For MMMNAVY: lupus

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jhicks
Regular Member


Date Joined May 2009
Total Posts : 177
   Posted 5/29/2009 9:56 AM (GMT -7)   
You mentioned in another post that you ended up with Remicade and Humira-induced lupus. Did it go away once you discontinued the drugs? I have been tested/suspected of having lupus for years. My ANA tests are always negative, but my GI has suggested Remicade. The lupus and potential cancer associated with Remicade are giving me serious pause.
What can you tell me?
Thanks.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/29/2009 10:17 AM (GMT -7)   
jhicks, I would do whatever it takes for you to get better. Do not be scared of the side effects of biologics, it is statistically unlikely that you will have an issue.  But if you do it is really easy to feel it.  It makes you feel so much worse. I have been told that I probably had "latent" lupus and just never knew it. After I was taken off of biologics the lupus got better, but did not completely go away. I think people who are over the age of 25 seem to have more of an issue with the lupus issue. 


Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 5/29/2009 11:25:39 AM (GMT-6)


jhicks
Regular Member


Date Joined May 2009
Total Posts : 177
   Posted 5/29/2009 12:08 PM (GMT -7)   
Well, I'm a bit over 25. LOL. Just left my GI, and he seems to think Imuran would be better for me b/c you can't stop and restart Remicade.

I am just so confused and overwhelmed!

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/29/2009 12:14 PM (GMT -7)   
Then start the Imuran, I was on remicade and immuran at the same time.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

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