Hookworm Therapy?

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Sinusallplugged
Regular Member


Date Joined May 2005
Total Posts : 92
   Posted 5/28/2009 2:47 AM (GMT -7)   
Has anyone heard of Helminthic Therapy? Or more precisely known as hookworm therapy as a cure for Crohn's? I just recently read a few articles online about infecting yourself with this and supposedly seeing some relief.

http://www.disinfo.com/content/story.php?title=Hookworm-Therapy-As-Treatment-Crohns-Disease-1

I'm also currently trying out a Low Dose Naltrexone to see if that offers any relief for the future.

I'm trying to find some alternatives because I don't want to stay on toxic Remicade the rest of my life.

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 5/28/2009 4:20 AM (GMT -7)   
I've never heard of it, I have heard of LDN and the results are really good but my doctor won't prescribe it for me.
I too want to stay on less toxic drugs, I hope something new and safe comes on the market soon.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/28/2009 2:10 PM (GMT -7)   
Check out the worms info in the new meds thread, which you can see in my signature.

Ivy.
Co-Moderator Crohn's Forum.

New meds thread


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 5/28/2009 3:26 PM (GMT -7)   
wow i haven't heard anyone bring that one up for a while...
SCD since 01, remission since 01, occasional random junk food breaks :)
No meds ever.


Sinusallplugged
Regular Member


Date Joined May 2005
Total Posts : 92
   Posted 5/29/2009 6:05 AM (GMT -7)   
Can we get some feedback from HW members on this? Anyone try this out? I'm curious to know what effects, if any, it had.

Wolfie...My GI didn't want to touch the LDN thing either, so I went to another doctor who really believes in this stuff and gave me a prescription. If you really want it I'm sure you can find another doctor willing to write you one.

Post Edited (Sinusallplugged) : 5/29/2009 7:11:15 AM (GMT-6)


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2831
   Posted 5/29/2009 7:51 AM (GMT -7)   
I have used pig whipworm eggs, TSO, with considerable success to dampen my UC (concurrently knocking out my seasonal hay fever completely), but I was unable to stay off of prednisone to avoid flaring and was eventually forced to resort to biologics, which so far have also failed to get me off pred. However, at least the biologics are "free" (paid for by healthy people's steep insurance premiums, to be exact) even though the actual cost of biologics, running into many tens of thousands a year, is much greater than the still steep cost of TSO.  Unfortunately my GI won't let me combine the two therapies- that is the only reason I stopped TSO.  I did try hookworm as well for my UC but it had no effect after 5 months so I killed them off. HW seems to be more effective for Crohn's, however, than for UC.
 
CBS News in the Bay area recently ran a story on Hookworm for Crohn's: http://cbs5.com/health/hookworm.treatment.therapy.2.1016319.html
 
This in turn generated an article with interesting discussion as well as links on boingboing.net: http://www.boingboing.net/2009/05/26/is-crohns-disease-on.html
 
I am extremely interested in trying human whipworm for UC, which should be available shortly along with hookworm, and I would expect will be even more effective than TSO, since TSO is a pig whipworm.  Bear in mind that the side effects of small, low dose worm infections on humans are minor (billions - yes you read that right, billions- of people have asymptomatic light infections) and reversible and that humans and these parasites have co-evolved for millions of years, whereas the side effects of biologics- which can include death- have been studied only for 10 years or so.  The hygiene hypothesis is backed by science solid as a rock and the number of pubmed citations in this area keeps growing exponentially.


Pancolitis >20 years, allergic to all 5ASAs
Tried everything under the sun (natural and alternative)
Some partial success with TSO but was too expensive to keep up 
Remicade Humira, lots of probiotics, entocort, tapering pred again, maybe surgery this year
 
 

Post Edited (Probiotic) : 5/29/2009 8:57:53 AM (GMT-6)


BeeSting
Regular Member


Date Joined Nov 2008
Total Posts : 392
   Posted 5/29/2009 1:55 PM (GMT -7)   
Wolfie40, I have used LDN now for 2 years with terrific success, and if you want to find a doctor willing to prescribe LDN there are different solutions. One is to find a new GP by asking your local pharmacies if they could tell you what doctors that actually prescribes LDN in your neigbourhood. You could also ask at www.yahoo.com there is a lot of LDN support groups there. And some of them are having Crohns, and could give you even more support.

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/29/2009 2:46 PM (GMT -7)   
Keah, one of our mods, used the therapy too. If I can remember rightly, you can find her description of her experiences in the aforementioned new meds thread.
Co-Moderator Crohn's Forum.

New meds thread

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