Yes, will definitely let you know how it goes.
I’m at work at the moment but will leave at 1:45 to get there at 2:15. Given I always have to wait for an hr+ I won’t be rushing!
I’m looking forward to finding out how long it will be in for etc….. And why one of the setons was removed.
Btw I didn’t end up getting a kitty…… but think I might get one this weekend (it’s a long weekend too so good timing!)
Well the appointment went ok…….. After having to wait three hours in the waiting room due to an admin stuff-up (after an hour and a half I checked where I was in the queue and they’d misplaced my file!!!) – I saw the head of colorectal surgery who took a look at my drain. He ummed and ahhed and said there is ‘still disease there’ (by which I’m hoping he simply meant its still draining). He then went off and spoke to someone for a while, and I am hoping he was organising an apportionment with the IBD team at the hospital after I told him I was still waiting to hear from them.
I have another appointment next Thursday afternoon to have the drain removed. He said it should come out easily once they cut the stitches but sometimes it doesn’t in which case they’ll have to put me under a general. I certainly hope that isn’t the case!!
He believes I should be on some biologicals to help it heal up. The frustrating thing is I have been referred to the IBD team by my colorectal surgeon, and keep asking when I will get to see them, and everyone says ‘ill check up on that for you’ but nothing ever seems to happen. I feel like I’m banging my head on a brick wall and I’m petrified that the drain will come out and it will re-abscess without these meds.
I just hope they get an appointment for me to get these meds ASAP. I have had enough surgeries and abscesses now. I don’t think I can take much more if it were to get infected again!
I will chase them on thurs when I get the drain removed, but I wish I were on the meds now!! I guess I’m just pessimistic, with everything that’s happened since last November (abscess, abscess and more abscess)…..
I wish now that I’d asked him what he meant by there still being disease down there. When he came back from speaking to someone elsewhere (leaving the nurse and I to have awkward conversations while I was lying pantless with a sheet!), he said ‘I will see you next Thursday to have that drain removed’ and I asked him if he was confident it was ready to come out and he said ‘yes yes!’ – He said it is still raining a bit and he wants it to be ‘completely dry’ before it comes out. He seemed confident it was ready to come out. I expressed my concern that it would re-abscess and he said that is always the problem, and that is also the reason he wants me on these meds. He mentioned imuran and 6-MP so I am guessing these are the meds they will try me on first. Do you think I will need to keep a diary for these meds also?
I always feel like these appointments are so rushed – and after they say what they want to happen, I am always rushing in questions (‘will it hurt when it comes out, are you sure its ready) etc……
I am just anxious I guess to get these meds because I am so scared it will re-abscess without the help of the meds. Just from experience I guess. I can only hope for the best but this thing has been making my life so painful and difficult since November of last year – I just hope it leaves me alone for good.
Perhaps the disease he was referring to was my fissure – there is a fissure above the drain near my tail bone which is very red and inflamed at the moment.
I feel like I have all of these surgeons ‘rooting’ for me but then nothing ends up happening and it is frustrating. Hopefully next Thursday I will get some more concrete answers as to when I will see the team/get the meds.
At the moment the pain is actually quite tolerable. So I am happy about that. Since the surgery after-effects have settled down, it’s a lot more comfortable. I’m trying to avoid strong pain meds as much as I possibly can, so I didn’t ask for another script. It does scare me a bit the thought of becoming reliant on pain meds. So I am going to try and stick it out. However, I think I will ask for some more next Thursday after having the drain removed, just in case it does hurt.
I keep hearing different things from different people about what meds I will be put on – so it’s hard to know. I would just like to know for sure so I could research them etc!
Hey guys good news! I just got a call from the IBD team and Dr Radford-Smith and I have an appointment to see them next Thursday morning, which is the same day I am having my drain removed! Yay! So now I can stop stressing about my treatments!
I am first on his list for the day and apparently he only sees 3 patients every thurs morning. I’m excited! This man could really improve my health and help my surgeries to heal up nicely. So happy about that!
Thursday the 11th june J