Coming down (and I mean DOWN) off of steroids.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 5/31/2009 10:40 AM (GMT -7)   
I'm having to taper completely off of steroids, due to an upcoming surgery. I'm having a discectomy and fusion. The neurosurgeon says that the bone won't grow correctly in the fusion if I'm on prednisone, so I'm tapering off of my maintenance dose of 25 mg/day all the way down to zero. I'm currently at 5 mg. My mood is better than it's been in months, but holy cow, I feel like crap. Pun intended. The crohn's symptoms are back with gusto. I also feel like I have a light case of the flu; all my joints and muscles are just achy enough to keep me from being able to sleep well. I toss and turn non stop trying to find a comfortable position. Even typing is hard, because my fingers and hands are so stiff. I'm generally uncomfortable, I have zero energy, and everything feels stiff and sore. I'm tempted to go ask my GI to test my sed rate just to see what the heck is going on.

I guess the pred was doing a lot more than just keeping the crohn's under control. Such an evil, evil drug.
Just trying to be a "Regular Member".


Entocort 9 mg/day, Prednisone 20 mg/day, started Humira 1/22/08, started 100 mg of Azasan (Imuran) 2/20/08. Increased Azasan to 150 mg 10/15/08. Discontinued Humira 11/03/08 after extreme fatigue and moderate muscle aches. Started Cimzia 12/4/08. Down to 5 mg/day of Pred now, and will continue to taper until completely off as long as the other meds keep me off the porcelain.



I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.


ExJohnson
Regular Member


Date Joined Feb 2009
Total Posts : 128
   Posted 5/31/2009 3:49 PM (GMT -7)   
i just started a maintainence dose of 20mg a day as a way to prep my bdoy for 6mp. I'm not looking forward to the coming down, either, and since I've taken it before (haven't we all?) I guess I know what to expect. Still not happy about it.

So do you have kids?
I am a pre-30yr. old who has been diagnosed with Crohn's for 14 years.  Symptoms change from cramping and weight loss to severe anemia with fatigue and diarrhea. 
100mg mecaptopurine, 20mg Prednisone, 500mg Metronidazole 3x daily, Darvocet for dessert.


CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 5/31/2009 6:40 PM (GMT -7)   
Yeah, I sure do. My boy is 7, and my girl just turned 2. I'm sure hoping they don't inherit any of this crap from me.
Just trying to be a "Regular Member".


Entocort 9 mg/day, Prednisone 20 mg/day, started Humira 1/22/08, started 100 mg of Azasan (Imuran) 2/20/08. Increased Azasan to 150 mg 10/15/08. Discontinued Humira 11/03/08 after extreme fatigue and moderate muscle aches. Started Cimzia 12/4/08. Down to 5 mg/day of Pred now, and will continue to taper until completely off as long as the other meds keep me off the porcelain.



I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 8:11 PM (GMT -7)
There are a total of 2,735,702 posts in 301,325 threads.
View Active Threads


Who's Online
This forum has 151422 registered members. Please welcome our newest member, Gabor88.
287 Guest(s), 12 Registered Member(s) are currently online.  Details
Krimpet 🍔, geop, FearBug, tickcheckguy, NiceGuyEddie, Girlie, Derwood, Sheeks175, joavila92, Mustard Seed, Ggrlsav, Csweeney1002


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer