crohns and liver disease

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sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 5/29/2009 1:17 PM (GMT -7)   
In my third month following ileostomy and total proctocolectomy--crohn's finally got the best of me. Routine blood work showed elevated liver functions and I went for a liver biopsy today. GI says this is fairly common in crohn's. I don't hear too much about it. Anyone out there with thoughts? He says the blood work indicates I have one of three conditions. I'm not too happy.
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/29/2009 1:40 PM (GMT -7)   
I don't have any kind of liver disease, but I will tell you I had to have a liver resection because of a benign tumor on my liver (not a cyst). Its amazing to me how much this dd effects the rest of your body.

Hugs
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

OriginalAreU2
Regular Member


Date Joined May 2007
Total Posts : 89
   Posted 5/29/2009 1:47 PM (GMT -7)   
I was thought to have Primary Bilary Cirhrosis.....but they have changed that in the last year to Primary Schlerosing Cholangitis.....both are autoimmune related, as well as Crohns, and have a higher connection to those with the intestinal diseases.
What were the ones they mentioned to you?
Diagnosed 4 years ago. been  a helluva ride since.  If there is a side issue to this dd I can find it.  I suffer with Pyoderma Gangrosum and horriffic mouth ulcers that get to the point I can't open my jaws.  Last one was nice enough to create a fistula and  add to my list of fun things to deal with.
Been on all kinds a things, currently on Imuran 50 mgs and it at least give me some confidence in leaving my home.
Allergic to Remicade. Promethius test shows my body fights it.  Also suspected to have PBC or PSC  autoimmune liver disease.
 


AMinNJ
Regular Member


Date Joined Feb 2009
Total Posts : 40
   Posted 5/29/2009 6:29 PM (GMT -7)   

Gail - I don't mean to hijack this thread but I would be very interested in hearing more about your liver tumor if you feel comfortable sharing. Doctors found four small tumors in my liver last April after an ultrasound to check my gall bladder. Three are about 1 cm in size and one is about 3 cm. After a few weeks of absolute terror, I was extremely relieved to find out that they appear to be benign (hope to God they're not wrong) but 3 MRI's later and they are still debating whether they are FNH or adenoma. I will have another MRI in a few months with a new contrast drug in the hopes of getting a better diagnosis without having to resort to biopsy. These tumors are quite rare and I seldom run into other women with this problem, so it would be so helpful if we could compare notes.


Angela, age 43
dx Ulcerative Proctitis 2008 after colonoscopy
dx Crohn's 2009 after small capsule endoscopy
Symptoms on and off for more than 10 years
Currently taking no medications
Gluten-free, dairy-free, low sugar diet
VSL/probiotics, MorEPA, B Vitamins, Folic acid, Vit C, Vit D, Turmeric, Ginger, Selenium, Mushroom


sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 5/29/2009 9:18 PM (GMT -7)   
original--GI suspects the three diseases you mention autoimmune hep, pbc, or psc. OR a combo. it's getting a bit difficult to stay positive but i'm trying. The good news is that the biopsy was really easy and not much pain. He did it without painkillers. I have a great doc. I'm just getting really frustrated right now.
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.


tinglebell
Veteran Member


Date Joined Apr 2007
Total Posts : 531
   Posted 5/29/2009 10:45 PM (GMT -7)   
Hi sammies. I had a stent placed in my common bile duct. I had sl elevated liver enzymes, right upper quadrant pain and a dilated duct was found on U/S. It was removed after 3 months and I have been mostly sx free since then. I believe it was not too long after starting remicade (only had 3 doses before an allergy set in), and kind of felt there was some correlation, or PSC but only a guess. It was also reported on CT that my liver was "fatty" but the doc said it was normal for a woman my age. smhair Good luck with the biopsy.
DIANNE
Humira, pred and entocort 1/08
3 small bowel resections, 1 for perforation, 2 for strictures 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/30/2009 7:06 AM (GMT -7)   
Angela,

It started out about 6 mos after my first bowel resection. I first had what I thought was a gallbladder attack. I kept having a dull aching pain in my side most of the time. So the doctor ordered a u/s and they found the growth. He was worried at first that it might be cancerous and did a few tests and we found that it wasn't. The reason they ended up doing the surgery was because I was symptomatic (the constant ache in my side). Turned out to be FNH. I will tell you it was a very painful surgery. For pain relief they use Fentanyl patches with Morphine for break thru. Getting off the Fentanyl was horrible and I went thru bad withdrawals. I have now have alot of adhesion pain in my side now too. So if you are not symptomatic, I would avoid the surgery if you can.

Good luck,
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

sickliz77
New Member


Date Joined May 2009
Total Posts : 12
   Posted 5/30/2009 8:09 AM (GMT -7)   
DEAR SAMMIES..THE VERY FIRST SYMPTOMS I EVER HAD OF THIS DISEASE LANDED ME IN THE HOSPITAL TO TAKE OUT MY GALLBLADDER (2001 - 6 WEEKS AFTER MY FIRST CHILD), THEN IN 2007 I WAS TOLD AFTER TESTING THAT I HAVE A "FATTY LIVER" . I HAVE NO IDEA WHAT THAT MEANS, BUT I AM LEARNING THAT THERE IS A REAL CONNECTION BETWEEN CD AND OTHER "INFLAMMATORY RESPONSES" IN OUR BODY. DON'T YOU THINK IT IS ALL RELATED?
Had my gallbladder out in 2001,chronic inflammatory bowel disease diagnosed(FINALLY) in August 2008, Psoriasis, Had severe eczema and asthma as a small child (now no) Psoriatic Arthritis, chronic sinusitis,allergies,  including one episode of anaphylactic shock while having one of my "bowel episodes" at my daughters pediatricians office. Current meds: Omeprazole 20mg in AM,Flonase nasal spray, Quit Bentyl since it was the only med I had taken 30 min. prior to anaphylactic shock. Quit Nexium because it is too expensive! My PCP refuses to treat me, my GI doc only prescribed Nexium, and then NEVER discussed a treatment plan with me after telling me I had chronic inflammatory bowel disease when he got the results from all of my biopsies and test results from a colonoscopy and upper endoscopy. I need a GREAT doctor!


littlemissmuffet
Regular Member


Date Joined Feb 2009
Total Posts : 269
   Posted 5/30/2009 10:56 AM (GMT -7)   
I have a fatty liver too, was diagnosed shortly before my crohns. I had to stop drinking alcohol(which was a nitemare at the time) Little did I know much worse was to come, as I didnt know about the crohns then.

Since then I developed a liver reaction after taking azathiroprine.I was jaundiced, throwing up all the time, no appetite and constant itching. I came off the azathiroprine and was much better after about 5 days.

I also have a lesion on my liver which they monitor by scans, seems it is no problem at the moment because it hasnt grown and doesnt cause me any trouble. I hope it stays that way. Dont know if that is relevant.

I have read that crohns and fatty liver are linked. My understanding is that fatty liver is exactly that - fat in your liver
Diagnosed 2005.
 
Current medication  -  infliximab infusions, ranitidine, ferrous sulphate, Vitamin B12 injections, asacol


sha-sha
New Member


Date Joined May 2009
Total Posts : 1
   Posted 5/30/2009 5:32 PM (GMT -7)   
Hi I have Crohns and I also have a fatty liver. My biggest fear is having Liver disease since my brother, who by the way also had Crohns disease, just recently past away because of Cirrosis of the Liver which I believed was caused by Crohns since he was not a drinker. I hope everythings goes okay with you. Keep me posted on your condition.

jhicks
Regular Member


Date Joined May 2009
Total Posts : 177
   Posted 5/31/2009 8:53 PM (GMT -7)   
Has anyone tried Milk Thistle for healthy liver support? I have been doing a lot of research on this herb and it appears that it would be beneficial for those of us with Crohn's who are also taking prescription medications. You might want to look into it. The research/evidence seems to be building.
 
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