just need to vent...

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MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/29/2009 7:26 AM (GMT -7)   
Well the VA said it was going to refer me to an IBD specialist.  I asked for the Mayo clinic in Rochester.  They refer me to the quack GI down the road who missed my mother's stage four ovarian cancer. 


Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 5/29/2009 8:37:08 AM (GMT-6)


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 5/29/2009 8:46 AM (GMT -7)   
And they can't understand why you would be hesitant, to put it mildly, to go to this GI?
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
http://bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


ExJohnson
Regular Member


Date Joined Feb 2009
Total Posts : 128
   Posted 5/29/2009 8:47 AM (GMT -7)   
I'm in the middle of trying to find a new GI. It's unnerving to feel like you're the one more on top of things than the doc.
I am a pre-30yr. old who has been diagnosed with Crohn's for 14 years.  Symptoms change from cramping and weight loss to severe anemia with fatigue and diarrhea. 
I'm DONE (D-O-N-E, DONE!!!) with immuno-suppressants.  Tremble, yee Pharmacuetical companies, for you will not withstand the aggressive onslaught of our healing!
new prescription from natural doc,
3.5 grams Chlorella daily.
4.5 mg Low Dose Naltrexone nightly. 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/29/2009 8:52 AM (GMT -7)   
OH NO!!! Can you go back to them and request another doctor due to prior bad experiences with this doc? I am so sorry that you have to add this to your list of worries. I hope you are able to get another doc.

Big Hugs
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/29/2009 2:40 PM (GMT -7)   
Grrrrr. Oh, Navy. You're not in the Forces anymore; they can't *order* you to go there, can they?
Co-Moderator Crohn's Forum.

New meds thread


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 5/29/2009 5:21 PM (GMT -7)   
ditto everyone else. Call your primary back and say that you would prefer another specialist and tell them in no uncertain terms why.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6050
   Posted 5/30/2009 2:45 AM (GMT -7)   
good luck navy.
randynoguts 



     http://www.geocities.com/randynogutsweb/


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/30/2009 6:15 AM (GMT -7)   
Randy, I am so glad to see you is your GI in the VA network?

I am requesting another specialist. No, they cannot force me to go to this guy.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 5/30/2009 8:16 AM (GMT -7)   
Hi Navy Best of luck and hope it pans out for you..lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail
"Blessed are those that can give without remembering and recieve without forgetting ~Aurthor Unknown~


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 5/30/2009 8:38 AM (GMT -7)   
Hi, lets hope you get a GI that knows what their doing best of luck with your search. Bev x

Diagnoised with crohn's at 13 now 42
resection, right hemi 1993
In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma
 No maintance drugs as such on B12 shots,iron syrup,loperimide 20mg  EScitalopram 4 anxiety.


vietvet
Veteran Member


Date Joined Jan 2005
Total Posts : 1510
   Posted 5/30/2009 9:15 AM (GMT -7)   
i was gonna say, in a city that size, there's gotta be more than one specialist in the system. i guess the next question is will the next guy be any better or just different? just full of encouragement, huh, navy? eyes blush good luck!

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/30/2009 12:32 PM (GMT -7)   
:) They will do it if I have to get freaking law degree to force them to take care of me....LOL I just should have been more specific.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 5/30/2009 1:00 PM (GMT -7)   

Navy,

Are you talking Mayo in Rochester? Like in MN.  They have an awesome GI clinic and you would only be 40 mins from me.  :) You hold out for the best.  This is your life and you need someone that has a good reputation and knows the latest in procedures and treatments.

You go girl.

Kitt


 

Kitt, Co-Moderator:
Anxiety/Panic, 
Depression,  & 
 
 GERD/Heartburn
*~*
http://www.healingwell.com/donate *~*
"When you find peace within yourself, you become the kind of person who can live at peace with others."
Not a mental health professional of any kind
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