doctors and team, in which case why are you still with them? This is a serious disease people...trust your doctors or find one that you can, this is going to help in getting you better and healthy or keeping you healthy, trust me. the Placebo effect is very real...so if you trust your dr and believe what he suggests will work then the placebo effect will be much more likely to work

jenngrl81
Regular Member


Date Joined Oct 2007
Total Posts : 208
   Posted 6/1/2009 10:31 AM (GMT -7)   
ExJohnson said...
Yeah, remicade worked great for me the first round. I considered it my wonder drug. So for me, yes I was able to eat pretty much anything I wanted once it kicked it. The wonder of it all was how fast it worked. Like, three weeks. I'd say if you have insurance, give it a try.

How long were you on it? I've been on it since July of '08 and my doc is trying to wean me off of the Imuran I'm also taking. Just wondering how long I have to be on Remicade to not have any relapse effect of the disease.


Pentasa- 1000mg/2x 1/08; Percocet
Remicade 1st infusion 7/24/08
Ultram ER 200mg; Prilosec 40mg; Xanax-ANXIETY; Cymbalta 60mg
Entocort 9mg
Probiotic
Ferrous Sulfate 325mg/daily for anemia
Azathioprine 150mg
Currently on a Low-residue diet as of 11/26

I'm so tired, when will this get better?


omigrandma
Regular Member


Date Joined Dec 2008
Total Posts : 57
   Posted 6/2/2009 10:05 AM (GMT -7)   
Remicade is the miracle drug for me. It's the first drug in 30 years that has given me any hope. I am beginning to have what I call "little nuggets of hope." And once in a long time they are little larger"nuggets of hope." But as far as my diet goes, nothing has changed. I eat a completely gluten and wheat free diet. I eat absolutely no dairy, and no raw fruits or vegatables. That's quite the bummer living in South Florida, but the diet helps. I still drool over the fruit and vegetables but the rest I can find in good supermarkets and health food stores. I am on so many more meds for Collagenous Colitis as well as the Crohn's and I have so many other issues. I am waiting the results of an MRI of my right hip due to Crohn's Arthritis. The Remicade has given me hope that something can work for me.
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